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Beyond an Apple a Day: Providing Consumer Health Information at Your Library

National Network of Libraries of Medicine http://nnlm.gov

(800) 338-7657

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Agenda History & evolution of consumer health Health information needs of patrons Challenges of providing CH services Collection development Consumer health on the internet The reference interview Ethics Outreach Marketing

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Consumer Health – then and now… 1972 Patient Bill of Rights

Realities of Health Care today: Patients are now asked to make decisions about their own

disease process. Most patients do not have the tools to make these kinds of

decisions Libraries can help!

evolution of e-patients In 2000, 52 million Americans searched the internet for

health

In 2002, 73 million…

Pew Internet Study – Online Health Search 2006 – 113 million or 80% of American Internet users

In 2006, “Googling for a diagnosis” [BMJ]

In 2006, only one quarter of online health seekers said they always or usually check the source and date of health information online!

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Health Literacy The ability to read, understand and act on health

information [Pfizer 2002] The degree to which individuals have the capacity

to obtain, process and understand basic health information and services needed to make appropriate health decisions [Healthy People 2010]

What is the strongest predictor of an individual’s health status? Age Income Employment status Educations Literacy skills Racial/ethnic group

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Fill in the blanks One out of ? American adults reads at the 5th

grade level or below, and the average.

one out of 5 American reads at the 8th to 9th grade level, yet

most health care materials are written above the ? grade level.

10th grade

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Discussion

Thoughts on health literacy and how it impacts

the individual and society?

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Why is health literacy so critical? Essential life skill Public health imperative Essential part of social capital Critical economic issue

Source: “Navigating Health: The Role of Health Literacy”, Kickbusch

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Resources for health literacy MedlinePlus – Easy to read

easy to read resources and a how to write easy to read page

Ask Me 3, Partnership for Clear Health Communication

1. What is my main problem? 2. What do I need to do? 3. Why is it important for me to do this?

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Sharing Take 10 minutes to discuss with a partner or a group, some

examples of consumer health questions. We wrap up this activity with a discussion of your examples

together as a class.

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Challenges of the reference interview in the context of health information

Not being familiar with the resources Medical terminology Knowing how much to ask Using open ended questions Being aware of body language Not offering personal experiences Others?

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The Reference Interview…in the context of health information

Be empathetic Be an active listener Use open ended questions Respect privacy / confidentiality Be prepared for emotions Be aware of body language Do not be afraid to refer the patron back to his/her health

care provider

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Disclaimers + caution statements “Materials in the Resource Center represent the opinions of

the authors and are intended as a complement, not a substitute for the advice of your healthcare providers.”

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Ethical Guidelines Privacy / Confidentiality Know the limits of your collection Do not interpret medical information Use a disclaimer or caution statement

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Planning the service Needs assessment

DRG example Potential DRG resource Leapfrog Health grades

Analyze the demographics of your community CDC Faststats Kaiser State Health Facts Public Library Geographic Database

CONSIDERATIONS OF STARTING A CH SERVICE AT YOUR LIBRARY?

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Collection Development Book lists on CAPHIS

UCONN Healthnet Bibel, B. Library Journal

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Consumer Health on the Internet The ABC’s of evaluation

Accuracy Authority Bias Currency Coverage And, user friendliness

04/19/23http://medlineplus.gov

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http://nihseniorhealth.gov

NIHSeniorHealth.gov

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http://nihseniorhealth.gov/toolkit/toolkit.html

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http://clinicaltrials.gov

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http://nccam.nih.gov http://nccam.nih.gov

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http://nlm.nih.gov

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http://dirline.nlm.nih.gov

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http://healthhotlines.nlm.nih.gov

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http://cancer.gov

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http://druginfo.nlm.nih.gov/drugportal/drugportal.jsp

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http://dailymed.nlm.nih.gov

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http://dietarysupplements.nlm.nih.gov/dietary/

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http://drugdigest.org

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http://www.patientinform.org/

QUESTIONS THUS FAR?

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Hands on Exercises1) What is cholelithiasis? 2) Find a video for caregiver support of Alzheimer’s Disease. 3) My husband burned his hand on our outdoor grill. He said that he thought he

should put butter on it. What is the best thing to do for a minor burn? 4) What is Pyelonephritis and how is it treated?  5) My daughter is attending college in Chicago. She is having headaches and a

stuffy nose. Our primary care doctor said she probably is allergic to something. Can you help us find a good allergist in Chicago?

      

Hands on Exercises (cont.)6) I heard that black cohosh is good for menopausal symptoms. Is it safe to

take? Is there any evidence that it is effective for menopause?  7) What is the ideal blood pressure?  8) My friend needs to find a nursing home for her father within 10 miles of

Burlington, VT.  9) Are there any current clinical trials for complementary and alternative

treatment of fibromyalgia? 10) I read an article in Consumer Reports on Health that said excessive

calcium intake from calcium enriched foods (like Calcium enriched OJ) could cause kidney stones. How much calcium is too much?

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BREAK

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COLLABORATION +HEALTH INFORMATION OUTREACH

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http://nnlm.gov

NN/LM funded projects

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Potential Collaborators

04/19/23Source: City of Somerville

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http://caphis.mlanet.org/

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http://nnlm.gov/evaluation

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http://ehrweb.aaas.org/PDF/ChallengePubLibraries.pdf

10 top reasons to market your library? Competition for

customers Competition for

resources Maintain your

relevance Stop being taken for

granted Promote an updated

image

Visibility Valuable community

resource Rising expectations Survival Beneficial to library

image

Source: University of Illinois Current LIS Clips

(2003)

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Marketing Sharing: Get together in groups of 2 or 3

and come up with a couple of good marketing ideas to share.

We will discuss them as a group.

Other ideas: Bookmarks, websites, press releases,

lecture series, videos in hospital waiting room, screening clinics, health fairs, Information Rx, newsletter, public speaking to community groups, pedometer program, consumer health database searching series.

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InformationRx.org

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The Elevator SpeechIn 15 seconds or less: Who we are? What we do? Why does it matter? Once again, thank you.

InfoPeople, Building Leadership Skills: Community Engagement, 2007

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QUESTIONS?

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Reflection Think of the three most important take

home messages from today’s presentation.

Think of three people to share this information.

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Thank you!

Contact information:

http://nnlm.gov

(800) 338-7657

Course developed by Michelle Eberle and Terri Ottosen

This project is supported under contract # HHS-N-276-2011-00010C with the NN/LM New England Region and contract # HHS-N-276-2011-00004-C with the Southeastern Atlantic Region from the National Library of Medicine.