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Challenges and
Opportunities in Sharing
Dr Angela Miller
St. Georges, University of London
Gabrielle Campbell
International Conference on VirtualPatients
Krakow, Poland
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Issues to Consider
Copyrights and design
Time and effort
Patient information and consent Ownership and institutional
policy
Jurisdictional differences
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What are the rights?
Copyright Software source code
Design and formatting
Information Photos, audio, video
Architecture
Design rights registered andunregistered in specific territories
Aesthetics and creative design
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Intellectual Property Rights
Copy
Modify (create derivative works)
Distribute Publically Display
Publically Perform
Do you have the right to use thematerial or to share the
VirtualPatients youve spent time &
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Patient Information &
Informed Consent
Not just an IT way of training containreal information about
real patients
Data protection regulations and respectfor patient
information
Must be very careful about obtaining
proper consent upfront and protectingpatient data
Do you have broad enough consent
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Jurisdiction and Institutions
Every place is different!
Must understand your institutionspolicies regarding IPRs and
consent, as
well as those of others Copyright laws are not completely
harmonized
Consent procedures differ
Do you have the rights and consentsto share what youve
created
institutionall & le all ?
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Sharing VPs
If rights arent managed, the VPcannot effectively be
distributed,
repurposed, or shared again
(legally)
There IS a solution
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Finding the Common Ground
eVIP: EC funded Europeancollaboration
Eight countries, nine institutions
Dedicated to sharing and repurposingVPs
Needed common framework for IPRs,
consent & licensing
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Finding the Common Ground
Understanding Copyright laws for country
Data laws on patient information and
consent procedures Policies for other institutions
Achieving consensus on how VPs will be
usedThe common ground for licensing with the
creators and the users
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Thank you!
Angela [email protected]
Gabrielle [email protected]
mailto:[email protected]:[email protected]:[email protected]:[email protected]
