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1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1 , Dr Cindy Jardine 1 , and Dr Tania Bubela 1 “That’s How the Nurse Did It, How She Decided Which Vaccines”

1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

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Page 1: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

1 School of Public Health, University of AlbertaPublic Health 2014, May 27, 2014, Toronto, ON

by Stephanie Patricia Kowal1, Dr Cindy Jardine1, and Dr Tania Bubela1

“That’s How the Nurse Did It, How She Decided Which Vaccines”

Page 2: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr
Page 3: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Baker et al., 2010; Luman et al. 2005; Smith & Stevenson, 2008

Page 4: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr
Page 5: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

1) Document Vaccination Experiences

2) Understand decision making processes

Study Purpose

Page 6: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Methods

23 Qualitative Interviews

South Asia: n=8

China: n=10

Bhutanese Refugees: n=5

Page 7: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Edmonton’s Foreign-Born Population

Immigrant Population Make-Up: Edmonton, Alberta

Chinese 28%

Latin American 5%

South Asian 23%South East Asian 6%

Black 12%

Arab 7%

Filipino 11%

Other 8%

Statistics Canada, censuses of population, 1901 to 2006.

Page 8: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Interview Guide

• Previous vaccine experiences

• Comprehension of how vaccine technology and regulations

Page 9: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Results – Passivity and Trust

No. No. No. If they say go, then I’ll just go… Canada places a high importance toward children and won’t cause any harm toward them. So because of that and they have already done research to see what is good for the children, then I’ll just go with them (Chinese Participant)

Page 10: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Results - Trust

If these vaccination are at the approval of the government and have gone through medical and scientific test and it’s safe, I don’t think it’s a problem… Over here, I feel completely secure.(Chinese Participant)

Page 11: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Results: (un)Informed Consent

Technical and Regulatory Understandings

Page 12: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

There was once that after the vaccination, he developed a fever and a second time, he had some reaction… Nothing serious and I think he is accustomed to it. He didn’t cry or fuss about it. I think it’s good. (Chinese Participant)

Results: (un)Informed Consent

Page 13: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

It was nothing like that. On our first visit, we had gone to the nurse and she told us that if we are staying close to the baby, this is the list of vaccines we give…She asked me a few questions. It also depended on which origin you were from…I think that’s how she did it, how she decided which vaccines .(South Asian Participant)

Results: Agency

Page 14: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Implications for Consent

Page 15: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Uncomfortable Issues

• Meaning in Consent

• Compliance vs Consent

• Universality of Consent

Page 16: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Uncomfortable Issues

• Meaning in Consent

• Compliance vs Consent

• Universality of Consent

Page 17: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Uncomfortable Issues

• Meaning in Consent

• Compliance vs Consent

• Universality of Consent

Page 18: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Information in Compliance and Consent

Page 19: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

References

Baker, D. L., Dang, M. T., Ly, M. Y., & Diaz, R. (2010). Perception of Barriers to Immunization among Parents of Hmong Origin in California, American Journal of Public Health, 100(5), 839.

Luman, E. T., Barker, L. E., McCauley, M. M., & Drews-Botsch, C. (2005). Timeliness of Childhood Immunizations: A State-Specific Analysis, American Journal of Public Health, 95(8), 1367.

Smith, P. J., & Stevenson, J. (2008). Racial/Ethnic Disparities in Vaccination Coverage by 19 Months of Age: An Evaluation of the Impact of Missing Data Resulting from Record Scattering, Statistics in Medicine 27(20), 4107-4118.

Statistics Canada (2006) Immigration and Citizenship Highlight Tables, 2006 Census. Available at http://www12.statcan.ca/census-recensement/2006/dp-pd/hlt/97-557/Index-eng.cfm

Page 20: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Thank You!Questions?

AcknowledgementsMulti-Cultural Health Brokers Cooperative: Yvonne Chiu Shiva Chapagai Lydia Yip Hina Naushad Ravi Hansra Daljit Rupana

Funders:• CIHR Master’s Award• HQCA Summer Studentship• WCHRI Qualitative Core Resource• WCHRI/CUP CBR Science Shop• WCHRI Graduate Studentship

Research Participants

Contact Info: [email protected]

TranslatorsJian WangDr. Amrita Mishra

Page 21: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Recommendations for Communications Development

1) Facilitate finding family doctors

2) Create robust information delivery network to reach those not connected with physicians

Page 22: 1 School of Public Health, University of Alberta Public Health 2014, May 27, 2014, Toronto, ON by Stephanie Patricia Kowal 1, Dr Cindy Jardine 1, and Dr

Similarities Among Differences

Chinese, Bhutanese, and Indian Contexts