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Link to the original is here http://www.gilliganondata.com/index.php/2008/09/30/off-topic-social-media-for-nonprofits-getting-the-word-out-in-the-new-information-age/
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Web 2.0 on Planet Cancer
Heidi Adams
Founder / Executive Director
Social Media: Getting the Word Out in the New Information Age
Panelists:David Neff, American Cancer SocietyHeidi Adams, Planetcancer.orgConnie Reece, Every Dot Connects
Moderator: Tim Wilson, Bulldog Solutions
This case study came from this presentation –
The Who and the Why
Audience
− Young adults in their 20s and 30s who have or have had cancer
Goal
− CONNECTION: Create a community of peer support, a voice, and a distinct group identity for young adults with cancer
How? (And how MUCH?)
Option 1− Totally custom social networking solution
− $35,000- $50,000
Option 2 − Beta test custom solution adapted from another market
− Free--for now.
Option 3− Ning
− ≈$50/month + cost of some basic initial customization
www.ning.com
Why we chose Ning
Off-the-shelf, customizable platform with lots of features and ready support
Cheap
Potential networking among hundreds of thousands of other Ning communities
Did we mention cheap?
Familiar interface á la MySpace
Constantly updating and improving based on user feedback
Aaaaaand……cheap. :-)
For the extra $50/month…
Remove Ning promotion links
Remove ads
Use your own domain name without “Ning” (ex: myplanet.planetcancer.org)
Buy more storage and bandwidth
My Planet -
main page
Some cool features….
Personal pages
Groups
Forum
Other cool features
Real-time activity stream (member/site)
Viral widgets / network badge
Facebook integration
Upsides
Support on demand, 24/7
Ability for young adult user to define their own experience through groups and multiple methods of communication
Everyone gets to tell their own story in their own way
Faster, more effective promotion of PC activities, opportunities
Downsides
Registration is with Ning username only
Template limitations
Ended up with two separate and not-so-equal sites
Challenges of My Planet
Staying ahead of the dynamic evolution of boundaries
Great communication among members not always a plus for organization
Maintaining strong organizational presence
Privacy concerns
Keeping up with “housekeeping”
My Planet by the numbers
2,111 registered users and growing! (90 last week)
Average time on site - 9:12
Almost 20,000 visits / month
1,307 forum topics
2,027 blog posts
141 groups
Impact on Planet Cancer community
Interaction has exploded
Much stronger bonds developed among members
Increased participation in face-to-face programs
Faster, deeper promotion of PC activities, opportunities, fundraising
At the end of the day…
“After seeing the "$10.00-Donate!" button on this website every time I use it, I decided to donate! After all, I am enjoying this new social network SO much! It is exactly what I wanted when I was first diagnosed three years ago. It didn't exist then, so I had to search for other ways of meeting young adults with cancer.
Basically, this website is worth more than a co-pay, more than my deductible, and more than my doctor's fees. Thank you all for being here and finally providing the support I've been needing.”
Blog posting prompted 3 more member donations within a day.
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