Toronto Anaphylaxis Education Group...

Toronto Anaphylaxis Education Group (TAEG)

May 27th, 2015

7-9pm

Intros and announcements

Voting on our topics for 2015/16

Sharing travel and allergy management tips:

Favourite allergy management products and tips (pictures linked to sites wherever possible)

Disney, Great Wolf Lodge, Beaches, Insurance

Summer Camp tips and Camp Tamarack

Road trips

Daycare – the art of the possible

Sharing – tips and tricks

Drawing for cookbook and Wrap up

Agenda (click to jump to sections)

Introductions and Announcements

• Marni Halter

• Sarah Nicholl

• June 7th

– TAEG families will be going to the Jays Game in the Peanut/Nut reduced section

– Details at www.taeg.ca

Join us at the Jays Game!

Visit us at www.taeg.ca

Join us on Facebook

Visual Poll at AC Conference

Pink (12) = 21% Green (45) = 79%

How to inform extended families about real dangers of allergies

• Votes: 2

Travelling Tips and Advice, Labelling in other countries

• Votes: 7

How to explain allergies to kids and transitions to independence

• Votes: 6

Food Labelling

• Votes: 0

Research on Anaphylaxis Ask the Allergist

• Votes: 9

Speakers – kids and teens

• Votes: 4

Effectively managing entry into middle school and high school

• Votes: 4

Toronto Argo with allergies

• Votes: 3

Camps and allergies – research and practical advice

• Votes: 4

More:

• What happens in an emergency (from a Dr or paramedic)

• Votes: 3

• _______________________

• Votes:

Disclaimer

• All material in this presentation is provided for information purposes only. Information and products are included based on recommendation of TAEG members, but have not been verified by TAEG.

• TAEG makes no claims, promises, or guarantees about the accuracy, completeness, or adequacy of the contents of this presentation, and expressly disclaims liability for errors and omissions in its contents. No warranty of any kind, implied, expressed, or statutory, is given with respect to the contents of this presentation or its links to other Internet resources.

• Reference to any specific commercial product, process, or service, or the use of any trade, firm or corporation name is for the information and convenience of the public, and does not constitute endorsement or recommendation by TAEG

Favourite Allergy Management Products and Tips – Dairy/Egg/Nut free

https://www.roadid.com

The Borden Big List - snacks

Pizza day for dairy allergic

Loblaws and more

Loblaws and more Metro

Favourite Allergy Management Products and Tips – Dairy/Egg/Nut free

Available at Loblaws/ Superstore

Order onlineOnline and US shops

@ Nature’s Emporium

Milk/Egg/Gluten/Nut Free– great for hot day treat

Dairy/Egg/Shellfish/Sesame free

Dairy/Egg/Nut/Shellfish/Sesame free

Dairy/Egg/Nut/Shellfish/Sesame free

Dairy/Egg/Nut/Shellfish/Sesame free

Airport

Favourite Allergy Management Products and Tips

• Allergic living ebook: http://allergicliving.com/wp-content/uploads/2015/05/18-things-you-need-to-know-ebooklet.pdf

• Recipes at www.Ohsheglows.com• Allergy Awareness Resources:

http://allergicliving.com/2015/05/05/food-allergy-celiac-awareness-month-toolkit-2015/

• http://simplegreensmoothies.com/recipes– (Chocolate covered cherry is our favourite)

• Vegan dessert website -- cookbook out www.Chocolatecoveredkatie.com

• Vegan smoothie (smoothie cookbook, new regular cookbook coming april 28) - Kathy patalsky, healthy happy life

• http://www.hypefoodie.com/

Travel insurance

• Check: many policies have exclusions for "pre-existing conditions“ or “stability requirements”

• This means insurance will not cover any treatment for a condition if there was a change in medication (increase/decrease in dose, new Rx) or hospital visit for some period before travel – often SIX MONTHS!

• Consequence: if your child had an allergic reaction requiring an ER visit, or you changed his/her asthma medication in the 6 mosbefore the trip, your child would not be covered for that illness (allergy or asthma) on the trip

• Scary b/c may have already booked trip, may not want to go out of country (esp. to the U.S.) without travel insurance

• found "Travel Guardian Insurance Ltd." - pre-existing exclusion only for 10 days before trip. Not terribly expensive.

Great Wolf Lodge

• all hotel rooms have coffee maker, mini-fridge & microwave

• must bring own plates, utensils

• rooms available from 4pm to 11am, but allowed to use facilities from 1pm until following evening

• easy to bring dinner, breakfast, lunch plus snacks (we stopped at McDonalds on way home)

Beaches

• Visited Turks & Caicos location (May 2010)• Has a "food concierge" on site• Contact on arrival or daily to plan next day's meals. • Chef comes out to talk to you before each meal, personally

delivers meals• We e-mailed ahead, they ordered certain products

specifically for us (e.g. egg/nut free ice cream)• T&C location less than 30 mins from hospital (Jamaica - 2

resorts, further from hospital)• Have spoken with other allergy families (multiple allergies)

who have had good experiences there, one who goes back annually

Planning for Disney World

• Disney is well known for accommodating food allergies at all parks & hotels

• Protocol established to have chef come to table if anyone identifies as having food allergies

• apparently, you can show up at restaurants without reservation and will accommodate, but Disney recommends making restaurant reservations ahead of time (up to 6 mos) and informing them of allergies

• have binders with all ingredients at every restaurant/ food service location• have a "cake hotline" for ordering birthday/celebrations. Can

accommodate allergies (called me back to read ingredients to have me confirm was safe for my kids)

• online info available (e.g. allergyfreemouse.com, allergyeats.com, etc. ) • can bring own food into parks. • grocery delivery service or many grocery stores nearby (Whole Foods)

Disney

• Workbook with a sheet per park that you can update (listing created in 2008 so some rides have been added, some removed)

• Print updated sheets – one per park, easier to carry than a guidebook

• Click here for workbook

Summer Camp Food Allergy Tips

Dr. Sydney LeibelPediatric AllergistCamp Tamarack TeamAllergytamarack@gmail.com

When selecting a camp

Talk to camp management early:

Ask about:

policies

prevention strategies

food preparation practices

training of staff

Emergency action plan

Anaphylaxis.ca has written form

How far from camp is nearest hospital

How much time for EMS to arrive?

Does EMS carry epinephrine? Volunteer service?

Does local ER staff pediatricians? 24/7?

Review camp with your child’s allergist

Once Camp Selected

Talk with Camp Director/Medical Director Provide camp with medical report and allergy action plan

Clarify type of exposure that would trigger reaction (smell, touch, ingestion?)

Make sure camp knows if there is also a venom allergy and/or difficult to control asthma?

Review meal plans with food service manager Cross-contamination risks: Buffet lines, Camp Candy stores,

snacks from home or in cabins

Allergen free spaces to eat?

Can you visit chef/meal area prior to camp?

Assure all personnel know your child is allergic and know where medication is located and protocol to follow

Getting ready for camp

Make appointment with allergist to review child’s allergies prior to camp.

Check that auto-injectors are not expired. Bring two?

Review allergy action plan with your child. Do’s and Don’ts ie: do not share food with other campers, do

seek help if reaction occurs or suspected

Make sure your child knows how to use the auto-injector, and has a pouch or carrying case for the device

If traveling by train or bus to camp, make sure transportation personnel know about your child’s food allergies

Last, but not least

Have a great time at camp!!!!

Camp Tamarack http://camptamarack.info/

Road Trips

ChecklistsMenu and shopping listFor family of 4Dairy/Egg/Nut/Fish freeClick picture to access

Games for in the car –Click picture to access

Daycare – setting up a safe environment

• Blog post at http://www.hypefoodie.com/eating-out/1889/campus-coop-daycare-allergy-friendly-daycare-heart-city

Activity – Think, Pair and Share

Pair up and discuss

• What allergy management tip do you have to share that wasn’t covered?

• Do you have a burning question on allergy management that didn’t get covered?

Share group highlights

Shared during our meeting and in follow up:

• Shops that members have found specialty items at:– Fiesta Farms– St Lawrence market (nuts in shell, in case you need a particular

nut without cross contamination)– Ambrosia– Whole Foods– Healthy Butcher – Queen, Ave/Eg– Noah’s

• Bar Italia – owner has allergic family member, call ahead to plan, member at there with 8 of top 10 allergens

• http://allergicliving.com/2010/08/30/comparing-airlines/

Additional products:

This Whip cream and cookies –dairy, egg, nut free

Lollipops available at loblaws$4.99 for 100

Draw for Cookbook

Click for more details on this great new cookbook! Thank you Lisa!

Toronto Anaphylaxis Education Group (TAEG)

See you soon!

Jays game – June 7th

TAEG 2015/16 Program coming in August!