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The Latvian Umbrella Body For Disability and Patient's
Organisations SUSTENTO
Role of patient organisations'
networks
Marta Kozireva
Chair Person of the Latvian Kidney Patient Association
Board Member of SUSTENTO
We work towards governmental policy for people with disabilities and chronic diseases, which
▲Provide human rights
▲Prevent discrimination
Aim of SUSTENTO
At the moment SUSTENTO unites 31 organisations, members of these organisations are people with different kinds of disabilities and chronic diseases.
We represent interests of about 50 000 patients in Latvia
SUSTENTOwas founded in 2002
Challenges that SUSTENTO had in the set up phase
▲People did not believe that common work could be fruitful and useful for the single organisations
▲People saw this coalition more as a restriction of their freedom
▲Most organisations were sure that they were able to represent their work on their own – no need for additional assistance
31 national disability and patient
organisations
GA (1 time per year)
Meeting of Representatives' - 1 representative from each
organisation (meeting 1 time per 2 months)
Board 7 members
Secretariat
Structure of Organisation
Patient`s rights advocacy and representation
Our activities
PwD rights advocacy and representation
Antidiscrimination
Equal rights
Peer supportEqual rights to treatment
Antidiscrimination
Involvement in Health policy planning
Capacity building
Circulation of information
Cooperation with networks in Latvia, EU and Global
National organisations with regional network
Th
e ca
pac
ity
of
SU
ST
EN
TO
Direct communication with target groups
Direct communication with regional institutions
Parliament, Ministry of Health, Welfare, Education, Transport
Benefits we got from the fact of uniting into a network
▲We are able to influence and participate in legislative matters affecting human health and social welfare laws under construction
▲Member organisations establishing direct and feedback communication of SUSTENTO
What we are doing... Regular meetings with Ministry of Health;
What we are doing... Regular surveys on availability and quality of health services;
What we are doing...Exchanges information from member
organisations and other patient organisations;
What we are doing...Annual Conference of the patients
organisations;
What we are doing...Financial amounts to EUR 700's for organisation activities.
Thank you for attention!
www.sustento.lv
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