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PSYCHOSOCIAL ISSUES IN PSYCHOSOCIAL ISSUES IN CYSTIC FIBROSIS CYSTIC FIBROSIS ADHERENCE AND QUALITY ADHERENCE AND QUALITY OF LIFEOF LIFEYvonne D. Gathers, MSW,LCSW
Clinical Social Worker
Pediatric Pulmonary Center
OBJECTIVESOBJECTIVES Psychosocial Issues in children, adolescents
and adults with Cystic Fibrosis Psychological complications of cystic fibrosis Obstacles of Transition to adult Care Obstacles for parents/Caregivers View video tape of adolescents with cystic
fibrosis
INTRODUCTIONINTRODUCTION Children (age birth-10 yrs.) Early adolescence (age range 11-14 yrs.) Am I normal Mid-adolescence (age 14-16 yrs.) Independence/self image Late adolescence (age 17-older yrs.) Future oriented, intimacy /career goals
Process of acquiring relevant information needed to decide on and develop a rational plan for helping clients or patients.
Cultural Values Environment Health Beliefs
Resources Education Economics Housing Support system Family
PSYCHOLOGICAL PSYCHOLOGICAL COMPLICATIONS OF CYSTIC COMPLICATIONS OF CYSTIC FIBROSISFIBROSIS Severity of Disease Shock, disbelief, fear, anger, depression &
guilt Treatment Regiment Nutritional habits/Bonding time vs vest
therapy Length of Hospitalizations/Outpatient Office
Visits Employment/Marriage
PSYCHOLOGICAL PSYCHOLOGICAL COMPLICATIONSCOMPLICATIONS Body image Mature 1 ½ - 2 yrs. later Younger and small body size Relationship with peers
OBSTACLES AFFECTING OBSTACLES AFFECTING TRANSITIONTRANSITION Dependent behavior Immaturity Severe illness or disability Mental Health Lack of support systems Lack of trust in caregivers Poor adherence to treatment regiment Parental involvement
OBSTACLES FOR OBSTACLES FOR PARENTS/CAREGIVERSPARENTS/CAREGIVERS Excessive need for control Emotional dependency Parenting styles/overprotective Heightened perception of disease severity Lack of trust in caregivers Denial about the severity of the disease
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