National Blood Clot Alliance National Survey About Deep Vein Thrombosis and Pulmonary Embolism...

National Blood Clot AllianceNational Blood Clot Alliance

National Survey About Deep Vein Thrombosis National Survey About Deep Vein Thrombosis and Pulmonary Embolism and Pulmonary Embolism

Awareness, Information, Prevention, Adherence

Key Survey Findings for Key Survey Findings for Healthcare Professionals Healthcare Professionals

in Oncologyin Oncology

Made Possible By a Grant From Ortho McNeil™, a Division of Ortho-McNeil-Janssen Pharmaceuticals, Inc.

National Blood Clot Alliance

Patient GoverningPatient GoverningBoardBoard

Volunteer based, patient led

Science Science drivendriven

Medical & Scientific Medical & Scientific Advisory BoardAdvisory Board

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Dedicated to the prevention & quality treatment of blood clots

and clotting disorders

Awareness

Advocacy

Stop Stop the the ClotClot®®

National Blood Clot Alliance

www.stoptheclot.org

A Call To Action

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Public Health Perspectives: Morbidity, Mortality

Perspectives in Oncology

Overview: The NBCA DVT/PE Awareness Survey

Methodology

Methodology

AwarenessAwareness

General Public 500General Public 500

• Cancer Dx within 12 mos• 67% Dx or Tx within 6

mos• Mean age 57.84• 64 female

ProphylaxisProphylaxis

InformationInformation

AdherenceAdherence

Inpatients 206Inpatients 206

Outpatients Outpatients 294294

Oncology 500

Survey Participants: Cancer Diagnoses Included

n=500 cancer patients

DVT/PE Awareness

24%36%

24%15%

p=<.05% p<.05%

DVT/PE Awareness

Health Literacy: “Blood Clot” Awareness

Risk Factor Awareness Among Oncology Patients

Signs and Symptoms Awareness

Provision of Information by MDs, Other HCPs

p=<.05%

44%

27%

Patient-Reported VTE Prophylaxis Experiences

35%

p=<.05% p=<.05% p=<.10% p=<.05% p=<.05%

28%

21%

16%

52%

31% 38%39%

52%

31%

Key Findings: Inpatient Versus Outpatient Disparity

Inpatient Outpatient

AwarenesAwarenesss

InformatioInformationn

ProphylaxiProphylaxiss

Joint Commissio

nCMS

Additional Findings: Adherence Among Oncology Patients

Additional Findings: Information and Education

Additional Findings: Oncology Patient Preferences

Conclusions and Future Directions

Improve patient awareness of DVT/PE, simplify terms

Optimize education programs/ prophylaxis among patients

Research new therapies to address treatment barriers

Improve patient/MD dialogue about risks & prevention

• Risk ≠ awareness• “Blood clot” resonates

• Information gaps exists• Outpatients: significantly

greater

• Treatment barriers identified• Patients report adherence

• Prophylaxis varies• Underutilized among outpatients

Awareness

Information

Prophylaxis

Adherence

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Reduced risksReduced risksand reducedand reduced

complicationscomplications

Improved Improved DVT/PE DVT/PE

understanding understanding and prophylaxisand prophylaxis

Decreased Decreased morbidity, morbidity,

mortality, costsmortality, costs

Imperatives Moving Forward

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Thank You for Your Commitment

The National Blood Clot Alliance thanks you for your commitment toDVT/PE education and prevention,

and for your ongoing efforts to help us

Stop the Clot®

www.stoptheclot.org

Jack E. Ansell, MD - Steering Committee ChairChairman, Department of Medicine, Lenox Hill Hospital, Professor of Medicine, New York University School of Medicine, New York, NY

Alan P. Brownstein, MPHChief Executive Officer, National Blood Clot Alliance, Tarrytown, NY

Richard J. Friedman, MD, FRCSCChairman, Department of Orthopaedic Surgery, Roper Hospital,

Clinical Professor of Orthopaedic Surgery, Medical University of South Carolina, Charleston, SC

Greg A. Maynard, MD, MSc, SFHMChief, Division of Hospital Medicine, University of California, San Diego, CA

Frederick R. Rickles, MD Professor of Medicine, Pediatrics and Pharmacology and Physiology, The George Washington University, Washington, DC

Elizabeth A. Varga, MS, CGCCertified Genetic Counselor, National Children’s Hospital, Clinical Assistant Professor of Pediatrics, The Ohio State University,

Columbus, OH

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The National Blood Clot Alliance extends its appreciation to members of the NBCA DVT/PE Awareness Survey Steering Committee

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LF&A, Inc.Lisa Fullam, President, Scottsdale, AZ

Dry Heat Productions, Inc.Scottsdale, AZ

Communications and Production Services

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The NBCA DVT/PE Awareness SurveyWas Made Possible by a Grant From

For More Information, Contact the National Blood Clot Alliance

On the Web: www.stoptheclot.org

On Facebook: www.facebook.com/stoptheclot

By phone: 877.4NO.CLOT 877.466.2568

©NBCA 2011