Demographics … who, what, where and when UK National Paediatric Bilateral Audit. Helen Cullington...

Demographics … who, what, where and whenUK National Paediatric Bilateral Audit.

Helen Cullington11 April 2013

1001 children

465 simultaneous

536 sequential

3

FemaleMale FemaleMale

Simultaneous Sequential

Simultaneous

Sequential

6

sim

7

seq

8

seq

9

seq

10

Pre

, 1

, 2

, 3

ye

ars 1.

Professional rating scale2. Parental questionnaire 3. Performance measure

Simultaneous n=465

BPVS

CAPII

SIR

POP

BLSP

BAPP

ATT/B

KB qui

et

ATT/B

KB N0

ATT/B

KB N+-9

0

loca

lisat

ion

0

100

200

300

400

Pre1 year2 years3 years

12

Professional rating scale

Parental questionnair

e

Performance measure

N/A

N/A

N/A

N/A

Sequential n=536

BPVS

CAPII

SIR

POP

BLSP

BAPP

ATT/B

KB qui

et

ATT/B

KB N0

ATT/B

KB N+-9

0

loca

lisat

ion

0

100

200

300

400

500

Pre1 year2 years3 years

13

Professional rating scale

Parental questionnair

e

Performance measure

N/A

N/A

N/A

14

15

Home languageArabicBengaliBritish Sign LanguageCreoleEnglishFarsiFilipinoFrenchGujrathiHindiMalayalamaMirpuriNepaliPolishPortugesePunjabiPushtuRomanianSomaliSylhetiUrduWelshYiddish

Weaknesses• So much missing data

• Children ‘dropped out’ and ‘dropped in’

• Performance testing limited on simultaneous group due to young age

• Performance testing skewed by results only being obtained if child could do the test

• 3 year interval only introduced in final year, so limited data

• Longitudinal study in children – children get older each year!

Strengths• This is the population not a sample!

• Unique and real picture of what children with bilateral CI can do

• Cases not biased

• Great example of collaborative work throughout UK

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