Cancer registration in Iceland Importance of the...

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Cancer registration in Iceland

Importance of the Nordic collaboration

Helgi Birgisson

Icelandic cancer registry

Conference on Nordic collaborations on health registries and quality registries

8th November 2017

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Population – 2014

Nordic countries 26 260 000

Iceland 327 000 (1.3%)

Nr of new cancer cases per year 2010-14

Nordic countries 155 000

Iceland 1 450 (0.9%)

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Cancer registration is standardised based on:

ICD-O

International classification of diseases for oncology

Enables comparisons and research

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http://www-dep.iarc.fr/nordcan.htm

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The clinical quality registers in Sweden has been

successfull leading to improved diagnostics and

treatment

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Kodeida et al Colorectal disease 2015

Proportion

with >12

lymph nodes

analysed

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The Icelandic Cancer Registry has together with

Landspítalinn University Hospital started the process

of implementing clinical registration comparable to the

Swedish INCA system

To date, mainly histopathological variables have been

registered in Iceland

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Clinical variables for colon- and rectal cancer in

Iceland were compared with SCRCR data from the

Uppsala-Örebro Region in Sweden for the calendar

year 2014

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Patients diagnosed with colonic cancer 2014

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Proportion with >12 lymphnodes analysed

colonic cancer 2014

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Proportion with >12 lymphnodes analysed

colonic cancer 2007-2014

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Proportion with >12 lymphnodes analysed

rectal cancer 2007-2014

Complications elective operations

Clavien Dindo >1

Colon Colon Colon Colon Rectum Rectum Rectum Rectum

2014 2014 2015 2015 2014 2014 2015 2015

IS UÖR IS UÖR IS UÖR IS UÖR

61 575 74 627 30 271 27 320

51%

27%

51%

28%

73%

38%

48%43%

0%

10%

20%

30%

40%

50%

60%

70%

80%

Complications elective operations - subtypes

2014 Colon 2015 Colon

n = 88 (%) n = 108 (%)

Infectious complications

Pneumonia 7 (8) 7 (6)

Sepsis 5 (6) 5 (5)

Urinary tract infection 13 (15) 18 (17)

Other 9 (10) 7 (6)

Cardiovascular complications

Myocardial infarct 1 (1) 3 (3)

Heart failure 2 (2) 4 (4)

Dysrythmia 7 (8) 9 (8)

Venous thrombosis 1 (1) 1 (1)

Other 3 (3) 0 (0)

Complications elective operations - subtypes

2014 Colon 2015 Colon

n = 88 (%) n = 108 (%)

Surgical complications

Wound infection 4 ( 5) 10 ( 9)

Kviðarholssýking 8 ( 9) 8 ( 7)

Wound dehiscens 1 ( 1) 2 ( 2)

Bleeding/anemia 26 (30) 21 (19)

Anastomotic insuff 2 ( 2) 9 ( 8)

Stoma complication 0 ( 0) 1 ( 1)

Other 2 ( 2) 1 ( 1)

Other complications

Urinary obstruction 9 (10) 8 ( 7)

Bowel paralysis 13 (15) 17 (16)

Other 7 ( 8) 8 ( 7)

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Form 30 day follow-up

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For countries implementing clinical quality registries, it

is important to have the possibility to compare and

bench-mark clinical data with established registers like

those in Sweden

Small differences in registration forms can make large

differences in the complication rates

A nordic or international standards/variable definitions

would facilitate comparison between different quality

registers

For Iceland the Nordic collaboration is highly important

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