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Krabbameinsskrá Krabbameinsfélags Íslands
Cancer registration in Iceland
Importance of the Nordic collaboration
Helgi Birgisson
Icelandic cancer registry
Conference on Nordic collaborations on health registries and quality registries
8th November 2017
Krabbameinsskrá Krabbameinsfélags Íslands
Population – 2014
Nordic countries 26 260 000
Iceland 327 000 (1.3%)
Nr of new cancer cases per year 2010-14
Nordic countries 155 000
Iceland 1 450 (0.9%)
Krabbameinsskrá Krabbameinsfélags Íslands
Cancer registration is standardised based on:
ICD-O
International classification of diseases for oncology
Enables comparisons and research
Krabbameinsskrá Krabbameinsfélags Íslands
http://www-dep.iarc.fr/nordcan.htm
Krabbameinsskrá Krabbameinsfélags Íslands
Krabbameinsskrá Krabbameinsfélags Íslands
Krabbameinsskrá Krabbameinsfélags Íslands
Krabbameinsskrá Krabbameinsfélags Íslands
Krabbameinsskrá Krabbameinsfélags Íslands
The clinical quality registers in Sweden has been
successfull leading to improved diagnostics and
treatment
Krabbameinsskrá Krabbameinsfélags Íslands
Kodeida et al Colorectal disease 2015
Proportion
with >12
lymph nodes
analysed
Krabbameinsskrá Krabbameinsfélags Íslands
The Icelandic Cancer Registry has together with
Landspítalinn University Hospital started the process
of implementing clinical registration comparable to the
Swedish INCA system
To date, mainly histopathological variables have been
registered in Iceland
Krabbameinsskrá Krabbameinsfélags Íslands
Clinical variables for colon- and rectal cancer in
Iceland were compared with SCRCR data from the
Uppsala-Örebro Region in Sweden for the calendar
year 2014
Krabbameinsskrá Krabbameinsfélags Íslands
Patients diagnosed with colonic cancer 2014
Krabbameinsskrá Krabbameinsfélags Íslands
Proportion with >12 lymphnodes analysed
colonic cancer 2014
Krabbameinsskrá Krabbameinsfélags Íslands
Proportion with >12 lymphnodes analysed
colonic cancer 2007-2014
Krabbameinsskrá Krabbameinsfélags Íslands
Proportion with >12 lymphnodes analysed
rectal cancer 2007-2014
Complications elective operations
Clavien Dindo >1
Colon Colon Colon Colon Rectum Rectum Rectum Rectum
2014 2014 2015 2015 2014 2014 2015 2015
IS UÖR IS UÖR IS UÖR IS UÖR
61 575 74 627 30 271 27 320
51%
27%
51%
28%
73%
38%
48%43%
0%
10%
20%
30%
40%
50%
60%
70%
80%
Complications elective operations - subtypes
2014 Colon 2015 Colon
n = 88 (%) n = 108 (%)
Infectious complications
Pneumonia 7 (8) 7 (6)
Sepsis 5 (6) 5 (5)
Urinary tract infection 13 (15) 18 (17)
Other 9 (10) 7 (6)
Cardiovascular complications
Myocardial infarct 1 (1) 3 (3)
Heart failure 2 (2) 4 (4)
Dysrythmia 7 (8) 9 (8)
Venous thrombosis 1 (1) 1 (1)
Other 3 (3) 0 (0)
Complications elective operations - subtypes
2014 Colon 2015 Colon
n = 88 (%) n = 108 (%)
Surgical complications
Wound infection 4 ( 5) 10 ( 9)
Kviðarholssýking 8 ( 9) 8 ( 7)
Wound dehiscens 1 ( 1) 2 ( 2)
Bleeding/anemia 26 (30) 21 (19)
Anastomotic insuff 2 ( 2) 9 ( 8)
Stoma complication 0 ( 0) 1 ( 1)
Other 2 ( 2) 1 ( 1)
Other complications
Urinary obstruction 9 (10) 8 ( 7)
Bowel paralysis 13 (15) 17 (16)
Other 7 ( 8) 8 ( 7)
Krabbameinsskrá Krabbameinsfélags Íslands
Form 30 day follow-up
Krabbameinsskrá Krabbameinsfélags Íslands
For countries implementing clinical quality registries, it
is important to have the possibility to compare and
bench-mark clinical data with established registers like
those in Sweden
Small differences in registration forms can make large
differences in the complication rates
A nordic or international standards/variable definitions
would facilitate comparison between different quality
registers
For Iceland the Nordic collaboration is highly important
?