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DEDICATED EXPERIENCED SUPPORT
s h a r e c a n c e r s u p p o r t . o r g
Free Services for Women Affected by
Breast, Ovarian, Uterine or Metastatic Breast Cancer
Helpline • Support GroupsEducation • Online Communities
LatinaSHARE (Servicios Gratis en Español)
844.ASK.SHARE844.275.7427
PROGRAM GUIDE MAY-JUNE 2020All Support Groups and Programming Now Available Online and/or by Phone
844.ASK.SHARE 1
A Note from our CEO:Dear Friend,
We are here to support you when you need us. SHARE provides empowering medical information and a community of understanding and knowledgeable
women who help you navigate the cancer experience. That is our reason for being!
As our new Program Guide goes to print, we are addressing the challenges of the Covid-19 pandemic. We know this situation is particularly stressful for those whose lives are affected by cancer, and you may have urgent questions. Please don’t hesitate to call our Helpline: 844.ASK.SHARE, and be sure to share our Help-line number with those who have been diagnosed (and their caregivers) who may be encouraged to learn of our services. Our volunteers and staff are ready to help!
As you will see in the coming pages, we are offering a full range of services that can be accessed online and by phone, so you can go to our programs from home during this period. From informative webinars, to exercise classes, to support groups, please explore whatever may be most helpful to you.
On an inspiring note, we are now welcoming those impacted by uterine/ endometrial cancers, as well as breast, metastatic and ovarian cancer to SHARE with a full range of services and events.
And now, I am excited to share our new program guide with you. We have dramatically updated the format, which we hope will make it easier for you to participate in our enriching and informative programs. This is your community and we invite you to be a part of everything we have to offer.
Please reach out to me at cevans@sharecancersupport.org to share your thoughts. We want our communications to be as easy-to-navigate and helpful for you as possible!
With warm regards,
Carol Evans
TABLE OF CONTENTSWelcome to SHARE ............................................................inside front cover
May Calendar ............................................................................................. 2-3
June Calendar ............................................................................................ 4-5
Introducing SHARE’s New Uterine/Endometrial Cancer Support Program!...... 6
When I Heard the Heart Shattering Words: “You Have Cancer.” .................. 7
Thank You to our Sponsors ............................................................................ 8
!Bienvenidos a LatinaSHARE! ........................................................................ 9
LatinaSHARE Calendario de mayo .........................................................10-11
LatinaSHARE Calendario de junio ..........................................................12-13
About SHARESHARE is a national nonprofit that supports, educates, and empowers women affected by breast, ovarian, uterine, or metastatic breast cancer, with a special focus on medically underserved communities. All of SHARE’s services are provided in both English and Spanish, including national Helplines in 20 languages, support groups, expert-led educational programs, clinical trial assistance, community outreach, online communities, corporate education, advocacy, caregiver support, and survivor-patient navigation. For more information please visit sharecancersupport.org.
SHARE on Social Media
SHARE日本語プログラムは現在、オンラインでのサポート・ミーティングを提供しています。通常のミーティングの時間に、スマホやコンピュータを使ってご参加いただくことが可能です。 詳細は、ヘルプライン347−220−1110にお問い合わせいただくか、https://sharejp.org/support-meetingをごらんください。
4th Fridays, 12:30-2pmMay 22 and June 26 2nd Fridays, 6-7:30pm May 8 and June 12
SHARE Japanese Program
@SHARECancerSupport
@SHARELatina
@SHAREAAAProgram
@SHARECancerSupport
@LatinaSHARE
@SHAREing
During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only.
Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org.
sharecancersupport.org latina.sharecancersupport.org
2 sharecancersupport.org 844.ASK.SHARE 3
Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)
SUNDAY
3
10
5pm Riverdale Breast Cancer Support Group
17
24
MONDAY
12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 3pm Ask a Gyn-Onc Anything Online4pm Telephone MBC Support Group6pm DCIS Support Group 8:30pm Telephone Breast Cancer Support Group
4
12:30pm MBC Support Group 4pm Telephone MBC Support Group
11
12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm Uterine Cancer Support Group 8:30pm Telephone Breast Cancer Support Group
18
4pm Telephone MBC Support Group
25
TUESDAY
5pm Breast and Ovarian Cancer Support Group for Women of African Descent6pm Caregiver Support Group
5
3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group
12
4pm Breast and Ovarian Cancer Support Group for Women of African Descent
19
3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group
26
WEDNESDAY
6pm Newly Diagnosed Ovarian Cancer Support Group 8pm Video MBC Support Group for Young Women
6
1pm Topic-Driven Round Table on Ovarian Cancer Online6pm Uterine Cancer Support Group for Women of African Descent
13
5pm Ongoing Ovarian Cancer Support Group
20
9:30am Bronx Breast Cancer Support Group 6pm Post-Treatment Breast Cancer Support Group 6pm Topic-Driven Round Table on DCIS Online
27
MAY 2020THURSDAY
6pm Telephone MBC Support Group
7
1:30pm Westchester Breast and Ovarian Cancer Support Group6pm Telephone MBC Support Group7pm Queens Breast Cancer Support Group
14
6pm Aromatase Inhibitors and Tamoxifen Support Group 6pm Telephone MBC Support Group7pm Lehigh Valley Ovarian Cancer Support Group
21
12pm New Treatment Options for Uterine Cancer Webinar6pm Telephone MBC Support Group
28
FRIDAY1
6pm Japanese Breast Cancer Support Group
8
15
12:30pm Japanese Breast Cancer Support Group
22
29
SATURDAY
10:30am Long Island Ovarian Cancer Support Group
2
9
16
23
30
NOTES
MAY 2020
5pm Riverdale Breast Cancer Support Group
31
Breast
Event Color Key
Uterine
Ovarian
Metatastic Multiple
DEDICATED EXPERIENCED SUPPORT
s h a r e c a n c e r s u p p o r t . o r g
Please note that all events and support groups will be held online or by telephone. Please note that all events and support groups will be held online or by telephone.
Please note that all listed times are in Eastern Daylight Time.
During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only. Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org. Exercise For Cancer Patients and Survivors with Moving for Life will take place via Zoom every Monday and Thursday in May and June from 12-1pm.Staten Island Ovarian Cancer Support Group scheduled for 5/20 will reconvene at a later time.
Please Note: All events are Eastern Daylight Time.
4 sharecancersupport.org 844.ASK.SHARE 5
Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427) Register at sharecancersupport.org or 844.ASK.SHARE (844.275.7427)
SUNDAY
7
5pm Riverdale Breast Cancer Support Group
14
21
5pm Riverdale Breast Cancer Support Group
28
MONDAY
12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm DCIS Support Group
8:30pm Telephone Breast Cancer Support Group
1
4pm Telephone MBC Support Group
8
12:30pm MBC Support Group 4pm Telephone MBC Support Group6pm Uterine Cancer Support Group 8:30pm Telephone Breast Cancer Support Group
15
4pm Telephone MBC Support Group
22
12:30pm MBC Support Group 2:15pm Exercise for Metastatic Health Online 4pm Telephone MBC Support Group6pm What’s the Latest in Breast Cancer Treatment? Webinar
29
TUESDAY
5pm Breast and Ovarian Cancer Support Group for Women of African Descent6pm Caregiver Support Group
2
3:30pm Brooklyn Breast Cancer Support Group 6pm Living with Mortality and Finding Meaning Webinar6pm Ongoing Breast Cancer Support Group
9
4pm Breast and Ovarian Cancer Support Group for Women of African Descent
16
2pm Research Update on MBC Webinar3:30pm Brooklyn Breast Cancer Support Group 6pm Ongoing Breast Cancer Support Group
23
30
WEDNESDAY
6pm Newly Diagnosed Ovarian Cancer Support Group 8pm Video MBC Support Group for Young Women
3
1pm Topic-Driven Round Table on Ovarian Cancer Online 6pm Uterine Cancer Support Group for Women of African Descent
10
5pm Ongoing Ovarian Cancer Support Group
17
9:30am Bronx Breast Cancer Support Group 6pm Post-Treatment Breast Cancer Support Group 6pm Topic-Driven Round Table on DCIS Online
24
JUNE 2020THURSDAY
6pm Telephone MBC Support Group
4
1:30pm Westchester Breast and Ovarian Cancer Support Group6pm Telephone MBC Support Group7pm Queens Breast Cancer Support Group
11
6pm Aromatase Inhibitors and Tamoxifen Support Group 6pm Telephone MBC Support Group7pm Lehigh Valley Ovarian Cancer Support Group
18
6pm Telephone MBC Support Group
25
FRIDAY5
6pm Japanese Breast Cancer Support Group
12
19
12:30pm Japanese Breast Cancer Support Group
26
SATURDAY
10:30am Long Island Ovarian Cancer Support Group
6
13
20
27
NOTES
JUNE 2020
DEDICATED EXPERIENCED SUPPORT
s h a r e c a n c e r s u p p o r t . o r g
Breast
Event Color Key
Uterine
Ovarian
Metatastic Multiple
Please note that all events and support groups will be held online or by telephone. Please note that all events and support groups will be held online or by telephone.
Please note that all listed times are in Eastern Daylight Time.
During the months of May and June, all SHARE educational programs and support groups will be held either online or via a toll-free conference line only. Participants will receive instructions on how to attend remote educational programs and support groups when registering. For more information, please call our Helpline at 844.ASK.SHARE or visit our website at sharecancersupport.org.
Exercise For Cancer Patients and Survivors with Moving for Life will take place via Zoom every Monday and Thursday in May and June from 12-1pm.Staten Island Ovarian Cancer Support Group scheduled for 6/17 will reconvene at a later time.
Please Note: All events are Eastern Daylight Time.
6 sharecancersupport.org
Our new program is kicking off with a Uterine Helpline, support groups and educational events, with additional programs to be added in the coming months. As a national nonprofit, SHARE has been supporting, educating, and empowering women affected by breast and ovarian cancer for over 44 years. We are excited to add uterine cancer to SHARE’s efforts.
Did You Know?• Uterine cancer includes two main types of
cancer:m Endometrial cancer occurs in the lining of
the uterus and accounts for over 90% of all uterine cancer cases. Due to this high percentage, the names “uterine cancer” and “endometrial cancer” are often used interchangeably.
m Uterine sarcoma occurs in the muscles of the uterus or other tissues that support the uterus; this cancer is more aggressive and harder to treat than endometrial cancer.
• Uterine cancer is the most common type of gynecologic cancer and the fourth most common cancer in the United States.
• Over 65,000 women are expected to be diagnosed with the disease this year.
• If diagnosed at an early stage, the 5-year survival rate for women with uterine cancer is 95%.
• Abnormal vaginal bleeding is the most common symptom of uterine cancer.
To learn more about the disease, please visit our website at: https://www.sharecancersupport.org
Support GroupsSupport groups are a low-pressure, empow-ering opportunity to exchange experiences, information, and kindness with women who understand what you’re going through—to hear and be heard. Research shows that women with a strong community of support have better health outcomes.
Uterine Cancer Support Group for Women of African Descent
Remote By Phone – Wednesday, 6-7:30pm ET May 13th & June 10th
Uterine Cancer Support GroupRemote By Phone – Monday, 6-7:30pm ET May 18th & June 15th
Uterine Cancer HelplineWomen may call the helpline after receiving a new diagnosis, recurrence or worrisome symptoms. Make better sense of what’s happening by talking about feelings, treat-ment plans, or whatever is on your mind with someone who understands because they’ve been through it too. SHARE’s Uterine Helpline is available weekdays, 10am-4pm and 5-9pm ET. Call 844.582.6005.
Volunteer with SHARE!If you are a uterine or endometrial cancer survivor and would enjoy giving back to women in need of support, please email nmoore@sharecancersupport.org or call 844.582.6005 for more information.
My cancer journey began in 2013. I was 33 years old, and had just gotten married six months prior to being
diagnosed with uterine cancer. Being diag-nosed with stage 1c uterine cancer changed my life and body forever.
I had experienced two months of heavy bleeding and severe lower back pain. One morning after waking up feeling seriously weak, I made the decision to go visit the emergency room. At the hospital the doctors were giving me the runaround, but the most devastating part was how dismissive they were to me. The ER doctors tried to tell me the heavy bleeding may be just a change in my menstrual cycle, stress, or something emotionally wrong that I may not be aware of. They told me that I should go home and take a couple of ibuprofens to help with the pain, drink some fluids and get plenty of rest. I fiercely explained to the ER doctors that the symptoms were completely out of the norm for me, that I am very attuned with my body, and that I wasn’t going home without tests being performed. I had been working as a licenced practicing nurse (LPN) for 12 years, so I was aware of my patient rights.
Forty-five minutes after I refused to go home, a medical technician performed a transvaginal ultrasound on me. I waited anx-iously for more than two hours for the doctors to give me the results. The transvaginal ultra-sound showed my uterus was enlarged. At that point I had not yet been diagnosed with uterine cancer, but at least now the doctors who had initially blown me off knew that there was something wrong.
The emergency room doctors wanted me to see a gynecologist as an out-patient, so I immediately made an appointment. After viewing the results of the transvaginal ultrasound the GYN performed a procedure named Dilation and Curettage (D&C) on me. A week later my results were in and I heard the heart shattering words from my doctor: “You have cancer.”
I didn’t hear anything else that was said afterwards. I was devastated; I cried every sin-gle day for four months. I was put on Megace
tablets 360 mg as treatment, which is a pro-gestogen sometimes used to treat endome-trial cancer. I experienced some terrible side effects from being on megace, such as 30 lbs of weight gain, always feeling cold - even in 90 degree weather, and developed an itchy burning rash all over my face. The rash on my face made me feel very insecure, which I had never been before.
After taking megace to treat endometrial cancer, the cancer went into remission. I visit-ed my doctor every three months for a biopsy, and during my 3rd biopsy it was revealed that the cancer had recurred. Once again I was devastated. At age 35 I had a hysterectomy, which meant that I would never be able to bear my own children.
My life has been forever changed due to cancer, but it hasn’t stopped me from living my happiest life. While I’m no longer working as a nurse, I am working in an area of women’s health. In 2018 after battling ovarian cancer I was introduced to SHARE, an organization that supports, educates and empowers when affected by breast, ovarian, metastatic breast cancer, and endometrial/uterine cancer. As a part of the uterine cancer program team I get to advocate and help support women affected by this disease, and say I survived uterine cancer!
Introducing SHARE’s New Uterine/ Endometrial Cancer Support Program!
When I Heard the Heart Shattering Words: “You Have Cancer.”
by Nefa-Tari Moore
BREAKING THE MYTHSMyth: Endometriosis is a risk factor for
endometrial/uterine cancer.
FACT: Endometriosis doesn’t carry an increased risk for endometrial cancer, despite the similar names.
Myth: A pap test will detect uterine cancer.
FACT: The pap test only detects cervical cancer and not any other gynecologic cancer.
844.ASK.SHARE 7
Nefa-Tari Moore
8 sharecancersupport.org 844.ASK.SHARE 9
Para los meses de mayo y junio, SHARE/LatinaSHARE ofrecerá a nuestros grupos de apoyo en persona solamente la opción de llamada de conferencia. Esto significa que, en lugar de reunirse en persona, tanto los participantes como los facilitadores pueden llamar a través de un número gratuito durante el horario de su grupo regular. Para obtener más información, llame a nuestra línea de ayuda al 844.ASK.SHARE
SHARE SPONSORSSHARE gratefully acknowledges major support
from the following corporations and foundations:
Aaron & Marion Gural FoundationAbbVie IncAdmore Air Conditioning Corp.AFK GroupAstraZenecaAvon Foundation for WomenBader Media GroupCelgeneCerami & Associates, Inc.Clovis Oncology Inc.Clune Construction CompanyDune Medical DevicesThe Durst OrganizationEisai, Inc.Empire Architectural Metal Corp.Empire Dragons NYCEvensonBest LLCFashion Targets Breast CancerFred Geller Electrical, Inc.Gardiner & TheobaldGartnerGenentech, Inc.Genomic Health, Inc.Godosky & Gentile, PCHenegan Construction Co., Inc.HOK Architects/5 Bryant ParkJaros Baum & BollesJones Lang LaSalle Americas, Inc.JRM Construction Management, LLCKnoll, Inc.Lee & Associates NYCLilken AssociatesEli Lilly and CompanyMacroGenicsMerckMorphotekMt. Sinai-St. Luke’sNew York City Association of Hotel
ConciergesNew York City Department of Health
and Mental HygieneNew York City Department for the AgingNew York Community TrustNew York State Department of Health
Newmark & Company Real EstateNovartisOffice ResourcesLaura & Isaac Perlmutter Cancer CenterPfizer Inc.Plaza Construction, LLCPrincipal GroupProCirc, LLCProtivitiPuma Biotechnology, Inc.Regional Cancer Care Associates,
Central Jersey DivisionSkadden, Arps, Slate, Meagher &
Flom, LLPSL Green Realty CorpSpeed RackSpring OB/GYN, PCSteelcaseSwim Across AmericaSyndax Pharmaceuticals, Inc.The Switzer GroupThe Craig B. Tate FoundationTeknion, LLCTesaroBeth C. Tortolani FoundationTurner Construction CompanyUBSUnity International GroupWB WoodWeill Cornell Breast CenterWebMDXyster Consulting Inc.
Calendario de Grupos de Apoyo para Mujeres con Cáncer de Seno, Cáncer de Ovario, y los Cuidadores
SHARELatina
@LatinaSHARE
CONTÁCTENOSlatina.sharecancersupport.org844.275.7427
LatinaSHAREUna nota de nuestra CEO:Queridos Amigos,
Estamos aquí para ayudar cuando nos necesite. SHARE brinda información médica enriquecedora y una comunidad de mujeres comprensivas y conocedoras que
ayudan a navegar la experiencia del cáncer. Esa es nuestra razón de ser!
A medida que se imprime nuestra nueva Guía del programa, entendemos los desafíos de la pandemia de Covid-19. Sabemos que esta situación es particularmente estresante para aquellos cuyas vidas se ven afectadas por el cáncer, y es posible que tengan preguntas urgentes. No dude en llamar a nuestra línea de ayuda: 844.ASK.SHARE, y asegúrese de compartir nuestro número de línea de ayuda con aquellos que han sido diagnosticados (y sus cuidadores) a quienes se puede animar a conocer nuestros servicios. ¡Nuestros voluntarios y personal están listos para ayudar!
Como verá en las páginas siguientes, ofrecemos una variedad de servicios a los que se puede acceder en línea y por teléfono, para que pueda acceder a nuestros programas desde su hogar durante este período. Desde seminarios web informativos hasta clases de ejercicios y grupos de apoyo, explore lo que sea más útil para usted.
En una nota inspiradora, ahora damos la bienvenida a las personas afectadas por los cánceres de útero / endometrio, así como el cáncer de mama, metastásico y de ovario a nuestro programa SHARE con una amplia variedad de servicios y eventos.
Y ahora, estoy emocionada de compartir nuestra nueva guía de programas con usted. Hemos actualizado drásticamente el formato, y esperamos que le sea más fácil participar en nuestros programas enriquecedores e informativos. Esta es tu comunidad y te invitamos a ser parte de todo lo que tenemos para ofrecer.
Porfavor comuníquese conmigo a cevans@sharecancersupport.org para compartir sus pensamientos. ¡Queremos que nuestras comunicaciones sean lo más fáciles de navegar y útiles para usted!
Un cordial saludo,
Carol Evans
8 sharecancersupport.org
10 sharecancersupport.org 844.ASK.SHARE 11
Registrarse en latina.sharecancersupport.org o 844.275.7427
DOMINGO
3
10
17
24
LUNES
4
11
11am El cuidado de su mascota durante su tratamiento
1pm Moving for Life
18
25
MARTES
5
10am Make the Road Brooklyn
2pm Orlando
12
19
2pm Orlando26
MIÉRCOLES
6
2:30pm La nutrición y Cáncer
13
20
2:30pm Cáncer en la Familia
2:30pm La enfermedad de Alzheimers
27
LatinaSHARE MAYO 2020Registrarse en latina.sharecancersupport.org o 844.275.7427
JUEVES
7
10am New York Presbyterian/Columbia
14
2:30pm El masaje oncológico
21
11am Los beneficios de los súper alimentos
28
VIERNES1
10am Newark
2:30pm Make The Road NY: Queens
8
12:30pm Metropolitan Hospital
2:30pm Moving for Life
15
2:30pm Linfedema y su sistema Inmunológico
4:30pm Moving for Life
22
29
SABADO2
2:30pm Conozca su cuerpo a través del automasaje
9
16
23
30
NOTAS
LatinaSHARE MAYO 2020
31
Porfavor tenga en cuenta: todos los eventos son horario de Hora del Este. Porfavor tenga en cuenta: todos los eventos son horario de Hora del Este
Event Color KeySettlement Health
Mt. Sinai Dubin
Newark Beth Israel
Metatastic/Caregiver
NYP/Columbia
Lincoln Medical
Westchester
Mt. Sinai Downtown
Metropolitan HospitalOrlando
Moving for Life
Breast/Ovarian
Brentwood
Mt. Sinai Morningside
Make The Road Brooklyn
Make The Road Queens
Porfavor tenga en cuenta: todos los eventos son horario de stroksHora del Este.
En los meses de mayo y junio, LatinaSHARE ofrecerá a sus grupos de cáncer de seno y ovario solamente la opción de llamada de conferencia para los programas educacio-nales. Todos podrán participar llamando al 866.210.1669 y marcar el código de participante: 705953
12 sharecancersupport.org 844.ASK.SHARE 13
Registrarse en latina.sharecancersupport.org o 844.275.7427
DOMINGO
7
14
21
28
LUNES1
8
15
22
29
MARTES2
1pm Servicios para cuidadores
2pm Orlando
9
16
2pm Orlando23
30
MIÉRCOLES3
2:30pm Neuropatía10
17
2:30pm Escritura Creative Para la Sobreviviente
2:30pm Escritura Creative Para la Sobreviviente
24
LatinaSHARE JUNIO 2020Registrarse en latina.sharecancersupport.org o 844.275.7427
JUEVES4
10am New York Presbyterian/Columbia
11
2:30pm Cáncer de Seno y la cirugía
18
10am New York Presbyterian/Columbia
11am Mt. Sinai Dubin
25
VIERNES5
2:30pm Make The Road NY: Queens
11am Pet therapy & Caring for your pet during treatment
12
12:30pm Violencia doméstica
19
2:30pm Neuropatía
4:30pm Moving for Life
26
SABADO6
2:30pm Brentwood13
20
27
NOTAS
LatinaSHARE JUNIO 2020
Event Color KeySettlement Health
Mt. Sinai Dubin
Newark Beth Israel
Metatastic/Caregiver
NYP/Columbia
Lincoln Medical
Westchester
Mt. Sinai Downtown
Metropolitan HospitalOrlando
Moving for Life
Breast/Ovarian
Brentwood
Mt. Sinai Morningside
Make The Road Brooklyn
Make The Road Queens
Tenga en cuenta que todos los eventos y grupos de apoyo se realizarán en línea o por teléfono. Tenga en cuenta que todos los eventos y grupos de apoyo se realizarán en línea o por teléfono.
Porfavor tenga en cuenta: todos los eventos son horario de stroksHora del Este.
En los meses de mayo y junio, LatinaSHARE ofrecerá a sus grupos de cáncer de seno y ovario solamente la opción de llamada de conferencia para los programas educacio-nales. Todos podrán participar llamando al 866.210.1669 y marcar el código de participante: 705953
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