2010 Hematopoietic and Lymphoid Neoplasm Project Registry Operations and the SEER Program

2010 Hematopoietic and Lymphoid Neoplasm Project

Registry Operations and the SEER

Program

HP-L Registry Operations Outline and Objectives:

Incorporating hematopoietic database and rules into registry operations

Casefinding Sequencing Case linkage and consolidation Death clearance

HP-L Registry Operations Integrating the Hemato DB and

casefinding: E-Path/CAS Disease Indices Pathology and lab report review Physician office Handling obstacles

HP-L Registry Operations Newly reportable histology terms

and codes 33 new codes and terms 3 newly reportable diseases

• Previously were /1 now /3

Case ascertainment Completeness

HP-L Registry Operations E-Path/CAS considerations:

Incorporate new codes into casefinding and screening algorithms• Refer to Tables D1a, D1b, D2

Use ICD-O-3 tables for upload Hemato DB text files can be uploaded

HP-L Registry Operations Disease Indices

ICD-O-3 code list ICD-9-CM code list ICD-10 code list Code list text files can be uploaded

• Refer to “Display Codes”

HP-L Registry Operations

HP-L Registry Operations

HP-L Registry Operations Path and lab report review

Identifying new terms and synonyms ICD-O-3 list Table of new terms (D1a and D1b) Newly reportable terms (D2) Electronic search tool

HP-L Registry Operations Clinic and physician office reports

Manual review of appointment logs• Apply path review methods

Electronic patient records• Apply E-Path methods• Incorporate reportable ICD-9-CM codes and

terms (Hemato DB)

HP-L Registry Operations Implementation delays:

Software upgrade/IT support delays Table of new WHO codes

• Table 1 SEER*Abs Generator

• http://seer.cancer.gov/seerabs/index.html

HP-L Registry Operations Case linkage and consolidation

Use new terms and codes Determination of new primaries/sequencing is

changed Incorporate new codes into matching

algorithms Implement and execute new edits (NAACCR

v12 metafile)• http://www.naaccr.org/StandardsandRegistry Operati

ons/VolumeIV.aspx

HP-L Registry Operations Case linkage and consolidation

Increase vigilance when reviewing various documents to determine reportability and sequencing

Document unusual/complex cases well May be an increase in follow-back

requests

HP-L Registry Operations Case consolidation example:

12/2009 diagnosis: primary cutaneous follicle center lymphoma

No ICD-O-3 code, hence coded to 9560 (NHL, NOS)

Returns to facility in 2010; codes 9597 Do Not change codes for <2010 Dx Do Not sequence as new primary

Danger of sequencing errors

HP-L Registry Operations Hemato DB and case consolidation:

Consider rules, codes - including suggested primary, multiple primary calculator

Review all documents for required data items, ie: Dx date, diagnostic confirmation, immuno-phenotyping

HP-L Registry Operations

HP-L Registry Operations Case consolidation and quality

improvement: Review site, histology, CSv2, SSFs, Rx Specific histology terms and codes Track changes and edits Notify CTR of any changes to previously

submitted cases

HP-L Registry Operations Conclusions

Incorporate new terms and codes Apply coding rules and database Become skilled with database & manual Increase visual editing

HP-L Registry Operations Death Clearance

ICD-10 list incorporated into CTR database includes updated codes

Follow-back requests may be revised for specific hematopoietic and lymphoid neoplasms

Little to no significant impact suspected

HP-L Registry Operations Questions?

This work was supported by Contract HHSN26120000024C between the National Cancer Institute and the Connecticut Department of Public Health.