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LIBERATING OUR DATAReducing the Burden of T1D through Access to Data and Interoperability
Howard Look, CEO
Diabetes Mind D-Data ExChangeNovember 20, 2014
Type 1 Diabetesis a highly burdensome disease
Reductionin Burden
Timenow
Time
Cure
now
Reductionin Burden
Time
Cure
Closed Loop
now
Reductionin Burden
Time
Cure
Closed Loop
Things we can do NOW
now
Reductionin Burden
Time
Cure
Closed Loop
Things we can do NOW
now
#WeAreNotWaiting
Reductionin Burden
So what can we do NOW?
Access to Data
Interoperability:Data
Devices
Increase choice.
Reduce the burden.
A thought experiment: Digital Cameras
Canon
Olympus
Kodak
JPEG
Access View
A thought experiment: Digital Cameras
Access View?!
Canon
Olympus
Kodak
Canon
Olympus
Kodak
Canon
Olympus
Kodak
Canon
Olympus
Kodak
A thought experiment: Digital Cameras
Your choice
Your choice
Access View
How do you access the data?
How do you view the data?
Your choice
Your choice
Access View
c X
No access to data meansYOU HAVE NO CHOICE.
Participants who upload their datamore than once per week:
Pump: 3%BGM: 2%CGM: 6%
Participants who NEVER upload data:
Pump: 60%BGM: 76%CGM: 52%
Source: T1D Exchange
No choice INCREASES the burden of managing type 1 diabetes.
No access to data meansYOU HAVE NO CHOICE.
T1D is my disease.And that is my data.
T1D is my disease.And that is my data.
And I should get to choose:
• What tools I want to use to see my data.
• Who else gets to see my data.• What other devices I want to
use to manage my T1D.
So what can you do NOW?
Release data access protocols for
EXISTING devices.
Expose RESTful APIs for cloud services.
Adopt standards like IEEE 11073.
Access to Data
Interoperability:Data
Devices
Access + Interoperability = Ecosystem
A Diabetes Application Ecosystem
T1D + Fitness Data Apps that make dosing easier
Research Appsand Interfaces
Apps for Remote Monitoring
Apps for Pregnant Moms with T1D
Apps for Teens
Apps for Clinical Decision Support
Apps for Kids
A Diabetes Application Ecosystem
App App
App App
App
App App
App
App
App
App
App
App
App
AppApp
Does the patient own their own health data?
Can patients donate and/or repurpose their data?
Does your cloud service have machine accessible (RESTful) APIs?
Does your device have available, documented protocols?
Do you support standards like IEEE 11073?
Are your data format/protocols complete and unambiguous?
Device Makers: Abbott Animas Asante Bayer
Dexcom Insulet
Lifescan Medtronic
Roche Tandem
Cloud Service Providers: Dexcom Diasend Glooko Livongo
Medtronic Telcare Tandem Tidepool
8 of 10 device makers: Yes!
8 of 8 diabetes cloud service providers: Yes!
Does the patient own their own health data?
Can patients donate and/or repurpose their data?
Old: “Any data submitted through [the service] shall be the property of [the service], and you hereby waive all right, title and interest to the submitted data.”
New: “As the submitter of Submitted Data you always have the right to, free of charge, access information regarding your Personal Data.”
Does your cloud service provide machine accessible APIs?
(e.g. REST APIs and Oauth)
3 providers: APIs under development, not yet released.
1 provider: REST API + Oauth in use!
2 providers: CSV download only.
6 of 10 device makers: Yes!
Does your device have available, documented protocols?
A Diabetes Application Ecosystem
App App
App App
App
App App
App
App
App
App
App
App
App
AppApp
Auto-immune attack on pancreas
Not a choice:
Burden of managing T1D
Access to data.Interoperability
of devices.
A choice:
REDUCE the burden of
managing T1D