Public Engagement & Science Education

Public Engagement & Science Education Barcelona, June 2015

Rosina Malagrida

Unit of Public Engagement on Health Research

|

VIH/sida: recerca pionera en participació comunitària

“Nothing about Us, Without Us” 1983: Els principis de Denver

Unitat de Difusió de la Recerca Biomèdica

1. Posicionar IrsiCaixa com a referent en recerca entorn al VIH/sida i malalties relacionades

2. Conscienciar a la societat, en especial als joves, de la importància de la recerca

biomèdica i de la necessitat de fomentar la prevenció

3. Alinear més la recerca amb les necessitats socials i incrementar la legitimitat de la

recerca

Avançar cap a un canvi cultural on el rol dels centres de recerca es percep com a entitats

que es troben al servei de la comunitat i on el coneixement es desenvolupa i es comparteix

amb les comunitats que el necessiten

Objectius

Comunicació + Divulgació + Recerca Responsable (RRI)

|

UDR-Bio: Unit of Public Engagement on Health Research

Educational programmes & dialogue events

Community Advisory Board & other collaborations

Science Communication

Community Based Participatory Research (enRRIch)

Responsible Research & Innovation (RRI)

| 19 Hubs disseminating RRI in Europe

Coordinator

Deputy coordinator

| INDEX

1. Why?

2. How?

3. Participation during all phases of the process

4. What about basic research?

5. Conclusions

| Relationship between science and society

SCIENCE AND INNOVATION

SYSTEM

| Outreach and resources: focusing on understanding


SYSTEM

|


SYSTEM

Outreach and resources: focusing on dialogue

| Innovation in science education

IBSE Collaborative

Learning

Formative and summative evaluation

+ Teacher training & Resources & Networking

Per divulgar la ciència i

la recerca del VIH/sida amb

l'objectiu de promoure la

prevencíó.

En col·laboració amb:

Obra Social “la Caixa”.

Per reduir el distanciament

entre la recerca biomèdica i

l'educació.


Obra Social “la Caixa” i

Fundació Amgen

A. IrsiCaixaDivulgació

Per millorar l’educació en

ciències a l’INS Apel·les.


Fundació Catalunya La Pedrera

i el Departament

d’Ensenyament.

B. Tàndem C. Xplore Health

Divulgació

|

1.100 visites/mes

A. IrsiCaixa Divulgació

Programa de divulgació i prevenció de la sida

1. Webs amb eines multimèdia 2. Jornades participatives de

divulgació i reflexió

3. Tallers d’experiments

al LABO CosmoCaixa

4. Sessions per a professors i per a la comunitat

1

3

1.543 estudiants 2.624 estudiants 11.500 visites

| B. Escoles Tàndem (2012-15)

ECBI Aprenentatge Col·laboratiu

Avaluació formativa

Innovació didàctica:

Desenvolupament d’activitats d’aula:

Reflexió sobre

aspectes ètics,

legals i socials

Recerca

actual

Interacció amb

diferents actors

socials

investigadors,

periodistes,

polítics…

1

4

| C. Xplore Health- Biomed

1

5

2. Tallers d’experiments 3. Sessionsper a professors

+ 150 professsors /curs

1. Recursos multimèdia amb

continguts de centres de recerca

5.000 visites /mes Algunes eines amb

més de 120.000 visites

5. Clústers per Espanya

+ de 10.000 participants/ curs

1

5

4. Recursos per a la reflexió

|

Ex. Patients being objects of studies and beneficiaries of research results

Decision making on R&I within experts

|

DEFICIT MODEL

| NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM


SYSTEM

?

| NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM


SYSTEM

|


SYSTEM INTO THE PROCESS OF R&D&I

SHARED RESPONSABILITY

NEED FOR A TRANSFORMATIVE CHANGE OF THE R&I SYSTEM

|

FROM PUBLIC

ENGAGEMENT TO

PUBLICLY ENGAGED

SCIENCE

| RRI: A dynamic and iterative process

Problem Research Implementation

| RRI: A dynamic and iterative process

Problem Research Implementation

Anticipation & reflection

Openness &

transparency

Diversity &

Inclusion

Responsiveness &

adaptative change

| Working definition (D1.1)

Science Education

Ethics

Gender Equality

Governance

Public Engagement

Open Access

| INDEX

1. Why?

2. How?



5. Conclusions

|


SYSTEM

Inclusive deliberation methods

|

List of quality criteria (D1.3)

1. Diversity and Inclusion

Criteria

Specification PA Outc.

Indicators/sub-criteria

Questions that invite thinking about indicators and criteria 2ac 3f

Engaging a variety of stakeholder groups

Wide range

Is there a wide range of stakeholders involved, such that there is a diversity of values and a diversity of types of knowledge/expertise (i.e., experiential knowledge, scientific knowledge) represented and/or generated? (Rowe and Frewer, 2000)

2ac

Relevant voices

Is there diversity in the stakeholders engaged such that all relevant voices are heard – silent as well as loud (i.e., stakeholder groups that might not feel immediately empowered to let their view know and stakeholder groups that do)?

2ac

Demographic diversity

Is there diversity within the stakeholder groups involved in terms of gender, ethnicity, class, age and other demographics?

2ac

Sufficient amount Are sufficiently many perspectives and participants included, such that eventual outcomes are robust? (ScienceWise, 2013)

2ac

Variety of means of stakeholder engagement

Early involvement Are relevant stakeholders involved from early stages of the R&I trajectory onwards?

2c

Engagement methods

Are different methods and techniques for engaging specific stakeholder groups in dialogue taken into consideration? (E.g. is terminology adjusted to interlocutors; is the method for deliberation – interviews, focus group etc. – tailored to the target stakeholder?)

1b

Commitment

Are all stakeholders committed to the practice throughout all stages of the R&I trajectory and do they feel empowered to challenge directions of research and innovation?

1b

Engagement of public(s)

Facilitating deliberation

Are there (new) deliberative forums on issues involving science and innovation, moving beyond engagement with stakeholders to include members of the wider public? (Stilgoe et al., 2013)

1a

Pertinent engagement

Are the right publics involved in the right phases of the R&I trajectory?

1a

Development of capabilities

Are different possibilities explored or activities undertaken to facilitate the development of capabilities of publics to contribute to a science-literate society (i.e., become scientific citizens)?

1a

Institutional diversity

Internal social differences

Is there attention and respect for group/social differences within the R&I practice (e.g., gender, race/ethnicity, class, sexual orientation, country of origin, and ability as well as cultural, political, religious, or other affiliations)?

2c

Minority recruitment strategies

Are there minority recruitment strategies in place to increase, within the practice itself, a balance in race/ethnicity, class, gender, sexual orientation, country of

2c

Criteria formulated per process requirement Subcriteria and questions

to think about it

Relation to policy agendas and outcomes

|

Diversity

&

Inclusion 1

|

Diversity and

Inclusion

Engaging a variety of

stakeholder groups

Variety of means of

stakeholder engagement

Engagement of publics

Attention for appropriate R&I models

Institutional diversity

|

Engaging a variety of

stakeholder groups

Wide range

Demographic diversity

Sufficient amount

Relevant voices

Is there a wide variety of

stakeholders involved, such that

there is a diversity of values and

a diversity of types of

knowledge/expertise?

Is there diversity in the

stakeholders engaged such

that all relevant voices are

heard – silent as well as loud?

Is there diversity within the

stakeholder groups involved in

terms of gender, ethnicity, class,

age and other demographics?

Are sufficiently many perspectives and

participants included, such that eventual

outcomes are robust (ScienceWise, 2013)?

|

Anticipation

&

Reflexion 2

| Anticipation

&

Reflexion

Definition of

the problem Uncertainties

Envisioning

plausible futures

(3ps) impact

Perceptions, needs,

interests, choices…

Techno-moral

scenarios

A research project with no reflection and anticipation would not be RRI

Policy & regulatory,

organisation

structures,

institutions

Ethical, legal and

social aspects

|

Openness

&

Transparency 3

| Openness and transparency


SYSTEM

Practice

details Results Deliberation and

policy making

Critical

scrutinity from

stakeholders

Appropiate communication and education per actor

Clear objectives

of the PE needed!

|

Responsiveness

&

Adaptive change 4

| Responsiveness

&

Adaptive change

Perspectives of

stk used in R&I (flexibility & evaluation)

Changes at stk Changes at

policy level

Structure to articulate and incorporate needs, ideas and concerns:

With

evaluation

strategies

| INDEX

1. Why?

2. How?



5. Conclusions

Com podem millorar l’R&I

Programa Definició del

projecte Execució projecte

Implementació

Participació durant tot el procés d’R+D+I

Comunicació + participació mitjançant deliberació colaborativa

Per una recerca més alineada amb els valors i expectatives de la societat

1 3 4 2

Responsible Research and Innovation Toolkit (2014-2016)

• Projecte europeu

• Coordinació: Obra Social “la Caixa”

• IrsiCaixa: Deputy coordinator i Coordinació del HUB a Espanya.

1





Implementació

3. Formació i

difusió a nivell

nacional i

internacional

1. Dinamització

comunitat

aprenentatge

2. Creació d’un T

oolkit o Manual

Propers actes de

difusió: 17 juny i

15 octubre,

Barcelona i Madrid


1




Implementació




Implementació


2 Research agendas




Implementació

Comitè Assessor Comunitari

• Composició: ONGs, Agència Salut

Pública, Dept. Salut…

• Assessorament en la definió de projectes

i durant l’execució

• Assessorament en la comunicació

• Mètodes i instruments per a la deliberació

(Fundat pel Dr. Coll)

3

Òrgan extern que facilita el diàleg amb la comunitat afectada pel VIH.





Implementació

Community Based Participatory Research

& Open Innovation 3





Implementació

Retorn social del nostre coneixement: debat social informat

Intervencions: Com han de ser?

Quina innovació volem?

Polítiques públiques


3 Evidence-based policy making

|

Debat online i en activitats presencials per analitzar què volen els ciutadans

de les nanotecnologies

•Enquestes: 7.000 respostes

•Taules rodones i “events” a 30 països

•Repositori amb 150 eines

•Campanya de comunicació a les xarxes socials i a The Guardian, El

Mundo, Ticonuno, Le courrier...

•Programa educatiu a 15 països

Monitorització opinió pública

en nanotecnologies a Europa

4

5

http://www.google.es/url?sa=i&rct=j&q=&esrc=s&source=images&cd=&cad=rja&uact=8&docid=VSHFA-1H-gCGZM&tbnid=o84NLXumbim6bM:&ved=0CAUQjRw&url=http://giantnortheast.com/quick-tip/&ei=lbt_U8uoDYmZ0QWajIGYCQ&bvm=bv.67720277,d.bGQ&psig=AFQjCNEuCuugMdj9Ny9GKrhQnslpuR-bDg&ust=1400966419317506

| Engagement with different degree of participation

Dialogue Consulting Involving Direct decision Collaborating

Exchange of views/ public feedback / engagement to take into account / partnering in each decision / public decides


| Diversity

&

Inclusion

Dialogue Consulting Involving Direct decision Collaborating

Exchange of views/ public feedback / engagement to take into account / partnering in each decision / public decides

Engagement with different degree of participation

Present in a RRI process


| INDEX

1. Why PE in RRI?

2. How PE?



5. Conclusions

| INDEX

1. Why PE in RRI?

2. How PE?



5. Conclusions

|

Active citizens of

knowledge society

|

FROM

DEFICIT TO

DEMOCRACY

|

FROM SCIENTISTS RESPONSABILITY TO

COLLECTIVE RESPONSABILITY

Science for and with Society

|

FROM

KNOWLDEGE

ECONOMY TO

KNOWLEDGE

DEMOCRACY

Orientating R&I policy towards societal challenges,

rather than economic growth objectives only

|

Rosina Malagrida

Deputy coordinator of RRI Tools

Head of Public Engagement on Health Research

IrsiCaixa, Hospital Germans Trias, Barcelona

[email protected]

www.irsicaixa.es/publicengagement

@RosinaMalagrida

@RRITools also on FB & Linkedin

And also:

Josep Carreras (IrsiCaixa)

Obra Social “la Caixa”

Ignasi López Verdaguer, Dani García, Guillermo Santamaría, Belén Perat, Paola Isetta & Eva Zuazua

mailto:[email protected]

http://www.irsicaixa.es/publicengagement

|


SYSTEM

Society contributing to

RRI!

We are responsible

actors!

We are part of the

R&I system!

We contribute to

make R&I more

ethically aceptable,

sustainable and

socially desirable!

Better Science and Innovation,

more socially aceptable, more

targetted to societal needs

| Motivations for PE & Sc. Education

Functional motives • R&I targeted towards societal needs

• More effective R&I processes

• Social acceptance of R&I outcomes (& also ethically aceptable and sustainable)

Political motives • Legitimation of R&I

• Empowerment of civil society

• Public accountability and responsiveness

Cultural motives • Cooperation and joint problem solving

• Integrated role of science in society

• Public appraisal and appreciation of R&I instead of public acceptance

(Engage 2020)

|

5

7

Promovem bons hàbits de salut

Intervencions divulgatives

per a ciutadans amb ciutadans

|

5

8

• Hem consultat més de 1000

estudiants quines temàtiques de salut

els preocupen més

• Recerca col·laborativa entorn a com

millorar la prevenció

Consultem els joves

Estrès i depressió: podem contribuir a

millorar el nostre benestar emocional?

VIH Sida: Intervenció als centres

educatius per a joves amb joves

Envelliment actiu, obesitat, vacunes...

Temàtica 1

Més de 1.000 estudiants escullen

la temàtica i

co-desenvolupen la

recerca i la

intervenció

Temàtica 2

Temàtica 3

Intervencions divulgatives amb ciutadans per a

ciutadans

|

5

9

Partim de les preocupacions

socials:

1. Projectes de recerca

col·laborativa

2. Intervencions (amb reflexions b

diferents actors socials)

3. Presentacions públiques dels

resultats

Pla d’acció intervencions divulgatives

Amb el suport de:

Science shop

(EnRRIch )

Co-disseny:

recursos

multimèdia

educatius

| INDEX

QUESTIONS

| Questions for discussion

Citizen Science where the public can only contribute with data is RRI?

Do we need to fulfill all Process Requirements?

Participation: dialogue & direct participation is RRI?

A process with no inclusive deliberation is RRI?

Should we change the name: Multiactor Engagement?