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Amy Holbert, LISW-CP, MSW Jena Martin, CCLS, CPLC Executive Director Director of Special Populations and Quality Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

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Page 1: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

Amy Holbert, LISW-CP, MSW Jena Martin, CCLS, CPLCExecutive Director Directorof Special Populations and Quality

Engaging Families:Ideas and Resources for Families of

Children with Special Healthcare Needs

Page 2: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

Objectives• Learner will recognize the importance of

involving families in a mutually beneficial partnership between themselves, their child, and healthcare professionals

• Participants will gain knowledge of the unique issues that affect families who have children with disabilities and special healthcare needs

• Learner will gain practical ideas for creating a positive partnership with parents of children who have special medical healthcare needs

Page 3: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

My Story

Page 4: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

Family ConnectionS O U T H C A R O L I N A

Page 5: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

Parent Support Connection:One-on-one support for parents/caregivers of a child with a disability by a trained Parent Navigator.

Healthcare Connection: Assistance with Medicaid, TEFRA, appeals and managed care information.

Education Connection:

Workshops, webinars, online

trainings

Training Connection: Provide training opportunities for family members, professionals and self advocates throughout the state.

Advocacy Connection: Self-advocacy training, leadership opportunities for parents and youth.

www.FamilyConnectionSC.org

Services We Provide

Page 6: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

www.FamilyConnectionSC.org

Why is Family Engagement Important?

Promotes:• Social, • Emotional,• Physical, • Academic • Occupational growth of children and youth

Leads to better health & post-school outcomes.

Page 7: Engaging Families: Ideas and Resources for Families of Children with Special Healthcare Needs

“us on behalf of them”…“us versus them”… “us with them”…

How would you describe attitudes about parental involvement and family engagement Yours?Your organization?Your families?