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Stroke Services BC
SSBC Stroke Rehabilitation
Collaborative:
Advancing the Patient Voice
Introductions
• Angela Wright
• Bachelors of
Business Admin –
Simon Fraser Univ.
• Accel. MBA –
Queen’s University
• Leadership and
Strategy – Cornell
• Katie White
• B.Sc – Queen’s
University
• B.Sc.PT – McGill
University
• M.Sc – University of
Alberta
2
Disclosure Slide
• No disclosures or conflicts of interest for today’s
presentation
3
SSBC Stroke Rehabilitation Collaborative
• SSBC
• Past successes
• Time for rehabilitation
• Desire to increase patient involvement and
leadership
4
Program Assumptions
• Patient-driven care and current system of care
are mutually exclusive
• Allow that discomfort
• Help people find new ways in existing structure
5
Patient Partner Assumptions
• People aren’t really listening
• Sparking reflection
• Sharing experiences
6
Program Source of Pride
• Embracing the role of patient partners
• Local teams, patient surveys, patient stories,
acting on suggestions
7
Patient Partner Source of Pride
• Shift in understanding
• Small changes = big differences for patients
8
Program Lesson Learned
• Have to be prepared to change course
• Be flexible and follow the solutions where they
need to go
9
Patient Partner Lesson Learned
• A terrible thing can lead to positive change
– For the system
– For me
• The best lessons may be in the crunchy bits
10
Program Ongoing Needs/Challenges
• Capturing and sustaining enthusiasm
• Partner outside health care system to improve
patient experience
11
Patient Partner Ongoing
Needs/Challenges
• Get the word out
• Patient voice is valued and valuable
12