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Patient Entrepreneurs
3rd September 2015
7 Steps to Recovery
David Festenstein – Expert Patient, Trainer/Coach and
Professional Speaker’s remarkable recovery from a Stroke
Introduction • Communication Specialist –Neuro-Linguistic Programming (NLP)
• Later trained as an NLP Coach
• Experienced Professional Speaker
• Applied this expertise to a severe health setback – a stroke-a Brain
Hemorrhage
Background • 2008 –Stroke paralysed whole right side of my body –unable to walk
• Kept a diary and journal to deal with the event and support recovery process
• Great interest amongst healthcare professionals about my approach
• Invited to present to the medical team
• Reframed my experience as “my stroke of luck”
• 7 distinct steps to my recovery
• Great potential to support other patients and health Professionals
• Cut cost and recovery time of a patient’s pathway?
New Business Opportunity? • Key note presentation at Herts and Beds Stroke and Cardiac Networks
• Training and Coaching sessions with MDT teams within different Networks
• Presentations at annual Network Conferences
• Developed a 7 Steps to Recovery workshop for various Networks
• Started “Modelling Programme” of excellent health-care professionals
Oxford University and Oxford Brookes • After dinner guest speaker at University of Oxford – Fundamentals of Patient
Care
• Patient Interviews at Oxford Brookes University and guest Lecture
• Idea of an app is born!
7 Steps to recovery app • To support Patient recovery from any form of severe health setback
• To support severe personal setback
• To use the app platform so I could be “the coach in their pocket”
• App consists of 28 brief videos of 1-4 minutes
• Also accessible from youtube for those without necessary technology
Potential of the app • To build a community of followers on facebook, twitter and instagram
• Transcripts of my various talks offered as an incentive to opt-in to an email
list
• Future video courses
• Book and coaching journal
• Joint venture partnerships
• Promotion of relevant services
Vision • To explore health setbacks beyond stroke
• To determine the DNA of generic great recovery
• To create a recovery community where patients and health professionals can
gain learning from one another
• How this model could be adapted for the prevention of severe health
setbacks in the first place!
• To build a sustainable business around this activity!
Please contact me! • For any relevant projects or programmes
• Follow me on twitter @recoveryguru
• For more about my story http://www.strokerecovery.co.uk
• Please call me on +44(0)1923 663275
• Or email me [email protected]
Seb Tucknott Founder
@sebtucknott
Background
Degree in Chemical Engineering
Managing Director of web design agency, Brightsite, for 9 years
Ulcerative Colitis patient for 7 years
What is Inflammatory Bowel Disease (IBD)?
The Current Problem
Our Solution
A knowledge sharing platform to educate,
support and guide those affected by Inflammatory Bowel Disease
to improve their quality of life
Achievements
Challenges
Opportunities
www.ibdrelief.com
@ibdrelief
Nick Hartshorne-Evans
“Just a normal guy with ideas!”
My life so far… • Positive person
• Live for the future
• Family man
• Entrepreneur
• Successful
• Interesting point - Something in common with Barrack Obama
My HF (heart failure) journey • Diagnosed with HF at 39
• Been through the process
• Met lots of inspirational people
People with HF and their challenges • The word “FAILURE”
• The debilitating symptoms
• They know it’s “The Cinderella Syndrome”
• The parity of care
• “Cancer patients get more than us”
• The unknown
One HF patient said to me
Why did I start the UK’s heart failure charity? • Think (seed sowing)
– Literature I read in hospital
– The word failure
– I have a HF nurse, things must be serious
• Germinate
– I wasn’t alone
– People had the same problems as me
– There was a need
Why did I start the UK’s heart failure charity? • Nurture (Community building)
– Identifying commonality
– Find out what individuals are good at
– Create a vision with the community
• Harvest (Activities and outcomes)
– Allow members to develop direction and strategy
– Walk the talk, demonstrate activity
– Communicate the community delivery and success
• This is a cycle of events – do them “Marvellously”
Get over or around the wall • Our mind set is “there is no word as CAN’T”
• Train, coach and develop the patient to get their own wins
• Understand the resources that are available to you (MDT)
• Develop relationships with the people that count
• Get some wins that they didn’t have before
Two stories • Story 1 - Social Media engagement
– Building awareness of HF
• Story 2 Enabling patients to catalyse a movement
– Christmas 2014 advent campaign
What we achieved in Story 1 • Closed facebook group – 550+ patients and carers 35+ per week
• HeartFailureAware facebook campaign page– 4000+ supporters, 90+ per week – Average post reach of 19,000 per week
– Best interaction - Heat Alert 65,000 reach, 6,000+ likes and 5,000 post clicks
– Cost £26
• Twitter 1500+ followers
– We own 6.8% of global heart failure traffic (Nov 14 – Feb 15)
– UK 7.9% of global heart failure traffic (Nov 14 – Feb 15)
• Website
– 4,500 unique visitors per month – 50,000 per year and growing
What we achieved in Story 2 • 25 individual patient videos for the Christmas advent
• 60,000+ video views over the campaign
• Cost £250 in advertising
• Equated to just under 20% of the total BHF facebook participation between
the dates of the 1st Dec – 25th Dec
The key achievement
“Both campaigns were conceived, delivered and executed by patients”
“Neither of the two projects needed or had outside support from media
agencies”
The Pumping Marvellous Foundation
“The Pumping Marvellous Foundation is a truly patient driven UK charity”
“Our “patient board” designs and delivers the strategy”
Takeaway
“My 12 year old daughter describes me as a Dreamer, Believer and Achiever”
Come and meet us
www.pumpingmarvellous.org www.facebook.com/heartfailureaware
@pumpinghearts
