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www.england.nhs.uk
Topic One : Transforming Care for
Children and Young People with Autism
(30 mins)
Sarah Jackson and David Gill, NHS England
and Pat Smith, Autism East Midlands
Topic Two : "The Assuring Transformation
Data System" – How to Upload Data and
Run Reports (45 mins)
Andy Tookey, NHS England and Judith Ellison
and Sarah Freeman, NHS Digital
27 July 2017
Learning Disabilities: Share and Learn Webinar
#improvingLD #TransformingCare
Transforming
Care
for Children
and Young
People with
Autism
www.england.nhs.uk
Transforming Care for people with a learning
disability, autism or both:
• Autism
• Autism Spectrum Disorder (ASD)
• Autistic Spectrum Condition (ASC)
• Classic Autism
• Kanner’s Autism
• Pervasive Developmental Disorder (PDD)
• Asperger Syndrome
• High Functioning Autism (HFA)
Autism is not:• A mental health issue
• A learning disability
www.england.nhs.uk
Children and young people with
autism falling through the gaps
• Asperger’s Syndrome/Higher Functioning Autism
• Lack of Education Health Care Plans
• Transition
• Eligibility criteria for CAMHS
• Get better at identifying people with autism
• More availability of low level autism support
• Better autism understanding and awareness
• Generic person centred services
• Availability of resources to meet autistic needs
So what do we need?
Autism and Accessing CAMHS
– A Cross Sector Partnership
ProjectPat Smith
Clinical Lead, Autism East Midlands
For the Autism Alliance
5
Background and Context
Commissioned by the Department of
Health
Idea initially discussed in the Autism
Programme Board
Cross Sector Approach to mirror the
approach with Dementia (but with
significantly lower levels of funding)
6
Deciding Priorities
Meeting of stakeholders in group
Group considered a number of priorities
and agreed two:
Access to CAMHS for autistic children and
young people
Social care assessor training project
7
The CAMHS Project
CAMHS project was championed by the Autism Alliance and by AEM:
Parents and young people were telling us that they were finding accessing support for emotional well being and mental health challenging
Awareness of the national focus on CAMHS but little mention of autism in this context
8
A Cross Sector Approach
Advocates (autistic people)
Autism Alliance
Children’s Mental Health Foundation
Clinicians
Local government Association
National Autistic Society
NHS England
Spectrum
9
What the Group has done:
Reviewed the CAMHS transformation plans in order to identify autism specific actions
Review of good practice and resources available to support to access CAMHS for autistic children and young people
Review of CAMHS Autism Training - Benefits and Standards
Surveyed policy, strategic guidance and codes of practice for children and young people on the autism spectrum.
10
What the Group has done:
Produced case studies of children, young
people and their families’ experience as well
as good practice from the above reports
Developed checklists for families and young
people
Identified good practice examples of
‘Reasonable adjustments’
Developed template letters and a leaflet for
CAMHS
11
Some of what we have learned:
It is possible to make simple reasonable
adjustments
Person Centred and informed options are
crucial
Supporting the whole family, including
siblings, is an essential component to
supporting the well being of the autistic child
Information, presented in an autism friendly
way is also essential
12
Outcomes – The Toolkit
13
www.england.nhs.uk
Thank you for listening
Any Questions?
Assuring Transformation Webinar
Andy Tookey – Data & Information Lead, Learning Disability Programme
July 2017
www.england.nhs.uk 16
AgendaItem Item
1. Welcome and introduction
2. The Assuring Transformation data collection
Reporting from the Clinical Audit Platform.
Confirmation of submissions.
3. Any further questions.
www.england.nhs.uk
Introduction
17
• Latest Assuring Transformation updates.
• Presenting the webex:
• Andy Tookey – Data & Information Lead, NHS England
• Judith Ellison – Data Collections Team, NHS Digital
• Sarah Freeman – Data Collections Team, NHS Digital
www.england.nhs.uk
Introduction to Assuring
Transformation
18
• The AT data collection has been managed
by NHS Digital since February 2015.
• Guidance & FAQ available at
http://content.digital.nhs.uk/assuringtransf
ormation
• Dedicated helpdesk at [email protected]
www.england.nhs.uk
The Clinical Audit Platform
19
• Data is collected on the Clinical Audit Platform (CAP).
• This is a LIVE system and should be updated as close
to real-time as possible.
• There is no ‘monthly submission’ – the CAP should be
kept up-to-date; as a minimum the system must be
updated once per month ahead of the data extract for
publication.
• If no activity has taken place at any time in a calendar
month, commissioners must confirm this on the CAP.
www.england.nhs.uk
In-Scope Definition
20
The collection will consider in-patients receiving treatment / care in a facility registered by the Care Quality Commission as a hospital operated by either an NHS or independent sector provider. The facility will provide mental or behavioural healthcare in England. Record level returns will reflect only in-patients or individuals on leave with a bed held vacant for them.
The individual will have 'a bed' normally designated for the treatment / care of people with a learning disability or will have 'a bed' designated for mental illness treatment / care and will be diagnosed or understood to have a learning disability and / or autistic spectrum disorder.
This should include patients of:
• Any age.
• Any level of security (general/low/medium/high).
• Any status under the Mental Health Act (informal or detained).
People not included:
• Patients in accommodation not registered with the CQC as hospital beds.
• Patients in beds for physical health care.
• Patients who do not have either learning disabilities or autism.
For our purpose whether or not a person is recorded as having a primary diagnosis of LD is not relevant, and should not be used as a criterion for inclusion in this data collection. If a person is in specialist hospital bed (either MH or LD) and that person has a Learning Disability or Autism, then that person should be included in the Assuring Transformation data return.
www.england.nhs.uk
Data Quality Issues
21
• The ‘greyed-out’ cells on the CAP cannot be easily corrected if the data is wrong – any corrections can only be carried out by NHS Digital.
• Correcting these fields can create duplicate records in the CAP.
• If you require NHS Digital to change one of these fields, please speak with them first. NEVER send identifiable data from a non-secure e-mail account – always use nhs.net and ensure ALL recipients are also on nhs.net.
Q1 NHS Number Q5 Submitting
Commissioner
Q11a Start date Q11b Date of the first
admission to any
hospital
Q14c Postcode of site Q17a What is the ward
security level?
Q17b What is the ward
type?
Q40 Discharge date
(hospital provider spell)
or Person death date
www.england.nhs.uk
Other Information
22
• To register a CAP data submitter, the commissioner’s
Caldicott Guardian must sign and submit a registration form
(available from the NHS Digital website).
• The legal basis for the flow of confidential data for this
collection is a Section 251 approval, reference CAG 8-02(a-
c) 2014.
• NHS Digital publishes data and analysis each month,
approximately 4 weeks after the end of the previous month.
This includes a list of commissioners which did not submit
information at all during the reporting month.
www.england.nhs.uk
CAP Reporting Functionality
23
• Registered data submitters can
run/download a report of their patients (all
or current) from the CAP.
• Live demo of the system (using the UAT
environment).
• Any questions?
www.england.nhs.uk
Submission Confirmation for
Multiple Submitters
24
1. Log into CAP. Your email address will have been ‘associated’ with all the commissioners you have registered to submit data for, which will give you access to all the patient records commissioned by all commissioners you have been associated with.
2. Amend all the patient records where a change has occurred within the reporting period/month by using the ‘File submission dashboard’ and uploading an amended csv file or by manually using the ‘Add / Search for a patient record’ option.
3. Complete the above two steps every time you need to amend any patient record throughout the reporting period/month.
4. At the end of the month, select the ‘Submission Confirmation’ option from the AT Home screen. This will confirm all the current patient records on the system for all reporting commissioners as correct and will therefore confirm a null submission for the commissioners who did not have any patient records updated.
www.england.nhs.uk
Helpdesk Support
25
• Phone
• Newsletters
Our dedicated team is available to answer any queries you may have.
You can contact us by e-mail or give us a call. Help line hours are from 9am to 4pm
Email: [email protected]
Sarah Freeman: 0113 866 5646 Judith Ellison: 0113 254 7283
Zoe Draper: 0113 254 7029 Imran Basser: 0113 3974172
We also value any feedback you may have about any aspect of the collection.
www.england.nhs.uk
Thank you for listening
Any Questions?
Please join us on the last Thursday of every month 12:30 to 1:30 pmIf you would like
to be added to the invitation list please email: [email protected]
Calling all
Transformation Care Partnerships
Are you missing out on the
Universal Improvement offer?
The High Impact Actions can help TCPs make the biggest strides forward, in
supporting children, young people and adults to have a home within their
community, be able to develop and maintain relationships, and get the support
they need to live healthy, safe and rewarding lives – thereby reducing the
numbers of people in inpatient settings. - High impact actions for service improvement and delivery by Transforming Care Partnerships
High Impact Actions
Yammer
We have developed a Community of Interest on Yammer providing a networks
across the whole health and social care system supporting the exchange of
information, ideas and ability to ask the community for advice or support. There
are various groups covering topics including the Share & Learn webinars; HIAs,
MOOC and many others
https://www.yammer.com/improvementld/#/home
The Massive Open Online Course or MOOC - An online course of 8 modules,
delivered one a month, with a mix of videos, presentations, quizzes and self
directed learning. - link to register/join
Over 572 colleagues have
Accessed the MOOC and more than
2,500 colleagues have accessed
the webinars
MOOC
#CareTransformed:How transforming care is making a difference –
a range of case studies available here.
www.england.nhs.uk
Future Share & Learn Webinars
28
Helping people with a learning disability to give feedback
Date: 31 August 2017 (12.30-1.30pm)
Ruth Hudson, Insight Specialist, Joe Penrose, Insight and Feedback Officer and Katie Matthews, Aaron Oxford and Thomas Chalk, Learning Disability Network Managers, NHS England
Topic One: Introduction to the evaluation of Building the Right Support
Date: 28 September 2017 (12.30-1.30pm)
Fraser Battye, NHS Midlands and Lancashire CSU
Topic Two: Children & Young People – topic to be confirmed
Phil Brayshaw, Service Model Lead (Children & Young People), NHS England
