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The World Dementia Council’sGlobal Vision on Dementia
Jeremy Hughes CBEUK Member, World Dementia Council
Alzheimer Scotland ConferenceJune 2016
• Dementia is one of the most challenging public health challenges
• The European Union countries are at the forefront of the aging of the population –the primary risk factor for the diseases causing dementia
• There is a global collaboration and synergy between:– WHO – bringing together Member States and
supporting the Global Dementia Observatory– The World Dementia Council - providing a
complementary role of bringing together individuals from all stakeholders groups in order to support, amplify and coordinate a global response
The Global Dementia Challenge
• In Dec 2013, UK hosted a G8 Dementia Summit
• Goal was to bring together experts across the world to start a global conversation about solutions for dementia
• The Summit resulted in a declaration that set out an international response to dementia with the aim of identifying a cure or a disease modifying therapy by 2025
The World Dementia Council
"If we are to beat dementia, we must also work globally, with nations, business and scientists from all over the world working together as we did with cancer, and with HIV and AIDS. This is going to be a bigger and bigger issue; the key is to keep pushing.”David Cameron, December 11, 2013 (BBC News)
• In February 2014, the UK Prime Minister appointed Dr Dennis Gillings as the World Dementia Envoy & he established the World Dementia Council (WDC)
• The WDC consists of a wide range of experts from research, academia, industry, the NGO sector, people living with dementia & governments
The World Dementia Council
World Dementia Council Full Members, February 2016
• Following the WHO First Ministerial conference a broad consensus was reached amongst key global stakeholders & the WDC, on a global model to pursue with the challenge of dementia
• A truly complementarity approach:Establishment of the WHO Global Dementia
ObservatoryGlobal Teams from the WDC that are
independent of governments & any one organisation or sector
No formal governance between these two pillars but a collaborative approach to optimize global impact
G7 to Global – The Continuity Model
• The World Dementia Council re-formed and reconstituted to include a more global membership
• February 2016, in line with this independence– new members drawn from a range of sectors &
organisations across the wider dementia community
– the WDC Chair – Yves Joanette & Vice Chair – Raj Long were appointed by its members
• UK Model Evolution– From a single Envoy/WDC Chair role by Dr
Dennis Gillings to a UK Dementia Envoy distinct from WDC Chair
– Current UK Dementia Envoy is David Mayhew
The Re-formed World Dementia Council
1. Innovative and global finance models2. Integrated drug development3. Open science collaborative global research
including the use of big data4. Ensuring adequate care for people living
with dementia and their carers in high, middle and low-income countries
5. Facilitating the identification and the dissemination of risk reduction strategies
Integrating cross-cutting themes Women and dementia Awareness Stigma Inequalities
Priorities for the Council’s Actions
8
In March 2015, the WDC helped to shape the UK-led work to establish the Dementia Discovery Fund – a ground breaking public/private venture capital fund which aims to finance pre-clinical research to find new drugs to treat dementia. The initial fund is just over $100M & it aims to raise a further $100M during 2016
Example – Finance Models
• In Nov 2014, Raj Long convened 11 regulators from 10 jurisdictions to work collaboratively on dementia & they have collectively identified 5 work streams
• In July 2015, an independent report was published on the dementia drug development pathway ‘Finding the path for a cure for dementia setting out key actions for change which the international community needs to implement to improve & speed up the dementia drug pathway.
Example – Integrated Drug Development
• The WDC has provided input into & helped shape a number of international collaborative projects that are attempting to enable greater & more effective data sharing. Examples include:• ‘The development of good practices
on data governance’ resulting in a report from the OECD & Oxford Internet Institute published in March 2015
• The Canadian Consortium of Neurodegeneration in Ageing (CCNA) & the Dementia Platform UK (DPUK) collaboration to create an integrated system to share & analyse large scale & complex cohort based datasets
Example – Research,Open Science and Big Data
• The WDC worked closely with OECD & WHO on a framework to help address the needs of people with dementia & their carers, covering prevention, diagnosis, post diagnosis care & support
• The framework was included in the OECD report “Addressing Dementia: the OECD response”
Example – Care
• The World Dementia Council is now ready to move forward with all the Member States of WHO
• Five Global Teams made up of Council Members and other experts will facilitate moving forward on all five priorities and cross-cutting themes
• With the WHO and the Member states, innovative actions will be advocated, and supported
• The European Union will be an important ally in order to ensure that fewer individuals live with dementia, and that those living with dementia are living well
The World Dementia CouncilMoving Forward
