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Partnering with Consumers to improve Dementia – Related Health Literacy
Jaklina Michael, Dianne Goeman, Jordan King, Huy Luu, Claire Emmanuel, Susan Koch
Jaklina MichaelManager, DiversityNational Dementia Conference21st & 22nd March 2016Brisbane, Queensland
Diversity at RDNSAbout the Talking Book
Practical demonstration
Diversity at RDNS
• More than 2 million to more than 45,000 clients
• 81% age 56 + & 63% age 70+• High % women & lone-person household
• High % disability
• High % pension income source
• 0.7% Aboriginal
• 60% born overseas
• 159 countries & 117 languages
© RDNS Ltd. 20134
Diversity Conceptual Model - Article
Michael J. Diversity Conceptual Model for aged care:
Person-centred, difference-oriented and connective
with a focus on benefit, disadvantage and equity.
Australasian Journal on Ageing 2016 (In press).
Diversity at RDNSAbout the Talking BookPractical demonstration
Aim
To develop a Vietnamese Dementia talking-book to
address low health literacy in older people of
Vietnamese background living with dementia
Design
This qualitative study utilised co-design and
participatory action research to develop and refine the
talking book in consultation with expert stakeholders.
Data collection
There were two main phases in the development of the
talking book:
• Phase 1 - Selection and assessment of the English
content and grade reading level
• Phase 2 - Evaluation of the finished product
Participants: Design of bookParticipated in the co-design and refinement of the talking
book:
• Phase 1 - Fifty-nine members of the Vietnamese
community, 11 stakeholders from community health
services and ethnic agencies and consumer advocacy
groups
• Phase 2 – Twenty-two members of the Vietnamese
community
Setting
Vietnamese community planned activity groups in the
western, northern and southern suburbs of Melbourne,
Australia
Phase 1 Results:Co-design study
• Process : Partnering with consumers and expert
stakeholders to identify consumer need
• Selection of content and appropriate language level
• Construction of the book
• Measuring acceptability of the talking book
• Modification based on feedback
• Production and dissemination
Phase 1 Results….
‘The terminology you have used is the best way to explain Dementia’.
(Focus group participant 1)
‘I am so happy it is in Vietnamese and English, it means l can share the information with my family who do not understand Vietnamese’.
(Focus group participant 20)
Phase 2 Results:Evaluation study of product
Evaluation of the final talking book product
revealed widespread consensus that the book
enhanced the knowledge of members of the
Vietnamese community in regard to understanding
dementia and navigation and accessing of available
services.
Phase 2 Results……
‘... this is a very good one. People who don't
understand in writing, they can understand in listen’
(Participant 1: male)
‘The voice is very clear and he pronounces the words
clearly, so it’s good. It’s a good choice of the person
reading it’
(Focus Group 3: male)
Diversity at RDNSAbout the Talking BookPractical demonstration
http://www.rdns.com.au/public/TalkingBooks/VietnameseDementia/VietnameseDementia.html
