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Robyn Sharman and Valda Murray - Let's Yarn With Aboriginal Health Workers and Community About Cancer Prevention, Early Diagnosis and Better Outcomes
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“Let’s Yarn with the Aboriginal community of
Albury/Wodonga about cancer prevention,
early diagnosis and better outcomes”
Robyn Sharman & Valda Murray
Cross Border Collaboration
BORDER CANCER NETWORK
RIVERINA CANCER NETWORK
Source: ABS CDATA2001, Greater Southern Area Health Service, Population Health, May 2006
Greater Southern Area Health ServiceCancer Networks
SOUTHERN CANCER NETWORK
WEST WYALONG
BOMBALA
EDEN
PAMBULA
MERIMBULA
BEGA
NAROOMA
BODALLA
TUROSS HEAD
MORUYA
BATEMANS BAY
JUNEE
GUNDAGAI
BATLOW
TUMUT
COOTAMUNDRA
COOLAMON
TEMORA
LEETON
NARRANDERA
GOULBURN
TUMBARUMBA
HOLBROOK
BRAIDWOOD
QUEANBEYAN
BUNGENDORE
BOOROWA
HARDEN
YOUNG
WAGGA WAGGALOCKHART
HENTYBARHAM
URANA
FINLEY
JERILDERIE
DENILIQUIN
BERRIGAN
TOCUMWAL
ALBURY
HOWLONGCOROWA
DELEGATE
COOMA
GRIFFITH
YASS
CROOKWELL
JINDABYNE
HAY
HILLSTON
Hume Regional Integrated Cancer
Service (Hume RICS)
Cancer incidence for Indigenous
Australians
Cancer is
a chronic
disease2nd largest
cause of
death in
Indigenous
Australians
Incidence rate
of cancer is
higher for
Indigenous
people
Most cancers
in Indigenous
people with a
high incidence,
are
preventable
Indigenous
Australians
have poorer
outcomes after
a cancer
diagnosis
“Lets Yarn” with the Aboriginal
Community in Albury/Wodonga
June 2012 – May 2014
Led by Lung Foundation Australia
in collaboration with Hume RICS
June 2012 - May 2014
Project aims
To raise awareness and understanding of
lung cancer in the Aboriginal community
• To provide education about cancer & treatments
• To develop the “Key Messages” ……risks, symptoms & actions
• To provide information about local cancer services
• To develop Aboriginal specific cancer resources
• To provide information on how to access supportive care
Advisory Steering Group
“Furthering Aboriginal Health & Cancer Services”
Chaired by an Aboriginal Health Worker
o 8 AHW – employed by various Aboriginal services across Albury Wodonga
o 2 Aboriginal community members
o 7 members from local cancer/health support services
Community Engagement
• Feel the passion
• Identify a key person
• Be persistent – keep trying
• Integrity and honesty
Developed “Key Messages”
RisksSmoking
Passive smoking
Asbestos exposure
Symptoms
Persistent cough
Coughing up blood
Feeling tired
Change in voice
Unexplained weight loss
Shortness of breath
ActionsGo to the Doctor
Ask advice from the
Aboriginal Health Worker
Resources Developed
Archie Roach
Surviving Lung
Cancer
Merles story
Surviving Lung Cancer
‘
Key messages
Symptoms & risks
Available on You tube, Lung Foundation or Hume RICS websites
Aboriginal cancer awareness pin
Lung cancer: signs and symptoms
Education Sessions
“Walk thru” treatment sites
• Radiation Oncology -
• Day Chemotherapy Unit
• Palliative Care Unit
• Palliative care (PEPA) training
Evaluation:
Learning
more about
cancer myths
was great
Bring on more
education
about cancer
and supportive
care
Education was
needed to
empower the
workers to get the
information out
Sessions on
palliative
care would
be great
Good to
understand how
the treatment is
given and to
meet staff
Aboriginal Health Worker feedback
“
Lets Yarn” Lung Cancer project
completed May 2014
However, the work with the AHWs
continues in the Hume RICS region
Working with Aboriginal Health
Workers
June 2013 - December 2014 :
“Yarning along the Murray” funded by Cancer Institute NSW
Aim: To increase the knowledge about cancer for Aboriginal Health
Workers
“Yarning along the Murray”
Aboriginal Project Officer appointed 0.6 FTE
Project Coordinator 0.2 FTE
Guided by the established steering group
Topics
• Breast screening and assessment
• Radiation
• Chemotherapy
• Palliative care
Cancer & treatment theory
sessions
Breast screening
Cancer treatment ..
Radiation &
chemotherapy
An understanding of
palliative care
Aboriginal Health Workers
What is cancer?
Palliative Care Sessions
4 PEPA sessions (palliative care theory) conducted
80 participants attended from regional /rural areas of NSW
Placements
Radiation :
Planning session
Discussion with oncologist
Treatment session
Side effects with nurse
Chemotherapy :
Pt education with nurse
Explanation of treatment regimes
Meeting with pts and listening to their stories
Placements cont……….
Breast screening and assessment
Attending mammograms to develop an understanding of process
Attendance at assessment days … involved investigation of
suspicious findings … biopsies, ultrasounds & sessions with
nurse
Palliative care
Conducted at Mercy Health, Albury over 2 days
Developed an understanding of services /supports available
Attended education sessions on palliative care
Attended community visits with nurses
Placement Challenges
• AHW scheduled for placements but failed to attend
• Pre and post evaluations difficult to collect
• Staff at units often too busy to support placements
Addressing the Challenges Pre placement evaluations sent electronically & returned before
placement commences
Undertaking theory sessions prior to placement
Provide a mentor to support, orientate & assist workers during placement
Collect placement evaluations immediately following placement
Ensure each AHW is committed to the placement
Partnership with TAFE NSW (AHW Cert 1V course)
Evaluations
Pre placement evaluations – to determine AHW understanding of
placement site
Post evaluation survey to determine if program has met the aims
Feedback
Treatment staff - “not only was I able to help with their understanding of the
R/T process, but I had many of my own questions answered about their
culture” & chemotherapy nurse “having a mentor worked much better as
we do not have the time to give to the workers “
AHWs – All participants felt the placements were very rewarding and
increased their knowledge, but noted some staff at sites required cultural
awareness training.
Cultural Awareness Training Provided to private oncology practices in Albury/Wodonga
WHY private practices ????
Training not mandated for private practices
Practice questionaires not asking the question
AHW identified lack of cultural awareness during placements
Conducted over 3 subsequent sessions
20 staff attended (radiation therapists, reception, nursing)
Feedback
“I honestly had very little understanding of our nation’s
Indigenous history. This has truly opened my eyes & given
me an appreciation for what they have and are still trying to
overcome”
New Resource
Educational DVD for Aboriginal patients and community
Sustainability
Aboriginal Health Workers have developed :
The skills/knowledge/confidence to discuss treatment and care
The skills to conduct training and assessment
Understanding of the principles of palliative care
Knowledge of cancer treatments
The Strengthened networks with cancer services for improved
collaboration
In progress
Placements are still progressing
Partnership established with TAFE NSW (Cert 1V AHW course)
Metro Visit - 12 AHW will visit major metro facilities
Steering group continues to be active and supportive
Development of a service directory for Aboriginal and mainstream
health professionals
Partnerships
Aboriginal Health Service
Mungabareena Aboriginal Corporation
Viney Morgan Aboriginal Medical
Service
Murrumbidgee Local Health District
Gateway Community Health
Thank You
Robyn Sharman and Valda Murray