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CAN SOCIAL MEDIA CHANGE HEALTH
BEHAVIOR?
IRIS THIELE ISIP TAN MD, MSC Professor, UP College of MedicineChief, UP Medical Informatics UnitDirector, UP Manila Interactive Learning Center@endocrine_witch
I have nothing to disclose
www.fb.com/endocrinewitch
www.dokbru.endocrine-witch.net
POTENTIAL
EVIDENCE
STRATEGYFUTURE
Patients are increasingly using online social networks to connect with other patients and healthcare professionals
PEER-TO-PEER HEALTHCARE
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
CAN SOCIAL MEDIA CHANGE HEALTH BEHAVIOR?Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery
J Med Internet Res 2016;18(1):e24
People can participate as part of their usual social media routine
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Social media facilitates self-help behaviorLogan A. Community hypertension programs in the age of mobile technology & social media. Am J Hypertension 2014;27(8): 1033-1035
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
SOCIAL INFLUENCE
How the presence, actions or expectations of others influence the way one behaves
SOCIAL ENGAGEMENT & ATTACHMENT
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
How social network structure affects access to resources
SOCIAL RECOMMENDATIONS
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
SOCIAL CONTAGION
How health behaviours may be ‘transmitted’ by ‘person-to-person spread’ across social networks Berkman L, Glass T. (2000) Social integration,
social networks, social support and health
SOCIAL SUPPORT
Emotional, functional and informational assistance influences health
Berkman L, Glass T. (2000) Social integration, social networks, social support and health
POTENTIAL
EVIDENCE
STRATEGYFUTURE
Social media in communicating health information: an analysis of Facebook groups related to hypertensionAl Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265. DOI: http://dx.doi.org/10.5888/ pcd12.140265.
187 FB groups 8,966 Facebook users
1 to 2,161 individuals/group
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
FACEBOOK GROUPS ON HYPERTENSION
Objective
Main topic
No. of members
Geographic boundaries
Level of activity
Type of user-generated content on wall
Likes & comments
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
PRIMARY OBJECTIVE
Awareness creation 60%Providing support to patients and caregivers 11%Sharing disease experiences and life stories 11%Fund raising for relevant organisations 8%Product or service promotion 4%
THEME OF TOP-DISPLAYED RECENT WALL POSTAl Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
Product or service promotion 21%
Sharing hypertension awareness-related information 20%
Sharing external web address related to health 13%
Query to members for particular information 10%
Despite their small number and low activity level, the hypertension-related Facebook groups provide a sounding board for those affected …
Al Mamun M, Ibrahim HM, Turin TC. Prev Chronic Dis 2015;12:140265.
Any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the response by a clinician or anyone else
PATIENT-REPORTED OUTCOME
Kear et al. J Am Soc Hypertens 2015;9(9):725–734
https://www.patientslikeme.com/
https://www.openresearchexchange.com/
Kear et al. J Am Soc Hypertens 2015;9(9):725–734
Develop a patient-reported hypertension instrument using PRO data that incorporate patients’ experiences and feedback
Measures attitudes, lifestyle behaviors, adherence, and barriers to hypertension management
SOCIAL MEDIA VS
SOCIAL NETWORK
Social media is much broader than the concept of social networking sites, and also includes blogs, discussion boards, and wikis, among others.
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
RCTs of social media interventions promoting healthy diet and exercise behaviors
Interventions using social media, alone or as part of a complex intervention
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926.
Williams G,Hamm MP, Shulhan J, et al. Social media interventions for diet and exercise behaviours: a systematic review and meta-analysis of randomised controlled trials. BMJ Open 2014;4:e003926.
Dietary fat consumption decreased significantly among participants exposed to social media
Williams G,Hamm MP, Shulhan J, et al. BMJ Open 2014;4:e003926.
Voluntary recruitment may have resulted in increased participant motivation and selection bias
Losses to follow-up were very high [challenges of adherence and keeping participants engaged]
LIMITATIONS
Participants mostly female, Caucasian of higher socioeconomic status
Evaluate the use and effectiveness of interventions using social networking sites (SNSs) to change health behaviors
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256. doi:10.1136/amiajnl-2014-002841
Meta-analysis8 RCTs
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
HEALTH-SPECIFIC
social network sites
12 studies (n=7411)
8 RCTs
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
Slight positive effect of SNS interventions on health behavior-related outcomesConsiderable heterogeneity
Low-cost opportunity to virally spread health information
PUBLIC HEALTH IMPACT
Laranjo L, et al. J Am Med Inform Assoc 2015;22:243–256
SNSs may be used in a synergistic way with personal health records and mobile devices
POTENTIAL
EVIDENCE
STRATEGYFUTURE
The new challenge for hypertension programs is maintaining community interest while reiterating the same health messages.
“Logan A. Community hypertension programs in the age of mobile
technology & social media. Am J Hypertension 2014;27(8): 1033-1035
HOW TO PACKAGE MESSAGES ON SOCIAL MEDIALogan A. Community hypertension programs in the age of mobile technology & social media. Am J Hypertension 2014;27(8): 1033-1035
DEFINE PARAMETERS
ModalityPurposeCommunity type
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Behavior counseling
Supplemental information
Maximize attendance & retention
Place to connect
PURPOSE
PLATFORM SELECTION
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
TARGET POPULATION
Platform usersNon-usersUser of any platform
RECRUITMENT
Social mediaLocal
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
CONTENT CONVERSION/DEVELOPMENT
CONTENT LIBRARY
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Web page conversionPostsCurated online content
ENGAGEMENT PLAN Group chats
Micro-counseling
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
TRAININGInterventionistParticipant Pagoda S. et al. Adapting Behavioral Interventions for Social
Media Delivery J Med Internet Res 2016;18(1):e24
How to maximize experience
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
REPORTING
How many likes?How many replies?How many posts did participants make?
POTENTIAL
EVIDENCE
STRATEGYFUTURE
What is the optimal size for an online network for a behavioral intervention?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
What is the ideal structure of a group intervention?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
WHAT IS MEANINGFUL ENGAGEMENT?
FOR WHOM?
Pagoda S. et al. Adapting Behavioral Interventions for Social Media Delivery J Med Internet Res 2016;18(1):e24
IRIS THIELE ISIP TAN MD, MSC Professor, UP College of MedicineChief, UP Medical Informatics UnitDirector, UP Manila Interactive Learning Center@endocrine_witch
