Young Onset Dementia & Issues in the Workplace

Pat Wilson, Family Support CoordinatorAlzheimer’s & Dementia Alliance of

Wisconsin

Young onset dementia statistics

• Estimated young-onset Alzheimer’s (under 65)

o 200,000 people in the U.S.

• Estimated young-onset dementia (under 65)

o As many as 640,000 people in U.S.

Special issues with young onset dementia

• Misdiagnosis• Children living at home• Aging parents• Eligibility for benefits and services• Work-related issues

– Loss of finances– Loss of benefits

Special issues with young onset dementia (continued)

• Loss of intimacy• Spouse/partner working or not

working• Financial commitments• Usually physically fit and active• Emotions

Value of employee retention

•Person in the early stages can still be independent with supports

•American Disabilities Act

How to approach an employee about your concerns

• Check with Human Resources• Informal, friendly environment• Simple agenda (“How are you feeling about

work?”)

• Get direct supervisor’s input • Problem solve what can be done & set

goals

Talking to an employee about what can be done to help

• Medical evaluation and treatment plan

• Education and support• Legal and financial assistance• Social Security Disability Insurance (if

leaving employment)• Adaptation options

Adaptation options in the workplace

• Non-technological & natural supportso Co-worker as mentor and supporto Change in environment or work

responsibilities

• Assistive technology (AT)o Any product or piece of equipment used

to maintain or improve the functional capabilities of people with disabilities