Web 2.0Making the Connection

Whattayatalkinabout? Define Web 2.0 Examples Benefits Implications Next Steps

39 million adults say they turn to the Internet first

for answers to their health questions

Wow!

--Manhattan Research Healthcare Marketing Firm

Recent Study: The Future of the Internet in Health Care Future trends:

Consumer Health Information Services Online Support Groups for Patients and Caregivers Health Care Provider Information Services

The Future of the Internet in Health Care: A Five-Year ForecastMary Cain and Robert Mittman This summary appears in the report The Future of the Internet: A Five-Year Forecast, written for the California HealthCare Foundation.The full report can be found on the Foundation web site at: http://www.chcf.org/documents/intreport.pdf

More, Gimme MORE! Internet Before

Information source

Internet Today Information source Support system Community builder Advocacy tool More…

People are looking to the internet to satisfy more of their needs

Today, NMF Website Offers Consumer Health Info Healthcare Provider Info “Ask a Question” Contact info for Chapters, Support Groups,

Network Groups, and Telephone Contacts Opportunities to Donate, Join, Volunteer

Web 2.0The Next Generation

Making the Connection

What is Web 2.0, anyway?

Web 2.0 refers to a perceived second generation of web-based services that emphasize online collaboration and sharing among users.

-- O’Reilly Media, 2004

What is Web 2.0, anyway?

It IS NOT a type of software or hardware

It is a concept of how new network and service sites are being used by people to make connections and share information

Huh? Social Networking

Facilitated online connections based on shared interests

MySpace Friendster Facebook

Huh? Blogs

Chronological online diary Blogger LiveJournal

Huh? Wikis

A website or similar online resource which allows users to add and edit content collectively. “Wiki wiki” means "rapidly" in the Hawaiian language.

Wikipedia Marfan Wiki

Huh? File Sharing

Central Online location where people can share files

YouTube (video) Flickr (photos) Del.icio.us (social bookmarking)

Huh?

Bulletin Boards Online information resources where individuals

may post information that is of interest to others. Virtual communities often form around bulletin board systems (BBS). Although bulletin boards existed on systems that preceded the World Wide Web, most are now Web-based.

Huh? Chat

A virtual room where people can communicate in real time while on the Internet

AOL MSN

What’s in it for us? Web 2.0 connects

Us to our posse Our peeps to each other Other people to us

In other words… Web 2.0 offers opportunities to

Educate our members Facilitate peer connections Bring the public to us

Our vision of Web 2.0 for the NMF Create a “Teen Space” Online support groups Bulletin Boards Chat Ask a doctor Staff/Board blogs Join social networks to boost traffic to NMF site Advocacy page linking NMF members to their representatives Increased use of web for event registration Podcasts The options are endless…

But is it in our Strategic Plan??? Absolutely!

1 - Early and correct diagnosis 2 - Proper treatment 4 - Increase size and scope of research 5 - Improve non-medical services 6 - Stronger advocacy to government 8 - NMF is preeminent information source 10 - 50 State Network 15 - Effective technology

I like it. Are we ready? Yes

Redesigned website Information and services

to share People to share it with Vision

No Website upgrade

needed Functionality Navigation

Moolah!

Let’s do it! Now what? Not so fast!

We need to: Ensure we are ready to make the ongoing

commitment for consistent and timely updates

Create participation guidelines and policies

Determine how it will be moderated