DENISE CHAUDHARY, MAFORMER HEALTHCARE CONSULTANT

FEBRUARY 27 , 2014

Social Media and the Oncology Nurse

Objectives

At the end of this activity, the learner will be able to:

State the ethical, legal and social justice elements of social media.

Describe how to integrate social media into the practice of oncology nursing.

Develop tools and skills to apply social media to the oncology nurses’ professional and personal daily activities.

Disclaimer

The speaker is an employee of Prometheus Labs Oncology.

The talk is being presented independently based on previous experience as a healthcare consultant.

The speaker is not being paid for this presentation, nor is it being paid by her current employer.

The speaker has no financial conflict of interest.

The data presented is based on the speakers education, experience and published peer review articles.

Agenda

Patient Support/ Medical Information liability concerns

HIPAA and Social Media.Facebook, Twitter and other present and

future venues from a legal perspective.“Friending” patients.Examples of successful Health Systems use of

Social Media in their oncology practices.Nurse-to-patient uses of Social Media.Patient-to-patient uses of Social Media.

Agenda (continued)

Directing healthy self-care through Facebook, blogs and Twitter.

Nurse-to-nurse support; your career and more.

Baby steps for Facebook, Twitter and LinkedIn

Other social media; blogs, Caring Bridge, company websites.

ONS portal and sharing of information.Twitter and LinkedIn in 10 days for oncology

nurses.

What is Social Media?

“Social media use widely accessible Web-based and mobile technology to facilitate the creation and sharing of user-generated content in a collaborative and social manner”.

1. Dizon, D., et al., (September 2012) Practical Guidance: The Use of Social Media In Oncology Practice, Journal of Oncology Practice, vol. 8 no. 5 e114-e124

Social Media in Oncology

Uptake of social media provides new opportunities for healthcare professionals and institutions to interact with patients and other professionals.

Oncology nurses may use social media for:

Patient education. Professional development. Direct patient interaction

(legal and privacy concerns).

Who uses social media in oncology?

Support groups Health systems Pharmaceutical companies Patients

Who Uses Social Media

NCI–designated comprehensive cancer centers have at least one social media site. Most use Facebook, Twitter, and YouTube.

After a Ca dx, a significant number of pts seek info online, as well as from other pts and family2.

“e-patient” movement.3

RNs are using SM to educate the public. Tweets, blog posts, or comments on disease-specific

discussion forums (More targeted). In more interactive SM forms; public has opportunity

to actively participate in discussions.

HIPAA and Social Media

“Direct patient care is probably the least-used area in social media, and depending on which social media applications are being considered, it is not clear to us that this can be done in a manner consistent with the principles of patient privacy and compliance with regulatory requirements.”1

HIPAA and Social Media

Following pts on Facebook may be construed as a HIPAA issue if others can “reasonably infer that person was ‘friended’ because the individual is a patient of that specific physician or is being treated for a disease of shared interest.” 4

Why bother?

Patient Support/ Med Info

Chaudhry et al5 concluded that tweets often contained robust and clinically accessible information useful for both patients and clinicians.

SM gives a key teaching opportunity for oncology nurses to disseminate credible, evidence-based information.

SM can heighten awareness of clinical trials and drive participation.

SM are tools for RNs to share info with other healthcare professionals.

Safety Tips

HIPAA Careful of stories Releases

Disclaimers Represent the views of…

Personal/Professional SM never forgets

Reference data, but make no claims

Health Systems use of Social Media

Beth Israel Deaconess Medical Center British Medical Association Carolina Health Care System The Centers for Disease Control and

Prevention Cleveland Clinic Compass Medical PC Danbury Hospital Duke University Health System Fairfield Medical Center Hospital Sant Joan de Deu, Barcelona Inland Northwest Health Services Kaiser Permanente Lehigh Valley Health Network Massachusetts General Hospital Mayo Clinic Methodist Healthcare

Ministry and Affinity Healthcare Mount Sinai School of Medicine The Ohio State University Medical

Center Sentara Healthcare Sutter Health University of California, San

Francisco University of California, Irvine University of Minnesota University of Missouri Health

Care University of Texas MD Anderson

Cancer Center Vanderbilt University School of

Medicine Washington West Virginia University Health

Sciences Center Wright State University School of

Medicine

Nurse-to-patient Uses

Clinical Trials Facebook, Twitter, LinkedIn, and Google+ allow

investigators to interact with the public in new ways: “to create interest in new clinical trials, to enable screening on a real-time basis, to communicate with enrolled subjects, to collect data, and to publicize the release of completed studies”. 1

Send to support Corporate sites for reimbursement Patient education Foundations Support groups

Patient-to-patient Uses

Chat/Forums Stupid Cancer CancerForums.net ACS.org

Support groups Important for more rare cancers Live and online

Survivorship

Your Career and More

Facebook, Twitter and LinkedIn Do you have a LinkedIn Profile? Twitter to do more. Facebook to support others.

ONS

Other social media; blogs, Caring Bridge, company websites. YouTube channels. Follow and care.

ONS portal and sharing of information.

To do:

Get a good head shot NO selfies Go on Twitter; follow ten

organizations/ groups/ people Sign on every day for 2

weeks Facebook (professional pg) Like 15 support groups Friend your fellow nurses YouTube Search for three videos in

areas YOU are interested in

Baby Steps

LinkedIn in 10 days

Day 1- Use head shot, get CV in hand, get an account

Day 2- Use company websites for descriptions, fill out profile more completely

Day 3- Invite 10 people to LinkIn (Co-workers, People in ONS)

Day 4- Post one item about oncology nursing and invite 5 people

Day 5- Add to profile. Join ONS, ACS and 3 other groups

LinkedIn in 10 days

Day 6- Invite 10 more people to LinkIn. Add 5 skills

Day 7- Follow 3 cancer experts, and local systemsDay 8- Invite 10 people to LinkIn with you from

industryDay 9- Add to profile. What have you done that is

special?Day 10- Invite 15 people to LinkInYou now have 50 connections 8 organizations, and a great plus to your career!

Questions?

FIND ME ON:

TWITTER @DEECHAUDHARYWWW.LINKEDIN.COM/IN/DEECHAUDHARY/

HTTPS: / /M.FACEBOOK.COM/DEE.CHAUDHARY

DEECHAUD@AOL.COM

Thank You:See you online!

References

1. Dizon, D, et al (September 2012) Practical Guidance: The Use of Social Media In Oncology Practice, J Oncol Pract, vol. 8 no. 5 e114-e124

2. Caldwell PH, et al (2010) Strategies for increasing recruitment to randomized controlled trials: Systematic review. PLoS Med 7:e1000368

3. Society for Participatory Medicine, http://participatorymedicine.org/

4. Chretien KC, Azar J, Kind T(2011) Physicians on Twitter. JAMA 305:566–568

5. Chaudhry A, et al (2012) Trends in Twitter usage by physicians at the ASCO annual meeting, 2010 and 2011. J Oncol Pract 8:173–178.

References

1. Dizon, D, et al (September 2012) Practical Guidance: The Use of Social Media In Oncology Practice, J Oncol Pract, vol. 8 no. 5 e114-e124

2. Caldwell PH, et al (2010) Strategies for increasing recruitment to randomized controlled trials: Systematic review. PLoS Med 7:e1000368

3. Society for Participatory Medicine, http://participatorymedicine.org/

4. Chretien KC, Azar J, Kind T(2011) Physicians on Twitter. JAMA 305:566–568

5. Chaudhry A, et al (2012) Trends in Twitter usage by physicians at the ASCO annual meeting, 2010 and 2011. J Oncol Pract 8:173–178.

Social Media Terms

Twitter Related: 1

Tweet. A post on Twitter, a real-time social messaging system and microblogging service.

Handle. The unique username selected, designated by an “@username” identifier, and its accompanying URL, for example: http://twitter.com/username.

Follow. To subscribe to another user's tweets or updates on the Twitter.com Web site or using a dedicated application.

Mention. To refer to another user in a tweet by including that user's @username handle.

Timeline. A collected stream of tweets listed in real-time order. For example, when a user logs in to Twitter, their home timeline is a long stream showing all tweets from other users they follow, with the newest messages at the top.

Retweet (noun; RT). A tweet by another user, forwarded to you by someone you follow. RTs are often used to spread news or share valuable findings on Twitter.

Retweet (verb; RT). To rebroadcast another user's tweet to all of your followers by adding the RT tag to the beginning of the tweet.

Modified tweet (MT). Metadata that indicates that the user has added some additional text to the original tweet being rebroadcast, typically commentary or an indication of approval/disapproval.

Social Media Terms

Twitter Related: 1

Partial retweet (PRT). A tweet that has been edited, usually to fit a username within the character limit.

HT. Short for “heard through” or “hat tip,” a piece of metadata added to a tweet to signify that content originated with another user external to Twitter.

Hashtag. A community-driven convention to allow users to add additional context and metadata to a tweet. Hashtags are added in-line to a Twitter post by prefixing a word with a hash symbol (or number sign). Hashtags (eg, #followFriday) may be used to aggregate, organize, and discover relevant tweets.

Reply. A tweet posted in reply to another user's message, usually created by clicking the “reply” button next to the tweet of interest using the Twitter Web site or a dedicated Twitter app. A reply always begins with @username.

Direct message (DM). Also known simply as a “message,” these tweets are private messages between the sender and recipient. DMs begin with “d @username” to specify to whom the message is directed. Only the designated recipient can read the content

Trending topic. A subject algorithmically determined to be one of the most popular on Twitter at the moment.

Social Media Terms

General SM Glossary: 1 App. Popularized in the general lexicon by the iPhone, an app, short for application, is a

software program that performs a specific function on a computer workstation, or a portable device. Apps run the gamut from Web browsers and e-mail clients to specialized programs like games, online chat clients, or music players.

Blog. A blog, a shortened form of “web log,” is an online journal composed by a single author or a group of authors that is updated on a regular basis. Blogs typically represent the author's opinion and may contain comments by other readers, links to other sites, and permalinks.

Crowdsourcing. Crowdsourcing refers to harnessing the knowledge base, skills, and enthusiasm of a community of users external to an individual or organization for the purpose of collaboratively solving problems, gaining knowledge, or garnering opinions.

The cloud (cloud computing). The cloud is an Internet-based computing structure whereby digital data reside on remote

network servers and are provided to client computers and other devices on demand using wireless connectivity. In cloud computing, private files are not stored on the owner's terminal but rather in a remote location, so they can be accessed from any location regardless of the physical location of the client device.

Meme. A meme is a discreet representation of a concept or culturally defined behavior that is spread through the Web. An Internet meme typically involves humor or satire, and its propagation is often both instantaneous and inexplicable.

Social Media Terms

General (Continued): 1 Metadata. Metadata, or “data about data” refers to information—including titles, descriptions, tags and

captions—that describes a media item such as a video, photo, or blog post. Some kinds of metadata—for example, camera settings such as exposure, aperture, focal length and ISO speed—can be captured automatically from the device without the need for human data entry

Micro blogging. Micro blogging is the act of broadcasting short messages to other subscribers of a Web service. For example, Twitter entries are limited to 140 characters.

Podcast. A podcast is a digital file consisting of audio content or audiovisual content made available for download to a portable device or personal computer (PC) for later playback. A podcast uses a continuously updated feed that lets the end user subscribe to it so that when a new file is published online, it is automatically pushed to the end user's PC or portable digital device.

RSS. RSS (Really Simple Syndication), sometimes called a Web feed, is a Web standard for the delivery of content such as blog entries, news stories, headlines, images, or video that is automatically pushed to the end user's PC or portable digital device without requiring the user to browse from site to site. Most blogs, podcasts, and video blogs contain an RSS feed.

SMS. SMS stands for Short Message Service, a system that allows the exchange of short text-based messages between mobile devices. Most often, these are referred to as “texts.”

Tags. Tags are keywords added as a form of metadata to a unit of content, such as blog post or photo. Tags help users to find related topics or media, either through manually browsing on the site or by using the term with an Internet search engine.

Widget. A widget, sometimes called a gadget, badge, or applet, is a small block of content corresponding to a piece of software code, typically displayed in a small box on a web page, for a specific purpose. Examples include weather forecasts or news headlines that are constantly updated, typically via RSS.