1. Who Counts as a Consumer?Insights from CUE Kate Ryan,
MPANational Womens HealthNetworkJune 8, 2012
2. Who are stakeholders? 3. Patients & Consumers
Patientsconsumers of health carePatients consumer representatives
4. Consumers at the table? Why should consumers get a seat at the
table? What is the role of a consumer representative? Who should
get to be a consumer representative? 5. Consumer Representatives
Consumers bring a unique perspective to medical research Consumer
representatives are lay people who engage with the health care and
medical research communities Health care consumer advocates are
watchdogs of the health care industry 6. A different perspective
Consumers are often lay people without medical training Consumers
representatives need to be able to understand complex medical
information But that doesnt mean they should be health care
professionals 7. The role of a consumer Balance individual
perspective with representing a community Consumer representatives
should be connected to the consumer advocacy community 8.
Representing consumers? Being a consumer of health care is
necessary but not sufficient to be a consumer representative
Consumers representatives should not have conflicts of interest 9.
Consumer Criteria It is essential that consumer representatives: Do
not have a financial stake in the health care system Are
independent from industry in decision- making 10. Who Counts as a
Consumer? Actively engages with the health care system Prioritizes
protecting consumers from corporate abuse Connections to the
consumer community No conflicts of interest 11. Thank youKate Ryan,
MPANational Womens Health [email protected]
