RESEARCH ON CARERS’ SUPPORTJO MORIARTY

DH SHOWCASE 2

OUTLINEFOCUS ON SOME OF THE NIHR SSCR FUNDED RESEARCH ON CARERS

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DH SHOWCASE 3

CONTEXT

Courtin et al (2014) cross-EU comparison

England has: Specific policies to support

carers

Specific legal entitlements for carers

National data on who is caring and support they provide

No cause for complacency but opportunity to acknowledge impact of DH policy and DH funded research

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DH SHOWCASE 4

NIHR SSCR RESEARCH ON CARERS

Research on caring shows multiple impacts on people’s lives

Reflected in different NIHR SSCR projects

Range from Large scale survey data to improve identification of

carers (Netten et al)

Studies of carers and paid employment (Pickard et al)

Studies of carers’ experiences (Mitchell et al, 2013, Moriarty et al, 2014)

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DH SHOWCASE 5

IDENTIFYING CARERS

The problem

Research highlighting the number of carers who care for many years without any support (Carers UK, 2014; Moriarty et al, 2014, plus virtually every other study!)

Where research is helping

Secondary analysis of two surveys Survey of Carers in Households

(2009-10)

Personal Social Services Survey of Adult Carers in England (2009-10)

Compare those who are visible to local councils

Look at factors influencing carer quality of life

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DH SHOWCASE 6

CARERS AND PAID EMPLOYMENT

The problem

An estimated 315,000 people (mainly women) aged 16-64 have left paid employment to care Impact on their own careers

Impact on skills levels within workforce

Impact on household income now and in retirement

Where research is helping

Identified low ‘thresholds’ at which carers leave paid employment <10 hours likely to stay

>10 hours likely to leave

Implications of Care Act 2014

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DH SHOWCASE 7

PERSONALISATION

The problem

Policies on personalisation and carer support don’t seem to have developed in tandem (Glendinning et al, 2013)

Where research is helping

Shows lack of clarity that continues to exist among practitioners and carers about carer assessments and carer involvement in assessments of person cared for07/10/14

DH SHOWCASE 8

SOCIAL CARE PRACTICE WITH CARERS

The problem

New roles for carer support workers have developed but under-evaluated

Major changes in way social care is arranged and provided

Where research is helping

Positively evaluated by carers

Undertaking multiple roles

Carers don’t want more information; they want better quality, better targeted information

Understanding impact on markets especially in role of voluntary sector

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DH SHOWCASE 9

CHALLENGE IN EMBEDDING RESEARCH FINDINGS

If professionals don’t know what carers need by now they never [will] … You know new people take over, ‘Ooh, we want to know about the care…’ Can you imagine after twenty odd years how many meetings of professionals I’ve sat [in]? And it’s very simple what carers want. (Una, CARER09)

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DH SHOWCASE 10

CONCLUSION

Move from ‘problems’ to greater precision about what is working for whom and in what circumstances

Recognising continuities in some aspects Impact on social support

Long term impact of caring

Identifying where changes are having an impact Nuanced impacts of personal budgets

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DH SHOWCASE 11

DISCLAIMER

The preparation of this presentation was made possible by a grant from the National Institute for Health Research (NIHR) School for Social Care Research on Social Care Practice with Carers. The views expressed in this presentation are those of the authors and not necessarily those of the NIHR School for Social Care Research or the Department of Health/NIHR

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DH SHOWCASE 12

IMAGES AND REFERENCES

Slide number

Reference

1 Photograph of carers who have taken Caring with Confidence course in Grimsby via Carers Trust

3 Courtin, E., Jemiai, N. and Mossialos, E. (1 August 2014) 'Mapping support policies for informal carers across the European Union', Health Policy. http://dx.doi.org/10.1016/j.healthpol.2014.07.013

5 Using recent surveys to improve support for unpaid carershttp://www.sscr.nihr.ac.uk/PDF/ProjectOutlines/PO33.pdf

6 Unpaid care and employment in Englandhttp://www.sscr.nihr.ac.uk/PDF/Findings/Findings_10_carers-employment_web.pdf

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DH SHOWCASE 13

IMAGES AND REFERENCES (2)

Slide number

Reference

7 Carers and personalisationhttp://sscr.nihr.ac.uk/PDF/Findings/SSCRResearchFindings_12_.pdf

8 Social care practice with carershttp://www.ingentaconnect.com/content/tpp/vsr/2014/00000005/00000002/art00007

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