Privacy and Control: Social Media and Medicine

Dr. Anne Marie Cunningham@amcunningham

Some things are definitely private

http://www.flickr.com/photos/kaptainkobold/4180172507/

A different degree

http://www.flickr.com/photos/48089670@N00/188815585/sizes/z/in/photostream/

We want privacy in public too

http://www.flickr.com/photos/ol1/4789711784/ http://www.flickr.com/photos/bernardomayer/5046335091/

http://www.flickr.com/photos/bepster/120018144/

Not unreasonable social expectation of privacy- civil inattention

http://www.flickr.com/photos/loungerie/3023085176/

Seeking publicity

http://www.flickr.com/photos/libaer2002/4529678428/

Sometimes we are more than happy to be publichttp://www.flickr.com/photos/publiccitizen/5161858599/

http://www.flickr.com/photos/fallsroad/13240207/

http://www.flickr.com/photos/buriednexttoyou/5095255302/

“you are your information”

http://www.flickr.com/photos/verbeeldingskr8/4324902924/

Digital identity

http://en.wikipedia.org/wiki/File:Internet_dog.jpg

Is privacy dying?

http://www.flickr.com/photos/alancleaver/4105726930/

“ Default set to increase social awareness..” Shirky

http://www.flickr.com/photos/mushon/215270738/

Surveillance

http://www.flickr.com/photos/pickard/31220953/

Threats to informational privacy

Gathering

Mining

Exchanging

Matching

Merging

http://www.flickr.com/photos/21782644@N04/3191535692/

Digital footprints

http://www.flickr.com/photos/vinothchandar/4282241642/

Something much more permanent

http://www.flickr.com/photos/oberazzi/974939987/

Control + Context= PRIVACY danah boyd

http://www.flickr.com/photos/joi/1394510691/

Harvard health expert calls Facebook 'Wild West‘

http://news.cnet.com/8301-27083_3-20021519-247.html

New Frontier

What are the rules?

http://www.flickr.com/photos/litherland/2614531003/

Confidentiality

“You should not share identifiable information about patients where you can be overheard, for example in a public place or in an internet chat forum.”

http://www.gmc-uk.org/guidance/ethical_guidance/confidentiality_12_16_protecting_information.asp

Offline

http://www.flickr.com/photos/naiadsspring/143114085/

Not so easy online.

http://www.flickr.com/photos/sidelong/305305214/

Social media?

“You must not make recordings for use in publicly accessible media without written permission, whether or not you consider the patient to be identifiable”

Privacy is dead. Long live privacy!

How can we help patients control privacy?

http://www.flickr.com/photos/horizon/176177318/