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A patient’s experience of using Patient Online Trevor Fossey Member of the Patients Working Together Group (PWTG) Twitter: @Trevor Fossey Email:[email protected]

Patient Panel: Our Digital Journeys

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Page 1: Patient Panel: Our Digital Journeys

A patient’s experience of using Patient Online

Trevor FosseyMember of the Patients Working Together Group (PWTG)

Twitter: @Trevor FosseyEmail:[email protected]

Page 2: Patient Panel: Our Digital Journeys

Power of Information• On PPG

agenda/ engaged

• Easy read version

Personal access to GP Records

My personal journey to access to my personal records at:Regis Medical Centre, West Midlands

Access to GP record• Jan 2014

• Experience Benefits

20152014

Transactions available

• Online Medication

• Online Booking

Promote benefits

• PPG to support

• Share benefits at workshops & via Social Media

2016

Support others & GP• Including via

LCGs & C4CC

• Demonstrate benefits

• Overcome Barriers

2017

Embed in culture

• Encourage CCG to support

• Online access as ‘the norm’ for all citizens

20132012

Page 3: Patient Panel: Our Digital Journeys

Personal experience since Jan 2014Three main benefits

Outcome: Able to review note at home, and contemplate – and take self-help actionIssue fully resolved, no medication or GP time required

• Proxy access – since November 2015 (current)

• Blood Test results – February 2015

Outcome:

Outcome:

30 minute diabetes annual review completed within 10 minutes, & more valueTime saving & better control of diabetes reduction in Hb1Ac level

Able to review notes at home, and contemplate – and share when appropriateEnhanced Integrated care provided, with benefits of all being ‘in the loop’

Able to ‘take time’ to review blood test results at home, using resources available online Identify issues more focused consultation. Saved time & more value

Health of partner deteriorated and regular home visits & ongoing treatmentVisits include from various agencies, clinicians/nurses and specialists

• Mental Health – March 2014

Page 4: Patient Panel: Our Digital Journeys

View GP records online

Overview/summary of experience• Greater involvement in own wellbeing

• Feel more in control & engaged with my own health

• Less risk if I have future issues peace of mind and ‘at ease’

• More inclined to visit doctor if required, because I can then see and review what has been put in the records (‘man thing’?!)

• Now feel that Physical Health is on a more equal footing with Financial Health

• Good foundation for the future & easy to access

Personal experience: Summary

Records online “has first enhanced the relationship that I have with my GP practice - and I am confident that it will improve my health & wellbeing and the person for whom I care”

Page 5: Patient Panel: Our Digital Journeys

Vision and scope workshop – Summary(which identifies barriers to wider engagement?)

Page 6: Patient Panel: Our Digital Journeys

Trevor Fossey• Patient representative on the PWTG

• Co-Production member & Shadow Co-Chair

• Coalition for Collaborative Care

• Lay member of Black Country LCG

• Member of Regis Medical Centre PPG

Mobile: +44 7932 223 449Email: [email protected]: @TrevorFossey#PatientOnlineLinkedIn: http://www.linkedin.com/pub/trevor-fossey/15/b44/10a

Thank you for your attention

Questions?

Page 7: Patient Panel: Our Digital Journeys

Ingrid Brindle

Chair of Haughton Thornley PPG HydeLocality chair of Hyde Tameside PPGsMember of Patient Online PWTGGM AHSN Public Experience GroupCo.Founder of www.healthpledge.co.uk

Page 8: Patient Panel: Our Digital Journeys

Test results• All test results available

• Blood tests

• If regularly tested, can monitor trends

• Understandable, value, graphic, Normal / Abnormal

• Graph of results

• Labtests Online

• Comment by doctor

• Can avoid repeating tests

• No need to contact practice

Page 9: Patient Panel: Our Digital Journeys

Summary of significant events

• Form filling, insurance & benefits etc.

• Useful when you are asked the same

thing over and over again!

• Good to be a reminded of progress

• Links to trusted sites where information is

available

Page 10: Patient Panel: Our Digital Journeys

Letters and referrals etc.

• All communications that go in & out of the practice• Gives the patient confidence, knows what has been done • No need to contact practice• Letters from consultants……supposed to send but often don’t• Can check understanding and roles in what happens next• Can use the letters to inform others who don’t communicate• Examples…..France, Grandson, Yvonne, Margaret

Page 11: Patient Panel: Our Digital Journeys

Consultations etc.• Patient retention of information can be as low as 10%• Can check understanding and what happens next• Can get family or friends / carers help• Language difficulties …. Australia …. Nursing homes• Elderly man in A&E• Safe medicine• No need to contact practice

Page 12: Patient Panel: Our Digital Journeys

Mobile Phone app

• Have information available anywhere home and abroad with just 2 passwords!

How cool is that?

• A large percentage of the population have a suitable mobile phone

• Information about passwords can be stored under ICE or using an ICE app on

the lockscreen

• If someone steals the phone,

passwords can be changed

Page 13: Patient Panel: Our Digital Journeys

What is needed is for all the patient information to be joined up

• GP records

• My information (blood pressure, glucose levels, etc.)

• Inpatient information

• Outpatient information

• Information from other agencies

(social care, physiotherapy, chiropody etc)

• Information from carers and so on ……

Page 14: Patient Panel: Our Digital Journeys

• I’ve also been able to use an app for my phone which

generates an ECG reading

• I have emailed these readings to my cardiologist for

comment

• Great for occasional arrhythmias

What is needed is for all the patient information to be joined up

Page 15: Patient Panel: Our Digital Journeys