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25 June 2014: EHMA (European Health Management Association) Annual Conference in Birmingham, UK: "Leadership in Healthcare: from bedside to board". I spoke in a plenary session titled "Patient Involvement, the Good, the Bad and the Ugly", chaired by Prof. Naomi Chambers, Professor of Healthcare Management, Manchester Business School, UK.
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Patient involvement
– the good, the bad and the ugly
Sara Riggare, MSc,
PhD candidate, Karolinska Institutet
Chief Patient Officer, Nerve
Patient involvement
– the good, the bad and the ugly
Sara Riggare, MSc,
PhD candidate, Karolinska Institutet
Chief Patient Officer, Nerve
Patient involvement
– the good, the bad and the ugly
Sara Riggare, MSc,
PhD candidate, Karolinska Institutet
Chief Patient Officer, Nerve
Sara Riggare
Sara Riggare
Sara Riggare
Time with neurologist
Sara Riggare
Time with neurologist 2012, n=135
0 mins/year
5-60 mins/year
61-120 mins/year
121-180 mins/year
>181 mins/year
Time with neurologist
Sufficient
Insufficient
(Riggare, 2014, unpublished)
Sara Riggare
Sara Riggare
Sara Riggare
44% of the population has one or more chronic
conditions
25% have 2 or more chronic conditions
80% of total healthcare costs
Sara Riggare
Chronic disease in Sweden
Ref: Vårdanalys, 2014. ”VIP i vården? – Om utmaningar i vården av
personer med kronisk sjukdom” (in Swedish)
Sara Riggare
Sara Riggare
Sara Riggare
Sara Riggare
Increasing cost?
Sara Riggare
Knowledge
Sara Riggare
Self-reported knowledge
Insufficientn=52
Sufficientn=79
(Riggare, 2014, unpublished)
Knowledge
Sara Riggare
Insufficient knowledgen=52
Expecting informationfrom healthcare
Expecting to acquireknowledge oneself
Sufficient knowledgen=79
Knowledge acquired viahealthcare
Self-acquiredknowledge
(Riggare, 2014, unpublished)
Sara Riggare
P=0.963 (Mann-Whitney U) P<0.05 (Mann-Whitney U)
0
5
10
15
20
<1 year 1-3 years 4-6 years 7-10 years >10 years
Time since diagnosis
Insufficient knowledgeExpecting to acquireknowledge oneself, n=5
Expecting information fromhealthcare, n=47
0
5
10
15
20
25
<1 year 1-3 years 4-6 years 7-10 years >10 years
Time since diagnosis
Sufficent knowledgeSelf-acquiredknowledge, n=59
Knowledge acquired viahealthcare, n=20
(Riggare, 2014, unpublished)
”The holy grail of medicine”?
Sara Riggare
Take home message
Sara Riggare
Sara Riggare