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USAID APHIA II NAIROBI/CENTRAL MODULE 5 Comprehensive HIV/AIDS Care Unit 1: The concept of comprehensive care

Module 5 comprehensive care gsn

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Page 1: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

MODULE 5

Comprehensive HIV/AIDS Care

Unit 1:The concept of comprehensive care

Page 2: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

SPIRITUAL

THE PERSON

EMOTIONAL PHYSICAL

SOCIAL

Holistic care

Page 3: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Comprehensive Care Concept

• Consider the patient with HIV/AIDS as the centre• Plot around him the needs he has• Now plot around him the people to whom he

relates in his normal life

Page 4: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Everyone needs

To feel loved and valued

To be able to trust

To have honest communication

To have hopes and goals

To express his personality

To have dignity

To be given respect and choice

To have peace

of mind

To have physical care and comfort

Page 5: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

The person who is ill relates to

Spouse caregiver

Siblings, parents

Colleagues peers

Children

Close friends church

Nurse at work

Hospital doctors, nurses, team

Community health worker

Other PLWHA’s

Extended family

Page 6: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Services to be offered in CCC

• Brainstorming for 5 minutes

Page 7: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

The comprehensive care team managing the patient

Spouse/partner

Other family and friends

Community services

Spiritual Care givers

Occupational therapist

Physiotherapist

Doctors Nurses

Counsellor

Nutritionist

Page 8: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Physical Care

• Medical and nursing – treatment of illnesses and symptoms; lab and pharmacy support

• Physiotherapy – strengthening muscles and bone after illness and weight loss

• Nutritional advice• Occupational therapy – to re-teach activities of daily living;

teach new skills for income generation

Page 9: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Clinical care

• Opportunistic infections• STI treatment• Lab indicators of progression of disease• TB treatment and follow-up• ARV prescription• Palliative care

Page 10: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Psychological/emotional care

• The whole team – attitudes, how you greet patients, skills, knowledge, motivation and compassion

• Counselling• Volunteers• Community health workers – home support

Page 11: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Social support

• Community support – NGO’s, church• Private sector, individuals, organization• Examples include post test clubs for positive

clients, clubs for adolescents and youth• Day care for children/adults where they can play

games, share information etc

Page 12: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

HOME BASED CARE

• Identify family care givers• Encourage them to accompany the clients in

every visit• Educate them on patients condition and basic

home based care in the following– Clinical care at home, nursing and psychological

care, social and spiritual support

Page 13: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

HOME BASED CARE (CTD)

• Education and demonstration for patients and FCG on care• Education on adherence, psychological support nutrition• Involve the local community health workers to provide

support and follow-up through DOTS• Refer to community comprehensive care clinics for

continuum of care

Page 14: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Post test club (support groups)

• A place to promote AIDS awareness• A place to promote and maintain behavior

change• A place where members share their experiences

and learn from one another• A place to promote any useful activity e.g

income generating activity

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USAID APHIA IINAIROBI/CENTRAL

Referral and networking

• DIRECTORY• NETWORKING FORUM• PARTNERS

Page 16: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Rehabilitation

• The restoration of normal physical, emotional, social and spiritual function to the individual within the context of the natural progression of the disease

• This applies in children too, and includes restoration of ability to play, laugh, eat, pray, sing and to feel loved and secure

Page 17: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Rehabilitation

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USAID APHIA IINAIROBI/CENTRAL

Inter-agency team work

VCT

Hosp

Clinic CBO

NGO

Church

Networking

Referrals

Page 19: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Spiritual Care

• Care which relates to the spirit or soul of a person and facilitates its expression

• Spiritual means that within a person that relates to, or reaches out to, God, to the Creator, or to ‘something or someone greater’

• It also relates to values such as love, beauty, joy, honesty, integrity, absolute standards of right and wrong, forgiveness

Page 20: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

A saying

‘Do not walk ahead of me, I may not follow;Do not walk behind me , I may not lead;

Walk beside me and be my friend’

Page 21: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Palliative Care definition (WHO 2002)

• PC is an approach to care that aims to improve the quality of life of patients and their families who are facing …life-threatening illness

• It prevents and relieves suffering by means of early identification, impeccable assessment, and treatment of pain, and other problems – physical,psychosocial and spiritual

Internet source to be availedDr Margaret Makanyengo AMREF presentation

Page 22: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Palliative Care (WHO 2002)

• An approach which affirms life, but regards death as a normal process

• It intends neither to hasten or postpone death, but aims to improve the quality of the life that is left to the person

• Using a team approach, it offers a support system to help patients live as actively as possible until death

Page 23: Module 5 comprehensive care gsn

USAID APHIA IINAIROBI/CENTRAL

Post test club or support groups

• A place where people meet• A place where people have tested positive or

negative• A place where those considering testing come to• A social club where people who are HIV negative

interact with and support HIV+