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USAID APHIA IINAIROBI/CENTRAL
MODULE 5
Comprehensive HIV/AIDS Care
Unit 1:The concept of comprehensive care
USAID APHIA IINAIROBI/CENTRAL
SPIRITUAL
THE PERSON
EMOTIONAL PHYSICAL
SOCIAL
Holistic care
USAID APHIA IINAIROBI/CENTRAL
Comprehensive Care Concept
• Consider the patient with HIV/AIDS as the centre• Plot around him the needs he has• Now plot around him the people to whom he
relates in his normal life
USAID APHIA IINAIROBI/CENTRAL
Everyone needs
To feel loved and valued
To be able to trust
To have honest communication
To have hopes and goals
To express his personality
To have dignity
To be given respect and choice
To have peace
of mind
To have physical care and comfort
USAID APHIA IINAIROBI/CENTRAL
The person who is ill relates to
Spouse caregiver
Siblings, parents
Colleagues peers
Children
Close friends church
Nurse at work
Hospital doctors, nurses, team
Community health worker
Other PLWHA’s
Extended family
USAID APHIA IINAIROBI/CENTRAL
Services to be offered in CCC
• Brainstorming for 5 minutes
USAID APHIA IINAIROBI/CENTRAL
The comprehensive care team managing the patient
Spouse/partner
Other family and friends
Community services
Spiritual Care givers
Occupational therapist
Physiotherapist
Doctors Nurses
Counsellor
Nutritionist
USAID APHIA IINAIROBI/CENTRAL
Physical Care
• Medical and nursing – treatment of illnesses and symptoms; lab and pharmacy support
• Physiotherapy – strengthening muscles and bone after illness and weight loss
• Nutritional advice• Occupational therapy – to re-teach activities of daily living;
teach new skills for income generation
USAID APHIA IINAIROBI/CENTRAL
Clinical care
• Opportunistic infections• STI treatment• Lab indicators of progression of disease• TB treatment and follow-up• ARV prescription• Palliative care
USAID APHIA IINAIROBI/CENTRAL
Psychological/emotional care
• The whole team – attitudes, how you greet patients, skills, knowledge, motivation and compassion
• Counselling• Volunteers• Community health workers – home support
USAID APHIA IINAIROBI/CENTRAL
Social support
• Community support – NGO’s, church• Private sector, individuals, organization• Examples include post test clubs for positive
clients, clubs for adolescents and youth• Day care for children/adults where they can play
games, share information etc
USAID APHIA IINAIROBI/CENTRAL
HOME BASED CARE
• Identify family care givers• Encourage them to accompany the clients in
every visit• Educate them on patients condition and basic
home based care in the following– Clinical care at home, nursing and psychological
care, social and spiritual support
USAID APHIA IINAIROBI/CENTRAL
HOME BASED CARE (CTD)
• Education and demonstration for patients and FCG on care• Education on adherence, psychological support nutrition• Involve the local community health workers to provide
support and follow-up through DOTS• Refer to community comprehensive care clinics for
continuum of care
USAID APHIA IINAIROBI/CENTRAL
Post test club (support groups)
• A place to promote AIDS awareness• A place to promote and maintain behavior
change• A place where members share their experiences
and learn from one another• A place to promote any useful activity e.g
income generating activity
USAID APHIA IINAIROBI/CENTRAL
Referral and networking
• DIRECTORY• NETWORKING FORUM• PARTNERS
USAID APHIA IINAIROBI/CENTRAL
Rehabilitation
• The restoration of normal physical, emotional, social and spiritual function to the individual within the context of the natural progression of the disease
• This applies in children too, and includes restoration of ability to play, laugh, eat, pray, sing and to feel loved and secure
USAID APHIA IINAIROBI/CENTRAL
Rehabilitation
USAID APHIA IINAIROBI/CENTRAL
Inter-agency team work
VCT
Hosp
Clinic CBO
NGO
Church
Networking
Referrals
USAID APHIA IINAIROBI/CENTRAL
Spiritual Care
• Care which relates to the spirit or soul of a person and facilitates its expression
• Spiritual means that within a person that relates to, or reaches out to, God, to the Creator, or to ‘something or someone greater’
• It also relates to values such as love, beauty, joy, honesty, integrity, absolute standards of right and wrong, forgiveness
USAID APHIA IINAIROBI/CENTRAL
A saying
‘Do not walk ahead of me, I may not follow;Do not walk behind me , I may not lead;
Walk beside me and be my friend’
USAID APHIA IINAIROBI/CENTRAL
Palliative Care definition (WHO 2002)
• PC is an approach to care that aims to improve the quality of life of patients and their families who are facing …life-threatening illness
• It prevents and relieves suffering by means of early identification, impeccable assessment, and treatment of pain, and other problems – physical,psychosocial and spiritual
Internet source to be availedDr Margaret Makanyengo AMREF presentation
USAID APHIA IINAIROBI/CENTRAL
Palliative Care (WHO 2002)
• An approach which affirms life, but regards death as a normal process
• It intends neither to hasten or postpone death, but aims to improve the quality of the life that is left to the person
• Using a team approach, it offers a support system to help patients live as actively as possible until death
USAID APHIA IINAIROBI/CENTRAL
Post test club or support groups
• A place where people meet• A place where people have tested positive or
negative• A place where those considering testing come to• A social club where people who are HIV negative
interact with and support HIV+