Jan A.M. Kremer, gynaecologist

Radboud University Nijmegen Medical Centre @JKNL #ISDM2011 j.kremer@obgyn.umcn.nl

Maastricht, June 20th, 2011

The power of The Individual Formerly Known As Patient (TIFKAP)

Inspiration

Inspiration 1: Clayton Christensen

•Sustaining innovations make good things better•Disruptive innovations make things more affordable and simple

•Disruptive innovations are not good for current organizations, but are good for mankind

Inspiration 2: Clay Shirky

• The power of organizing without organizations

• Spectacular developments of internet 2.0 and its social consequences

• Web 2.0 is a platform of virtual communication & participation

• Consumers are the new producers in agile and fluent networks

Inspiration 3: Prince

• The Artist Formerly Known As Prince (TAFKAP)

• Patient comes from the Latin word Patientia: patience, suffering, endurance

• The Individual Formerly Known As Patient (TIFKAP)

How did I get involved?

• Gynaecologist (1996)• Reproductive Medicine• Head of the IVF team

• 1 of 6 couples• 16.000 IVF treatments• 1 of 38 children

Heyendael Castle, 2001

What do you think of our IVF care?

Patient power

From paradigm shift to dream

1. Digital IVF Clinic

1. General information 1.0interviews, education leaflets, PDA

2. Personal Health Record (PHR)test results, pictures, letters, reports

3. Communicationchat and forum (P2D & P2P)

Evaluation

•8 years successfully online•Almost 4000 patients, •> 100.000 forum items•Patients are the motor of this innovation•More trust, less complaints, better culture•Less consultations, marketing benefits, prizes

2. Patients & Guideline implementation

3. Patient Centredness Questionnaire

4. Patients & Guideline developement

5. Patients & Education developement

In our community, you find wiki’s with information about your fertility treatments. This information is not complete since your knowledge & experiences are still lacking.

HELP US!

Please help us. It is a very simple:1. Go to our mijnzorgnet.nl 2. Go to the wiki 3. Add your information

6. Decision aid for 1 or 2 embryos

IVF: •Single embryo transfer: prevention of twins•Double embryo transfer: higher pregnancy rate

Information about: • Chances• Risks of twins• How to make the choice

van Peperstraten et al, Patient Educ Couns, 2009

Nijmegen decision aid

Patients make the better and cheaper choice

7. Next step: Health communities

We have organized Healthcare from the institution of the provider

We should organize Healthcare from the network of the patient

MijnZorgNet (MyCareNet) is a provider of Health Communities

Three kinds of communities

1. Public Health CommunitiesDutch Community for Infertility

2. Private Health CommunitiesNijmegen IVF centre

3. Personal Health CommunitiesHealth community of Jan Kremer

The times they are a-changin’

The new doctor:•from boss to servant•from god to guide•from host to guest (Don Berwick)

The new patient:•from passive object to active subject•from patient to person (TIFKAP)

The new healthcare organization:•from physical institution to virtual network•from better & expensive, to simple and affordable