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Ann & Robert H. Lurie Children’s Hospital of Chicago provides superior pediatric care in a setting that offers the latest benefits and innovations in medical technology, research and family-friendly design. We are the largest pediatric provider in the region, with over 600,000 patient visits, including 580,329 outpatient visits, 21,183 surgeries and 13,013 inpatient admissions in fiscal year (FY) 2012. Our medical staff includes 1,245 physicians in 70 pediatric specialties. An extraordinary place for healing and family-centered care, the hospital’s evidence-based design and advanced technology allows us to provide unmatched care to the region’s most critically ill children. Formerly Children’s Memorial Hospital, the move to our new facility in June 2012 was a major milestone in the institution’s 130-year history. IMPORTANT FACTS Patient Safety Lurie Children’s was recognized as a “Top Hospital” for patient safety by The Leapfrog Group, a national consortium of healthcare payers that promotes “leaps” in patient safety. This designation is considered one of the most competitive awards in the country, offering the most complete picture of a hospital’s quality and safety. Cutting-Edge Research The research arm of Lurie Children’s – Ann & Robert H. Lurie Children’s Hospital of Chicago Research Center – is devoted to the understanding, prevention and investigation of pediatric illnesses and injuries. It has been designated a Northwestern University Feinberg School of Medicine research center for its central role in the university’s integrated research program. Established in 1986, our pediatric research center has over 200 investigators, 500 staff members and 100 trainees who contribute to six growing programs in basic research and translational medicine at the research facility. We also have interdisciplinary centers of excellence that target specific child health issues and complement our core programs. A HISTORY OF EXCELLENCE Children’s opened in 1882 as the first and only pediatric hospital in Illinois, beginning our tradition of excellence through clinical innovation. 1940 • Paul Holinger, MD, designs a pediatric sterling silver tracheotomy tube that’s placed in the opening of the neck to provide an airway when breathing is obstructed and used for removing secretions from the lung. 1945 • Willis J. Potts, MD, develops the Potts vascular clamp, which has fine, interlocking teeth that penetrate the wall of a blood vessel without crushing and without slipping. IN THE LAST FISCAL YEAR: (9/2011-8/2012) • Lurie Children’s cared for more children than any other pediatric hospital or system in Illinois. • We have almost five times more pediatric specialists than the next largest pediatric health system in Chicago. • We served children from 49 states and 34 countries. • The media mentioned Lurie Children’s 10,145 times in stories about our new hospital, health education and trends, research and more. LARGEST PEDIATRIC PROVIDER IN ILLINOIS BY VOLUME • Annual patient visits: 602,584 • Inpatient admissions: 13,013 • Outpatient visits: 580,329 • Surgical procedures: 21,183 • Emergency dept. visits: 98,733 • Unique patients served: 149,468 ALL SERVICES RANKED #1 IN PEDIATRIC VOLUME IN ILLINOIS IN CALENDAR YEAR 2012 • Asthma • Allergy/Immunology • Cardiology • Cardiovascular-Thoracic Surgery • Dentistry • Dermatology • Endocrinology • Gastroenterology • General Medicine • General Surgery • Genetics • Hematology/Oncology • Infectious Disease • Kidney Diseases (Nephrology) • Neonatology • Neurology • Neurosurgery • Ophthalmology • Orthopaedic Surgery • Otolaryngology (ENT) • Plastic Surgery • Pulmonary Medicine • Rheumatology • Transplantation • Urology ABOUT LURIE CHILDREN’S AS OF JANUARY 2013

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Page 1: Lurie Children's Important Facts

Ann & Robert H. Lurie Children’s Hospital of Chicago provides superior pediatric care in a setting that offers the latest benefits and innovations in medical technology, research and family-friendly design.

We are the largest pediatric provider in the region, with over 600,000 patient visits, including 580,329 outpatient visits, 21,183 surgeries and 13,013 inpatient admissions in fiscal year (FY) 2012. Our medical staff includes 1,245 physicians in 70 pediatric specialties.

An extraordinary place for healing and family-centered care, the hospital’s evidence-based design and advanced technology allows us to provide unmatched care to the region’s most critically ill children.

Formerly Children’s Memorial Hospital, the move to our new facility in June 2012 was a major milestone in the institution’s 130-year history.

IMPORTANT FACTS

Patient SafetyLurie Children’s was recognized as a “Top Hospital” for patient safety

by The Leapfrog Group, a national consortium of healthcare payers that promotes “leaps” in patient safety. This designation is considered one of the

most competitive awards in the country, offering the most complete picture of a hospital’s quality and safety.

Cutting-Edge ResearchThe research arm of Lurie Children’s – Ann & Robert H. Lurie Children’s Hospital of Chicago Research Center – is devoted to the understanding, prevention and investigation of pediatric illnesses and injuries. It has been designated a Northwestern University Feinberg School of Medicine research center for its central role in the university’s integrated research program.

Established in 1986, our pediatric research center has over 200 investigators, 500 staff members and 100 trainees who contribute to six growing programs in basic research and translational medicine at the research facility. We also have interdisciplinary centers of excellence that target specific child health issues and complement our core programs.

A HISTORY OF ExCELLENCEChildren’s opened in 1882 as the first and only pediatric hospital in Illinois, beginning our tradition of excellence through clinical innovation.

1940 • Paul Holinger, MD, designs a pediatric sterling silver tracheotomy tube that’s placed in the opening of the neck to provide an airway when breathing is obstructed and used for removing secretions from the lung.

1945 • Willis J. Potts, MD, develops the Potts vascular clamp, which has fine, interlocking teeth that penetrate the wall of a blood vessel without crushing and without slipping.

IN THE LAST FISCAL YEAR: (9/2011-8/2012)

• Lurie Children’s cared for more children than any other pediatric hospital or system in Illinois.

• We have almost five times more pediatric specialists than the next largest pediatric health system in Chicago.

• We served children from 49 states and 34 countries.

• The media mentioned Lurie Children’s 10,145 times in stories about our new hospital, health education and trends, research and more.

LARGEST PEDIATRIC PROVIDER IN ILLINOIS BY VOLUME

• Annual patient visits: 602,584• Inpatient admissions: 13,013• Outpatient visits: 580,329• Surgical procedures: 21,183 • Emergency dept. visits: 98,733• Unique patients served: 149,468

ALL SERVICES RANKED #1 IN PEDIATRIC VOLUME IN ILLINOISIN CALENDAR YEAR 2012

• Asthma• Allergy/Immunology• Cardiology• Cardiovascular-Thoracic Surgery• Dentistry• Dermatology• Endocrinology• Gastroenterology• General Medicine• General Surgery• Genetics• Hematology/Oncology• Infectious Disease• Kidney Diseases (Nephrology)• Neonatology• Neurology • Neurosurgery• Ophthalmology• Orthopaedic Surgery• Otolaryngology (ENT)• Plastic Surgery• Pulmonary Medicine• Rheumatology• Transplantation

• Urology

AbOUT LURIE CHILDREN’S

A S O F J A N U A R Y 2 0 1 3

Page 2: Lurie Children's Important Facts

1955 • Thomas G. Baffes, MD, makes a contribution to the great arterial switch operation, which resolves the abnormal congenital heart defect, called transposition of the great arteries. Patients with this defect have the opposite of normal anatomy: their aorta raises from the right ventricle and the pulmonary artery raises from the left ventricle.

Lurie Children’s ranks in the top 10 children’s hospitals nationally and qualified for the Honor Roll in the 2012-13 U.S.News & World Report best Children’s Hospitals rankings.

The Honor Roll designation is awarded to hospitals that scored in the top 10 percent in at least three specialties. Lurie Children’s ranked in the top 10 percent for Urology (#6), Nephrology (#7) and Gastroenterology (#8).

By the numbers:• 178 centers completed 1,025 questions in the 95-page survey• 80 different hospitals ranked in the top 50 in at least one specialty• Of the 80 ranked hospitals, only 12 were named to the Honor Roll• Lurie Children’s ranked ninth among the top 12 hospitals on the Honor Roll

NATIONALLY RECOGNIzED CARE

Urology, #6 in the nation

• Ranked in the top 10 nationally and the only pediatric urology program in Illinois in the U.S.News & World Report rankings.

• One of the best in patient outcomes in the nation for success in preventing surgical complications and reducing urinary tract infections.

• Treats more than 18,000 children every year for both common and complex conditions.

• A team of seven fellowship-trained pediatric urologists treats the entire spectrum of pediatric urologic diseases and uses the latest techniques in minimally invasive surgery, including DaVinci® robotic technology.

Nephrology (Kidney Diseases), #7 in the nation

• Ranked in the top 10 nationally and the only pediatric nephrology program in Illinois in the U.S.News & World Report rankings.

• Performed nearly 600 kidney transplants, including 290 living donor transplants, since the program began in 1964.

• Eighth highest number of pediatric kidney transplants in the United States since 1988.

• A center for innovative care and research in ultra-orphan kidney diseases and kidney stones, as well as precursors of chronic kidney disease including high blood pressure and obesity.

Gastroenterology, #8 in the nation

• Ranked in the top 10 nationally and top pediatric gastroenterology program in Illinois in the U.S.News & World Report rankings.

• One of the best in patient outcomes in the nation for survival after liver transplant and success in reducing ICU infections.

• Only pediatric capsule endoscopy program in Illinois.

• Only full service pediatric motility program in Illinois with procedures for esophageal, stomach, small intestine and colon disorders.

• Regional referral center for acute liver failure and biliary atresia with expertise in transplants in children less than one year old.

Orthopaedics, #10 in the nation

• Ranked in the top 10 nationally and the only pediatric orthopaedic program in Illinois in the U.S.News & World Report rankings.

• One of the best in patient outcomes in the nation for preventing surgical complications.

• Over 30,000 outpatient visits in FY12, caring for more than 15,000 children on average.

• Only pediatric bone health program in Illinois.

• Over 40 active research studies including KIPP® (Knee Injury Prevention Program), PROOF (Pain Management in Children Undergoing Supracondylar Humerus Fracture Repair) and PPSS (Prospective Pediatric Scoliosis Study), and PPKS (Prospective Pediatric Kyphosis Study).

1972 • Mihran Tachdjian, MD, former Head of the Division of Orthopaedic Surgery, publishes Pediatric Orthopaedics, an unprecedented 1700-page comprehensive, all-inclusive review and background of pediatric orthopaedics.

Page 3: Lurie Children's Important Facts

Cancer, #10 in the nation

• Ranked in the top 10 nationally and the only pediatric cancer program in Illinois in the U.S.News & World Report rankings.

• Largest pediatric thalassemia program and most comprehensive pediatric sickle cell program in the area.

• Nation’s first freestanding pediatric stem cell program to earn accreditation from the Foundation for the Accreditation of Cellular Therapy.

• One of the country’s largest stem cell transplant programs, with more than 1,000 transplants since 1992. Also pioneered the use of reduced intensity and reduced toxicity transplants, and peripheral blood stem cells.

1984 • Farouk S. Idriss, MD, is the first physician to use pericardium (the thin tissue-like membrane surrounding the heart) to relieve airway narrowing that obstructs the passage of air to the lungs in a 7-month-old infant with complete tracheal rings.

1988 • Farouk S. Idriss, MD, and Carl L. Backer, MD, current Division Head of Cardiovascular-Thoracic Surgery, perform the first neonatal heart transplant in Illinois on a 16-day-old infant for hypoplastic left heart syndrome.

Lurie Children’s is the only pediatric hospital in Illinois to be ranked in all 10 specialties — no other hospital scored higher in any one specialty area.

All hospitals were judged on these three categories:

1. Hospital resources directly related to patient care.

2. Rendering of diagnosis, treatment, prevention, infection prevention, patient safety and patient education; based primarily on a reputational score from the annual survey of board-certified physicians.

3. Outcomes, survival rates and functional success.

U.S.News & World Report

Pulmonology, #15 in the nation

• Top pediatric pulmonology program in Illinois in the U.S.News & World Report rankings.

• Largest pediatric cystic fibrosis center in Illinois.

• A Cystic Fibrosis Foundation Therapeutics Development Network Site dedicated to studying innovative therapies.

• Only pediatric center in Illinois accredited by the American Academy of Sleep Medicine.

Neonatology, #15 in the nation

• Top pediatric neonatology program in Illinois in the U.S.News & World Report rankings.

• The Neonatal Intensive Care Unit (NICU) has cared for more than twice the number of children with life-threatening conditions than any other hospital in Illinois.

• Direct access to Prentice Women’s Hospital, the largest obstetrical program in Illinois.

• A regional referral center for infants with short bowel syndrome and pulmonary hypertension.

Diabetes & Endocrinology, #31 in the nation

• Only pediatric diabetes/endocrinology program in Illinois in the U.S.News & World Report rankings.

• In partnership with La Rabida Children’s Hospital, our endocrinologists staff Chicago’s only pediatric diabetes program certified by the American Diabetes Association.

• One of the largest diabetes programs in Illinois, caring for more than 1,200 patients with type 1 or type 2 diabetes.

Neurology & Neurosurgery, #13 in the nation

• Only pediatric neurology/neurosurgery program in Illinois in the U.S.News & World Report rankings.

• One of the most comprehensive pediatric epilepsy centers in the region, including treatment of Dravet syndrome and Panayiotopoulos syndrome.

• First children’s hospital in Illinois, and among the first in the country, to acquire the NICO Myriad™, a minimally invasive device that makes brain and spine tumor removal faster and easier.

• With the CDH Proton Center, A ProCure Center, patients with pediatric brain tumors are offered access to proton therapy, an advanced therapy to target radiation to tumors.

• The most comprehensive pediatric neuromuscular disorders program in Illinois, in partnership with the Muscular Dystrophy Association; the program participates in 12 clinical research trials.

Cardiology & Heart Surgery, #22 in the nation

• Top pediatric cardiac program in Illinois in the U.S.News & World Report rankings.

• With 205 transplants, the program has completed more cardiac transplants than any other pediatric healthcare provider in Illinois.

• Performed over 15,000 echocardiograms and 1,400 fetal echocardiograms (FY12).

• Nation’s first pediatric hospital to launch a telemedicine program; bedside, real-time echo diagnosis and management, helping more than 13,000 children since it began in 1994.

• One of 11 programs nationally, and one of two in the Midwest, offering an ACGME-approved 1-year Congenital Cardiac Surgery fellowship.

Page 4: Lurie Children's Important Facts

NEW LOCATION, NEW OPPORTUNITIES FOR CARE

NEW SERvICES Our new location, just steps from our pediatric training center at the Feinberg School, gives us opportunities for new services, better care and cutting-edge technology. All of the following new programs and services below were made possible by our new facility.

Muscular Dystrophy Association (MDA) Clinic The new MDA Clinic complements the Mazza Foundation Neuromuscular Program at Lurie Children’s by providing additional funding for a multidisciplinary clinic that offers family-centered care. MDA helps children who are affected by muscular dystrophy, spinal muscular atrophy, Charcot-Marie-Tooth disease and other neuromuscular diseases.

mFGR programThe Division of Kidney Diseases, in collaboration with the Infusion Center, is now offering patients an accurate measurement of glomerular filtration rate (mGFR) using lohexol clearance. This is a unique test that is proven to be the safest, most accurate way to measure kidney function. The plasma disappearance of Iohexol is safe and is not radioactive, unlike most mGFR tests. Serum levels of Iohexol are easy to measure and therefore circumvent the need for any urine collections, which has been the downfall of other mGFR methodology in pediatrics. This test may be used preventatively to lessen kidney disease progression and rule out any kidney complications. It will benefit hundreds of cystic fibrosis, irritable bowel syndrome and transplant patients, among others.

Regenstein Cardiac Care UnitThe 36-bed Regenstein Cardiac Care Unit (CCU) occupies the entire 15th floor, where cardiology and cardiovascular surgery patients stay from admission to discharge. It is one of the few pediatric units of its kind in the nation, providing central expertise, technology and comprehensive resources to treat a broad range of complex heart conditions from infancy through young adulthood. The CCU has the most advanced technology available, which will decrease the need for transfers, in a family-focused, healing environment.

Every aspect of the hospital was designed with kids in mind and would not have been possible without the generous support of more than 250,000 donors. Named for philanthropist Ann Lurie and her late husband, Robert, in recognition of her $100 million gift, the hospital builds on our legacy of excellence with:

• 288 beds in all private rooms to help control infection, reduce noise, minimize errors and enhance privacy; they also create an environment proven to speed healing.

• A rooftop heliport for critically ill and injured children provides faster access to the hospital when it matters most.

• In-room showers, wireless internet access, on demand in-room food service, shared kitchens, dining and respite spaces for families all promote peaceful, family-centered care.

• Creative interiors designed in partnership with more than 20 of Chicago’s premier art, cultural and civic institutions create healing spaces to distract and calm our patients.

• A sustainable facility that is twice the square footage of our old hospital, but energy costs are estimated to increase by only 20 percent.

• A healing environment throughout the building including the Crown Sky Garden. A part of the “Pebble Project” – a group of 50 hospitals committed to studying innovations in hospital designs and their effect on the healing process.

1997 • Riccardo A. Superina, MD, current Head, Division of Transplant Surgery, is the first surgeon in North America to apply the Rex Shunt technique to children with extra-hepatic portal vein that carries blood to the liver. The shunt bypasses the blocked portal vein and restores venous blood flow to the liver.

1997 • Morris Kletzel, MD, MBA, former Head, Division of Hematology, Oncology and Stem Cell Transplantation, develops an innovative stem cell transplant for children with neuroblastoma. The procedure involves a triple tandem stem cell rescue rather than a single transplant and has greatly improved the three-year survival rate from 25 to 75 percent.

2001• Children’s is the first pediatric hospital in the U.S. approved to use the INTRABEAM system to treat children with brain tumors. The system delivers high doses of precisely controlled radiation directly into the cavities of resected brain tumors.

Page 5: Lurie Children's Important Facts

Video Remote Interpreting (VRI) Program Lurie Children’s launched our video Remote Interpreting (vRI) program, providing immediate access to interpreters through video conferencing technology. The vRI system, available 24 hours, seven days a week, lets us offer sign language interpreters, as well as the following spoken languages: Arabic, Cantonese, Mandarin, Polish, Russian, Somali, Spanish and vietnamese.

Voice Program New to the Division of Otolaryngology (Ear, Nose and Throat) is a multidisciplinary pediatric voice program for voice conditions, including the most common condition, hoarseness. Our doctors work closely with speech and language pathologists. The program is the only one of its kind in the Chicago metropolitan area and offers extensive airway surgery expertise and a wide variety of aerodigestive-related services.

Expanded Clinical Research Unit The Clinical Research Unit at Lurie Children’s is helping physicians launch more high-acuity clinical studies that involve complicated conditions, riskier procedures and longer visits. Nearly 40 investigators are already taking advantage of the new facility to conduct around 65 clinical studies. The unit now sees approximately 2,300 study visits a year.

Connective Tissue Disorders Program (Marfan)The Division of Cardiology teamed up with the Division of Genetics, birth Defects and Metabolism to create a multidisciplinary program to treat all connective tissue disorders that affect the cardiovascular system, including Marfan syndrome. Patients meet with a cardiologist, geneticist, genetic counselor and social worker who treat each patient holistically. This program, the largest in Illinois, is also conducting research in advanced medical imaging, working closely with pediatric radiologists for interpretation of magnetic resonance angiograms (MRAs).

Cardiology Priority Surgical Opinion We now offer multidisciplinary assessment of patients (including fetal) with diagnosed congenital cardiac disease to families seeking second opinions regarding treatment options. Our team consists of a cardiologist, cardiac surgeon, cardiac interventionist, cardiac intensivist, neonatologist (if age appropriate), child life specialist and advanced nurse practitioner.

NEW LOCATION, NEW OPPORTUNITIES FOR CARE

FACTS bY FLOOR

2001 • Children’s is the first pediatric hospital to earn Magnet status.

2003 • Radiology, Hematology and Cardiology develop a MRI-T2 imaging technology to measure the degree of iron overload in the heart and liver to identify patients at risk for fatal heart disease.

NICU patients are being discharged

sooner with less reliance on medication due to the quiet

environment — allowing them to sleep soundly &

heal faster.

2The Kenneth & Anne Griffin Emergency Care Center increased from 25 to 45 beds to better respond to regional demands. It includes three trauma/procedure rooms, four nurse triage rooms, two diagnostic radiology rooms and one dedicated CT scanner.

5A secured bridge to Prentice Women’s Hospital expedites lifesaving treatments and allows new mothers to be with their critically ill babies.

6Each of the 21 state-of-the-art surgical suites is equipped for advanced minimally invasive surgery, which results in less scarring and a shorter recovery time for children.

12The Family Life Center, a staple of our culture and care for kids, now has everything in one place: separate spaces for infants, teens and parents, as well as a classroom, an art room, a salon and more.

12Nine Sleep Rooms offer families with critical children a home away from home, including a private bed, bath and space for personal belongings — keeping families comfortable and close to their child.

14The 44-bed NICU was designed to enhance healing for newborns. These patients are being discharged sooner with less medication because of the quiet environment that allows them to sleep soundly and heal faster.

15The 36-room CCU combines the technology and expertise of intensive care with pediatric cardiology. This provides highly specialized care for patients with serious heart conditions.

17Every room on the 17th floor is a HEPA filtered, positive pressure room — pushing the air into the hallway and away from the patient, creating a healthy environment for stem cell transplant patients and other immunocompromised patients.

18Together, the 17th and 18th floors house the Center for Cancer and Blood Disorders. The 24-bed hematology/oncology inpatient unit was designed to easily accommodate new technology and is the largest center dedicated to diagnosing and curing childhood and adolescent cancers in the region.

19The Epilepsy Monitoring Unit is flexibly designed and equipped with technology that records visual images of children with complex forms of epilepsy as they go about normal activities. Electrodes feed key information to the surgeon and physician about the precise area of the brain where seizures occur to provide the most accurate treatment.

Page 6: Lurie Children's Important Facts

COMMUNITY bENEFITDespite severe government funding challenges, Lurie Children’s has remained steadfast

in its commitment to partner with the government and others to improve the health and well-being of children locally, nationally and globally. In FY 2012 we invested approximately $118 million in community benefit programs.

Medicaid is the single largest insurer of children in our country, and one in three children in Chicago rely upon the service. Lurie Children’s treats more children

insured by Medicaid than any other hospital in Illinois. because more than 50 percent of our inpatients are insured by Medicaid, Lurie Children’s was one of 19

hospitals in Illinois deemed a “safety net hospital” by the state in 2012.

Serving Our CommunitiesOur commitment to care for children extends beyond the walls of the hospital. Our Child Health Data Lab analyzes the causes of illnessand injury, and we use this data in partnership with government and community leaders to create community-based interventions. Examples include the Consortium to Lower Obesity in Chicago Children (CLOCC), which has become a national model for addressing the obesity epidemic, and Strengthening Chicago’s Youth (SCY), a powerful consortium to combat violence in our city.

PATIENT SATISFACTIONIn FY 2012, Lurie Children’s collected information on the patient experience and how we can continue to improve and offer every patient and family a positive experience.

• 85.2% of our inpatient respondents said they would definitely recommend our hospital. • 94% of respondents said the likelihood of recommending the Emergency department was

very good/good. • 95% of our outpatient services respondents said the likelihood of recommending our facility

was very good/good. • 96.7% of our outpatient surgery respondents said the likelihood of recommending our

outpatient center was very good/good.

A new organizational structure was created to better integrate patient safety, quality and experience. With our new structure for clinical excellence, this department will work to hardwire the value of continuous improvement into the entire organization.

WHERE KIDS COME FIRST

2006 • Sookyong Koh, MD, PhD, identifies 12 genes that are impacted by seizures and affected by environmental enrichment. Koh demonstrates the ways in which social isolation contributes to the cognitive and psychological consequences of epilepsy, and how an enriched environment actually reverses the damaging effects of seizures in young children.

2006 • Bruce W. Lingdren, MD, Director of Minimally Invasive Urological Surgery, performs the first pediatric urological surgery in the Chicago area with the Da Vinci® robot-assisted surgical system. The Da Vinci® system translates the surgeon’s hand movements to three interactive robotic arms and can move in a tiny surgical area with more precision and greater range of motion than the human wrist.

ADvOCACYThe leading causes of adverse health and social outcomes to children and youth stem from environmental, behavioral, educational and socioeconomic risk factors. We use a public health model that emphasizes prevention and health promotion in the community and new policies to address these risks. Areas of emphasis include injury prevention, chronic illness, HIv and school health.

In the past three years, the hospital’s Injury Prevention and Research Center assessed the quality and safety of every playground in Chicago public parks. In partnership with the Chicago Park District and Friends of the Parks, we are utilizing the results of these assessments to make improvements where deficiencies were found. The Kohl’s Cares for Kids Safety Network funded the study, which was published in Pediatrics.

We also advocated for the passage of the Emergency Epinephrine Act to increase access to Epinephrine Auto-Injectors, or EpiPens, in Illinois schools to better protect the rising number of children suffering from

deadly food allergies. We are working with Chicago Public Schools to evaluate the implementation and impact of this legislation.

Page 7: Lurie Children's Important Facts

2008 • Craig B. Langman, MD, current Head of the Division of Kidney Diseases, is the first in the U.S. and among the first in the world to treat a child suffering from osteogenesis imperfecta (OI) with an oral medication called alendronate, usually used to treat osteoperosis in adults.

2010 • Research led by Earl Cheng, MD, and Arun Sharma, PhD, develops a medical model for regenerating bladders using stem cells harvested from a patient’s own bone marrow —another step toward new organ replacement therapies.

2012 • Our name has changed, but our tradition of excellence through clinical innovation continues.

FAMILY SERvICESOur trained professionals offer multiple creative and educational programs, activities and resources, helping hospitalized children and their families emotionally, socially and developmentally. A majority of Family Services programs – and all of our Children’s Services programs– are funded through philanthropic support.

At the heart of our approach to family-centered care are people, programs and places. Here are just a few of our unique programs:

Skylight TV One of the first of its kind in the country, Skylight Tv is the hospital’s closed-circuit, interactive television station available in patient rooms. Skylight Tv produces four live shows every week and plays videos throughout the day, giving patients another outlet for relaxation and distraction.

Interpretation ServicesOver 16 percent of our patients indicate a language other than English as their primary language. Our team provides immediate access to interpreters through a combination of in-person, video or telephonic interpretation.

We can interpret most languages, with close to 200 languages available from any hospital phone. Our network of external language service providers have been able to successfully provide interpreters in even the rarest languages. Interpretation services has dedicated interpreters for critical care, pre and post procedural services, pediatric surgery and the emergency department. We provide materials in Spanish, including consents, discharge instructions, health education, web tools and more.

RONALD MCDONALD HOUSE & SLEEP ROOMS

Last year, more than 1,200

volunteers gave 62,000 hours of their time for play activities, respite to parents and other

services.

Just weeks after the hospital moved, the newest Ronald McDonald House opened its doors only blocks away. The Ronald McDonald House® near Lurie Children’s, currently the largest in the nation, prioritizes its 66 rooms to families of Lurie Children’s patients. Although significant in size, its unique design is meant to nurture and care for families who need it while maintaining a home-like feel. Since opening its doors in June, the House has not turned away a Lurie Children’s family.

In addition to the House, Ronald McDonald House Charities® of Chicagoland & NW Indiana also operates nine Sleep Rooms inside the hospital for families of the most medically fragile patients. The rooms offer families private spaces with a bed and bath.

Of the 209 families who checked into the Sleep Rooms in 2012, 45 of them (approximately 20%) transferred to the House for longer term stays. The majority of the patient families were from the NICU and CCU.

From June to December 2012, the House had: • An occupancy rate of 82.2% per night • Checked in 924 families • Over 10,067 family nights • An average length of stay of 11.8 nights • Patients from over 26 services from the hospital

vOLUNTEERSvolunteers serve in a variety of roles throughout the hospital. They are trained and supervised by hospital staff, and are an integral part of the family-centered care that makes Lurie Children’s a place where kids come first. Last year, more than 1,200 individuals provided over 62,000 hours of play activities, rest for parents, hospitality and other services to our patients and families.

An interdisciplinary team of social workers, chaplains, child life specialists and creative arts therapists follow inpatients from diagnosis through discharge. Social workers and chaplains are available 24 hours, seven days a week. Activity coordinators, interpreters, teachers and volunteers help patients and families with respite, distraction, and other needs related to their hospital stay. Together with the patient’s medical team, our family services team addresses the needs of the whole family for the best possible patient experience.

clinical team

patient &

family

creative arts therapists

child life specialists

social workers

chaplains

teachers

volunteersactivity

coordinators

interpreters

The rooftop healing retreat and playroom are just a few of the spaces within the House that provide an opportunity for families to gather and interact with each other for support.

Page 8: Lurie Children's Important Facts

Streeterville

Elgin

ArlingtonHeights

Glenview

WinfieldOak Park

Lake Forest

Lincoln Square

Uptown Lincoln Park

Westchester

New Lenox

Jackson Park

HumboldtParkGeneva

Main Hospital225 E. Chicago Ave.

Outpatient CentersLincoln ParkArlington HeightsGlenviewLake ForestNew LenoxUptownWestchesterWinfield

We also offer outpatient services in Gurnee, Grayslake and Lincoln Square.

Outreach Partner HospitalsLa Rabida Children’s HospitalLurie Children’s at Cadence Health Winfield GenevaNorthwest Community HospitalNorthwestern Lake Forest HospitalNorwegian American HospitalPrentice Women’s HospitalSherman Health (through June 2013)Silver Cross HospitalSwedish Covenant Hospitalvanguard West Suburban Medical Center

vISITING LURIE CHILDREN’S

qUICK LINKS

Visit LurieChildrens.org for information on:

• Parking: luriechildrens.org/parking

• Doctors: luriechildrens.org/findadoc

• Take a Tour: luriechildrens.org/tour

• Donations: luriechildrens.org/givenow

• About Us: luriechildrens.org/facts

• Your Visit: luriechildrens.org/families

• Volunteer: luriechildrens.org/volunteer

Ann & Robert H. LurieChildren’s Hospital of Chicago225 E. Chicago Ave.Chicago, Illinois 60611312.227.4000luriechildrens.org

Join the conversation. Find us on Facebook, Twitter, Pinterest and YouTube to stay up-to-date with news, videos, patient stories, new treatments and more!

(Lurie Children’s neonatologists, intensivists or hospitalists provide on site care.)

Sources for statements printed in this document include internal data for the hospital’s fiscal year 2012 (September 2011 to August 2012), the Illinois Hospital Association COMP data, Pediatric Health Information System data, the United Network for Organ Sharing and the Scientific Registry for Transplant Recipients.

visit luriechildrens.org

/locations for maps, directions

& more.

Lurie Children’s relies on philanthropic funding to enhance its programs and services for children and families. To learn more, please contact Lurie Children’s Foundation at [email protected] or 312.227.7500.

read our blogs.luriechildrens.org/blogs

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