Extending our Services: Reaching out from our National Centre

Georgia Diebel Head of Living Well Services (External)

Penny Brohn Cancer Care

Principle 8: Supporting self management

Supporting self management is about helping people help themselves

through taking action to maximise their recovery and helping them to

sustain that recovery.

Cancer patients should be better informed about the choices they make

to have a positive impact on their future health and wellbeing.

Innovation to Implementation: Stratified pathways

of care for people living with or beyond cancer A ‘how to guide’ 2013

In 1987 Penny wrote…

“If we shift the responsibility for health so that it is

no longer exclusively in the doctor’s hands, but

allow the patient to play a part as well, we go a

long way towards relieving feelings of

helplessness and futility.”

All people affected by cancer can access the

support they need as close to them as possible.

Living Well – our aim

Regional hubs

We established 4 regional hubs in 2012

South West

Midlands

North

London & South East

Support for people affected

by cancer and their loved ones

Living well course design

Living Well aims to help people manage the, psychological emotional, financial, physical, social and spiritual impacts of cancer.

The approach is patient-centred with emphasis on informed choice, personal control and making sustainable lifestyle improvements.

We can design our Living Well course to meet the needs of a specific group; for example courses for prostate, breast and colorectal cancer patients.

We deliver the course in a choice of formats – weekly over 4 or 7 weeks, over 3 days delivered together or 3 days over weeks.

Living well course design

Each course is facilitated by our trained facilitators.It offers peer support, lifestyle recommendations, self-help

tools, and action plan goal setting focussing on:

Nutrition Exercise Relaxation / stress management Emotional support Managing the impact on close relationships Financial / welfare issues

Cancer impacts the whole person

Psychological

Spiritualpurposemeaning

Financial welfare

Relationships

Emotions

Physical

Impact on Whole person

43 trained Facilitators

Training & Development Manager

Attaining Open College Network Accreditation (OCN)

Facilitator training and accreditation

Service implementation

Induction Project planning Identify potential partner(s) Develop partnership opportunity Agree terms Scope venues Notification submitted Central administration Minimum 12 week lead-in time to delivery

Third sector services – part of the personalised care pathway and cancer aftercare services

Part of the responsibility of the team is to build and develop relationships through cross boundary working; in order to foster an understanding and respect for each other’s roles

Cross boundary professional working

Cancer Teams in NHS Trusts & Networks - Hull, Arden, Stafford, Stoke, Swindon, Yeovil, Northwick Park, Southampton and Isle of Wight

Cancer Information Centres -The Mulberry Centre at West Middlesex University Hospital, Dimbleby Cancer Care Centre at St Thomas’ Hospital

Hospices – Great Oaks in the Forest of Dean, St Mary’s in Birmingham, Thames Hospice in Ascot

Local charities e.g Cancerwise in Chichester, The Cancer Support Centre in Sutton Coldfield, Her Breast Friends in Hull and East Riding of Yorkshire

Supra-regional charity - It’s in the Bag, Bristol and South West National charities – Prostate Cancer UK, Target Ovarian Cancer Private health care - Spire

Venues

Social enterprise & local community buildings Training & conference centres Cancer information centres Hospital education centres Hotels

Challenges & learning

Unfamiliar organisation and product HCPs are busy Local LWDM - out of area courses more challenging Local champion(s) to promote/recruit Rural versus central venues Ensure adequate lead-in time Central administration Unpredictable client circumstances

Total no. bookings No. cancellations No. clients accessing follow-on services

No. attendees

Nu

mb

er

of

booki

ng

s

600

500

0

Bookings for external courses

September 2012 to October 2013

400

300

200

100

569

392

177

41

Overall course attendance

September 2012 to October 2013

Very good attendance (9 or more)

Good attendance (7 or 8)

Adequate attendance (5 or 6)

Low attendance (4 or less)

Patient experience

“I attended the Living Well course in January 2013 in Hull. I believe that it was the first Living Well course to be held in the City. I have to admit that I had never heard of Penny Brohn Cancer Care and I had to do a little research on line beforehand.  Although I didn’t know it at the time, I was about to embark on an inspirational journey of discovery and I am so thankful that I was given the opportunity to do so. If the course had not been offered in the North, I don’t think I would ever have learned about Penny Brohn Cancer Care and it’s complementary support.”

Funding

18 month project May 2012 to Oct 2013

Funding for minimum of 32 courses

Aim to deliver 40 courses if additional funding secured

Midlands South West London & South East

South Coast ScotlandNorth

Nu

mb

er

of

cou

rses

12

10

8

6

4

2

0

Seed funding Partnership or new funding

Funding of external Living Well courses

September 2012 to October 2013

Funding of external Living Well courses

November 2013 onwards

Midlands South West London & South East South CoastNorth

Nu

mb

er

of

cou

rses

6

5

4

3

2

1

0

Seed funding Partnership or new funding

External Living Well course costs

Number of courses

Living Well courses began in January 2010

By end October 2011 45 courses August 2012 100 courses October 2013 223 courses

Regional Living Well courses

Carolyn Foster-RichardsNorth

CottinghamHullSheffield

Nicky BancroftMidlands

Coventry

Sutton Coldfield

Birmingham

Nuneaton

Stafford

Leamington Spa

Stoke-on-Trent

Forest of Dean

Cheltenham

Swindon

Yeovil

South West

Southampton

Chichester

Isle of Wight

Portsmouth

Kathy Adams/Moira BremnerSouth Coast

Harrow

WestminsterIsleworth

Hackney

Croydon

Purley

Chesham

Ascot

Supriya MoreLondon & South East

Patient experience

“The Living Well course has shown me how I can help and support myself physically, emotionally and spiritually. It has placed me on a pathway of learning and understanding and allowed me to make choices which have had a positive benefit on my health and which keep my body and mind well.…. And the best thing is, I feel amazing.

Cancer has made a massive impact on my life.  So has Penny Brohn Cancer Care”.