Let’s Share Research!

Public involvement in the dissemination of research

Aims

• Aims:• Why do members of the public need to

be involved in dissemination?• What are the issues, benefits and

challenges of involving members of the public in sharing research findings?

• How can they be involved?

Introductions

Your experiences• Have you shared research findings with the

public?• Have you involved patients and members of the

public when disseminating research findings? • How did you do this?• What worked well?• Were there any difficulties?

Why involve the public in dissemination?

• Ethical reasons• Help summarise research findings in clear

user-friendly language• Ensure that information is accessible to a

public audience• Think of creative ways to engage the public• Share results with their networks• ‘Be noisy’ – create demand

How can I involve the public?• Actively involve and engage with people throughout the research

process: • Ownership• Knowledge

• Include funding for public involvement in dissemination in grant application

• Allocate funding for summaries and postage in grant application• Developing dissemination and impact plans• Presenting at conferences• Speaking to patients, support groups and service providers• Co-authors• Acknowledge contribution• Provide appropriate training and support

• PROUD Study – PrEP as a public health intervention for gay men

• Two films:• Interviews with people who took part in the

trial, doctors, scientists, public health experts and community advocates

• 'Voices of the Participants' exploring the experiences of three of the participants

http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015

• University of Leeds initiative• Research journals hard to access, cost, specialised

language• Aims to improve communication of medical research

to non-specialists:• Reviewing what is good/bad about how existing

research is communicated (e.g. newspapers, videos on internet)

• Compiling new and better ways to communicate research

Other examples….

• PAtient-Centred Trials (PACT)

• CHOICE

Scenarios

• Two scenarios

• Use the dissemination planner to develop a dissemination strategy

Useful links and resources• Involving members of the public in disseminationINVOLVE Briefing note eight:

Disseminating research http://www.invo.org.uk/posttypecycle/disseminating/

In the Loop https://sites.google.com/site/intheloopleeds/

PROUD study http://www.ctu.mrc.ac.uk/news/2015/proud_film_premiere_02072015• Involving members of the public as co-authorshttp

://emahsn.org.uk/images/resource-hub/PPI%20documents/How%20to%20guidance/How_to_involve_people_as_co-authors.pdf

• Plain English summaries http://www.invo.org.uk/resource-centre/plain-english-summaries/

• Developing a dissemination strategyhttps://depts.washington.edu/ccph/pdf_files/CARE_Dissemination_Strategies_FINAL_eversion.pdf

http://www.innovations.ac.uk/btg/resources/publications/dissemination.pdf• Training and support

NIHR Research Design Service North West: http://www.rds-nw.nihr.ac.ukhttp://www.salford.ac.uk/onecpd/courses/preparing-for-patient-and-public-involvement-in-research

North West People in Research Forum contact details

Email: nwpirf@researchnorthwest.nhs.uk

Phone: 0161 935 8433

Website: www.northwestpeopleinresearchforum.org

Twitter: @nwpirf