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eHealth Conference, Barcelona 2010 eHealth Empowering Digital Health Consumers: Eija Hukka Development Manager National Institute for Health and Welfare, Finland [email protected]
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Empowering Digital Health ConsumersEija Hukka
Empowering Digital Health ConsumersEija Hukka
Development ManagerNational Institute for Health and Welfare, Finland
National Institute for Health and Welfare (THL)National Institute for Health and Welfare (THL)• Formed 1 January 2009 through
the merger of the National Public Health Institute (KTL) and the National Research and Development Centre for Welfareand Health (STAKES)
• Operates under the Ministry of Social Affairs and Health(MSAH)
National Institute for Health and Welfare (THL)National Institute for Health and Welfare (THL)• Mission:
• THL promotes the well-being and health of the population, preventsdiseases and social problems, and supports social and healthservices.
• THL carries out its responsibilitiesthrough a wide range of activities: research, evaluation and follow-up, development work, expertinfluence, centralised national services as well as international co-operation.
Key figuresKey figures
• Funding• Total budget in 2009 is 96 million euros: 64% from the State
Budget and 36% from other funding sources
• Personnel• Permanent staff: 927• Fixed-term project staff: 425
• Department of Communication and PR (53 persons)• Customer relations & information steering support• Communications• Web services unit• Publications unit
Preparedness for A(H1N1)v influenza epidemic (swine flu) Preparedness for A(H1N1)v influenza epidemic (swine flu)
• MSAH and THL work closely with the EU Commission and the European Centre for Disease Control
• National Preparedness Plan for Influenza Pandemic in 2006
• instructions to the state provincial offices, hospital districts, educational authorities and places of education, municipal day care authorities and day care units
THL’s roleTHL’s role
• guidelines to hospital districts, which distribute them to health centres together with regional instructions
• centralised communication to the public
Communication to the publicCommunication to the public
• Mass media (regular pressmeetings, newsletters, pressreleases, constant writing)
• Information to different targetgroups
• Print materials (posters, leaflets etc.)
• The influenza telephonehotline
• Outdoor campaign• TV-spots, radio podcasts
Internet communicationInternet communication
• Web pages: • An extensive information
package to the public & health professionals
• Social media: • Banners to the main
channels of social media e.g. Facebook, Messenger, Suomi24 chat
• Videos published in the YouTube
Lessons learned…Lessons learned…
• For the first time in history more people are turning to the Internet than to health professionals for healthinformation
(manhanttanRESEARCH)
• A Survey of Spanish doctors showed that 96% of the doctors have been questioned about information they have read on the Internet by their patients.
(Survey of Spanish docs online, 2008)
• Web Pages are important channels, but notenough…
Lessons learned…Lessons learned…
• Well annotated content improvedTHL’s Google ranking after ”swine flu”was added to the ontology.
• Important to use the terms peopleunderstand (H1N1 = ”swine flu”)
• Consumer focused social media strategy & tools are needed
• ”No single source of informationstands out or stands alone.”
November 2009
The digital health consumerThe digital health consumer
…wants to get the information:• from multiple sources• in understandable form• from peers/family as well as
from experts• whenever he/she needs it• using whatever device
I
The digital health consumer wants a second opinionThe digital health consumer wants a second opinion
But the web is a mess…But the web is a mess…
Semantics is making the web more intelligent and interoperableSemantics is making the web more intelligent and interoperable
Why semantics?Why semantics?
• To share common understanding of the structure of information among people and among computers
• To be able to reuse the content in differentsettings
• To avoid ”re-inventing the wheel”• To better take advantage of the social media
A second generation world widewebA second generation world widewebPeople are:• Seeking information• Sharing their own data &
experiences• Connecting with each
other• Seeking information
published by peers
Anytime, anyplace and any deviceAnytime, anyplace and any device
• Personalized search that finds the rightanswers
• The digital consumer chooses what to believeand whom he/she shares with
• Self-management via web-basedcommunication system
• Facilitating interactive communication & virtualcommunities
• Supporting decision & enabling transactions
Filling the gap between…Filling the gap between…
eHealth Care and the digital health consumer
Using social media in healtheducationUsing social media in healtheducation• Goal: Improve the H1N1
vaccination coverage among the younger generation
• Channels: Facebook and IRC-Gallery
• Online conversation, answeringquestions, quizz, FAQ, videos
• cooperation with the Finnish celebrities
• Partners: MSAH, THL, The Finnish Student Health Service (FSHS), The Finnish Red Cross, City of Helsinki (Net Nurse –service)
The future is social & mobileThe future is social & mobile
• A real-time web is the next logical step in the Internet’s evolution.
-OM Malig, Giga OM (2009)
• eHealth information & services are becoming more• Ubiquitous• Interoperable• Mobile (over 50% of world’s households carry a mobile
device) • Location-based (location awareness)
The future is already hereThe future is already here
”No one knows everything,everyone knows something, all knowledge resides in networks”
(Levy, 1997)