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1 Diversity, Community and Opportunity Meeting the Needs of Those Bereaved by Suicide Chris Bowden Lecturer, School of Education Studies, Victoria University of Wellington. [email protected] & Caroline Cole Counsellor, Skylight, Wellington South, Wellington. [email protected] 2006 SPINZ Symposium: Understanding Suicidal 2006 SPINZ Symposium: Understanding Suicidal Behaviour: Update Your Knowledge and Practice Behaviour: Update Your Knowledge and Practice 29 Nov 2006 29 Nov 2006 Impact of Suicide on Others n Suicidal Behaviour does not just have an impact on the suicidal but has significant impact on others. n The New Zealand Suicide Prevention Strategy states: “Amongst those New Zealanders who make a serious suicide attempt, almost half will make at least one further attempt and one in 12 will die as a result of suicide within five years (Beautrais, 2003; 2004b; Gibb et al 2005)” (Associate Minister of Health, 2006, p.17). n Those who have been bereaved by suicide have often lived with the suicidal behaviour of others. n People bereaved by suicide are at greater risk for: ¤ Developing complicated mourning responses and other psychiatric and medical complications (Jordan & McMenamy, 2004). ¤ Heightened levels of guilt, anger family dysfunction, social stigmatisation and disorders such as traumatic grief and Post Traumatic Stress Disorder (Jordan, 2001). ¤ Increased risk of engaging in suicidal behaviour and dying by suicide (Jordan & McMenamy, 2004). The Role of Postvention – Preventive Interventions n “Postvention is prevention” and an efficient way to prevent future distress, psychiatric disorder and mental health related problems, and even suicidal behaviour and suicide itself (Shneidman, 1981). n Mauk and Sharpnack (1999) define postvention as: (i) a process during which people work towards emotional and psychological recovery and readjustment, and (ii) as the provision of interventions that combine education and counselling that aim to prevent bereavement complications for individuals affected by suicide (including further suicidal behaviour). n The Bereaved By Suicide Support Group recently set up and run by Skylight in conjunction with Victoria University of Wellington was an educational preventive intervention designed to provide postvention and meet a need identified by individuals, clients and the Wellington community. The Need for Collaboration n Designing, implementing and evaluating preventive interventions and support programmes is best done through developing partnerships between researchers and practitioners. n Through collaboration researchers learn more about what works and what is practical and practitioners learn more about research, theory and effective ways of supporting those affected by suicidal behaviour and suicide. n Collaboration and partnerships provides greater opportunities to update knowledge, learn more about effective practice, develop more comprehensive and critical shared understandings. n This means that practice is more likely to be focused on similar goals and be effective. Lessons from the Research Meeting the needs of those bereaved by suicide n Beautrais (2004) in her review and synthesis of the research evidence around the support needs of those affected by suicide identified that support programmes need to meet the following needs of the bereaved: ¤ The need for information, ¤ The need for assistance with practical matters, ¤ The need for contact with others who have been bereaved by suicide, ¤ The need for support with Coroner’s Inquest and official procedures. n Two main differences between bereavement by suicide and other forms of bereavement: ¤ bereavement process tends to be longer after suicide, and ¤ recovery tends to be slower in those bereaved by suicide (Beautrais, 2004). Lessons from the Research Bereaved by Suicide Support Groups should aim to: n Reduce the length of the grieving process for individuals, n Reduce the likelihood of morbidity, subjective stress and other negative outcomes that result from bereavement, n Meet the needs of both individuals and the group, n Identify special populations and those at risk (e.g., those individuals who may be suffering from “severe” and “chronic” grief characterised by enduring symptoms fitting with early diagnostic categories of depression, anxiety and PTSD), n Build social capital and personal capital (resources that influence coping, adjustment and adaptation) by linking people to: ¤ immediate services and generic bereavement services, ¤ shortterm services (e.g., that provide information on suicide an opportunity to talk about how it has affected them, an provide opportunities for individuals to find personal understanding/ put death in perspective and continue on with their lives) and by ¤ longerterm services (e.g., therapy and treatment groups, selfhelp and support groups that will vary in terms of leadership, duration, membership, format, structure) (Beautrais, 2004).

Diversity, Community and Opportunity: Meeting the Needs of Those Bereaved by Suicide

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Chris Bowden and Caroline Cole. SPINZ Symposium, Dunedin, 29 November 2006. http://www.spinz.org.nz

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  • 1. ImpactofSuicideonOthers n SuicidalBehaviourdoesnotjusthaveanimpactonthesuicidalbuthassignificantimpactonothers. Diversity,Communityand n TheNewZealandSuicidePreventionStrategystates:OpportunityAmongstthoseNewZealanderswhomakeaserioussuicideattempt,almosthalfwillmakeatleastonefurtherattemptandMeetingtheNeedsofThose onein12willdieasaresultofsuicidewithinfiveyears(Beautrais,20032004bGibbetal2005)(AssociateMinister BereavedbySuicide ofHealth,2006,p.17). ChrisBowden n ThosewhohavebeenbereavedbysuicidehaveoftenlivedwiththeLecturer,SchoolofEducationStudies,VictoriaUniversityofWellington.suicidalbehaviourofothers. [email protected] n Peoplebereavedbysuicideareatgreaterriskfor:& Developingcomplicatedmourningresponsesandotherpsychiatric CarolineCole andmedicalcomplications(Jordan&McMenamy,2004). Counsellor,Skylight,WellingtonSouth,Wellington. Heightenedlevelsofguilt,angerfamilydysfunction,social [email protected] stigmatisationanddisorderssuchastraumaticgriefandPostTraumaticStressDisorder(Jordan,2001). Increasedriskofengaginginsuicidalbehaviouranddyingby29Nov20062006SPINZSymposium:Understand ingSuic idalBehaviour:UpdateYourKnowledgeandPracticesuicide(Jordan&McMenamy,2004).TheRoleofPostventionPreventiveInterventionsTheNeedforCollaborationnPostventionispreventionandanefficientwaytoprevent n Designing,implementingandevaluatingpreventivefuturedistress,psychiatricdisorderandmentalhealth interventionsandsupportprogrammesisbestdonerelatedproblems,andevensuicidalbehaviourandsuicidethroughdevelopingpartnershipsbetweenresearchersanditself(Shneidman,1981).practitioners.nMaukandSharpnack(1999)definepostventionas:n Throughcollaborationresearcherslearnmoreaboutwhat (i) aprocessduringwhichpeopleworktowardsemotionalworksandwhatispracticalandpractitionerslearnmore andpsychologicalrecoveryandreadjustment,andaboutresearch,theoryandeffectivewaysofsupportingthoseaffectedbysuicidalbehaviourandsuicide. (ii) astheprovisionofinterventionsthatcombineeducation andcounsellingthataimtopreventbereavementn Collaborationandpartnershipsprovidesgreater complicationsforindividualsaffectedbysuicide opportunitiestoupdateknowledge,learnmoreabout (includingfurthersuicidalbehaviour). effectivepractice,developmorecomprehensiveandcriticalsharedunderstandings.nTheBereavedBySuicideSupportGrouprecentlysetup n ThismeansthatpracticeismorelikelytobefocusedonandrunbySkylightinconjunctionwithVictoriaUniversitysimilargoalsandbeeffective.ofWellingtonwasaneducationalpreventiveinterventiondesignedtoprovidepostventionandmeetaneedidentifiedbyindividuals,clientsandtheWellingtoncommunity. LessonsfromtheResearchLessonsfromtheResearch Meetingtheneedsofthosebereavedbysuicide BereavedbySuicideSupportGroupsshouldaimto: n Beautrais(2004)inherreviewandsynthesisoftheresearchevidencearoundthesupportneedsofthoseaffectedbysuiciden Reducethelengthofthegrievingprocessforindividuals,identifiedthatsupportprogrammesneedtomeetthefollowingneeds n Reducethelikelihoodofmorbidity,subjectivestressandotherofthebereaved: negativeoutcomesthatresultfrombereavement, n Meettheneedsofbothindividualsandthegroup, Theneedforinformation, n Identifyspecialpopulationsandthoseatrisk(e.g.,thoseindividuals Theneedforassistancewithpracticalmatters,whomaybesufferingfromsevereandchronicgriefcharacterisedbyenduringsymptomsfittingwithearlydiagnosticcategoriesof Theneedforcontactwithotherswhohavebeenbereavedby depression,anxietyandPTSD), suicide, n Buildsocialcapitalandpersonalcapital(resourcesthatinfluence TheneedforsupportwithCoronersInquestandofficial coping,adjustmentandadaptation)bylinkingpeopleto: procedures. immediateservicesandgenericbereavementservices, shorttermservices(e.g.,thatprovideinformationonsuicidean n Twomaindifferencesbetweenbereavementbysuicideandotheropportunitytotalkabouthowithasaffectedthem,anprovideformsofbereavement:opportunitiesforindividualstofindpersonalunderstanding/putdeathin bereavementprocesstendstobelongeraftersuicide,andperspectiveandcontinueonwiththeirlives)andby longertermservices(e.g.,therapyandtreatmentgroups,selfhelpand recoverytendstobeslowerinthosebereavedbysuicide supportgroupsthatwillvaryintermsofleadership,duration,(Beautrais,2004). membership,format,structure)(Beautrais,2004).1

2. LessonsfromtheResearch TheProgramme Beautrais(2004)suggeststhatthosedesigninganddeliveringBereavedbySuicideSupportGroupsshouldconsider: n 6weekprogrammeEducationalpreventive n Includingaapretestandposttestmeasureinordertoevaluate intervention.interventionchanges(e.g.,ameasureofgriefexperience,distressetc),n 2hrspersession,79pm. n Considerthenumberofsessions, stndn 1 hrInformation/skillbasedand2 hrEmotional n Considertiming(soonorlateronsomeevidenceearlierinterventionsaremoreeffectivebutdependsonreadinessofparticipants),supportfocusedcomponent(educationaland n Considerdifferenttypesofprogrammesfordifferentgroups(i.e.,counsellingapproach).malesandfemales,youthvsadults), n Considerdifferenttypesofprogrammesandinterventionswithhighn Facilitatedbyexperiencededucatorandriskandlowriskindividuals(importanttoscreen/assessparticipantsbeforeselectionforgroupformentalhealthissuesthatcouldberiskcounsellor.factorsforfuturesuicidalbehaviour) n Supportthedevelopmentofnaturalhelpersfamily,friends,n Closedgroup(commitmentto6weeks).neighbours,peers,employers.n Participantsvolunteered. AimTheStrategyTohelpthosebereavedbysuicidetodevelop:n Understandingof:Providethosebereavedbysuicidewith: Griefprocessn Factualinformationaboutsuicide,grief,copingstrategiesand Suicideresources.n Asafe,respectfulandnurturingenvironmenttotalkabouttheirn Skillsandstrategiesfor: experienceswithothers. ManagingGrief. n Opportunitiestolearnmoreaboutsuicideandwaystounderstandit Maintainingpersonalwellbeing.andputitintoperspective. Protectingselfandothersandimprovingfamilyfunctioning.n Opportunitiestolearnandsharestrategiesforenhancingindividual Developingpersonalandsocialresourcesandsupport. andfamilyfunctioning,dynamics,communicationandwellbeing(to reducerisk,assistwithearlyidentificationofatriskindividuals,and promotepositivesocialandindividualcapitalandselfcare).n Ultimatelytoreduceriskofnegativeoutcomes,bereavementtime, shortenrecoveryandreduceriskoffuturesuicide.n Addresssocialinequalitiesfreetobereaved,appropriatetimeand accessiblelocation(doneinconsultationwithbereaved)n LinkbereavedwithSkylightandotherservicesthatcanprovide ongoingsupportandaccesstoresources.ApproachContentn Responsiveandflexibleapproach.n Respectfulofthediverseneedsandwaysthatpeoplerespondtosuicideand n MeetingthechallengeofDESIGN learn.n BasedonNewZealandreviewofresearch(Beautrais,2004).n Safetyandeffectivenessdonoharm.n Aspectsofprogrammebasedoninternationalresearchandpractice(Murphy,n Strengthsbased. 1996Murphyetal.,1996,1998,1999)n Informedbythefollowingconceptsandprinciples: Communitybasedpreventiveintervention. Griefisanactiveprocessoflearning,relearningandresocialisation. 2dimensionalsupportprogammesfollowingsuddenorviolentdeathsofRelearningprovidesunderstanding,allowsindividualstoaddresstheirchildren(includingsuicide).helplessnessthataccompaniesgrievingandprovidesaframeworkforsupporters/caregivers(Attig,1996). Informationalskillbuildingsupportandemotionalsupportprovided(both ratedhighlybyparticipants). QualitysupportprogrammesprovidebotheducationandcareorEducare(Smith,2003). 12weekand10weekprogrammes(510parentspergroup). ThefivestrandsoftheearlychildhoodcurriculumTeWhriki: (Ministryof Offered4mthsafterbereavement.Education,1996):belonging,wellbeing,opportunitiestoexploreand Goodmeasuresusedtoassessoutcomesonmentaldistress,Postlearn,communication,andresponsibility. TraumaticStresssymptoms,lossaccommodation,physicalhealth,marital Learningenvironmentsareculturalsiteswhereindividualssocially rolestrain.negotiatethemeaningofexperiencesandlearnhowtoadapt,use Pretreatmentvariablesassessed,controlgroupsused.strategiesandculturaltoolsthroughinteractionsandthroughtheuseof LongitudinalstudiesFollowedupparticipantsat4,12and24mthspostscaffolding(Smith,2003,Santrock,2004).deathaftercompletingprogramme. Akototeachandlearn(Williams,1992)aprocessofreciprocal Mixofquantitativeandqualitativemethodsforevaluation.teachingandlearning(Glynn,1993).Facilitatorsandthebereavedwork Promisingresults(particularlyhighlydistressedwomenbutalsoformen).togetherinanintegratedwaylearningandteachingeachother.AkoAkowhichimpliesamutualteaching/learningdiscussion(Williams,1992). 2 3. ContentofModulesSession 1Module Introduction ObjectivesIndiv idual,groupandprogrammeInformationContent Definingbereavement,grief,SkillEmphasis IdentifyingfactorsthatinfluenceEmotionalComponentShar ingexperiences,building Recruitment&Screeningobjectivesmourning duration,extentandoutcomesoftrustSettinggoals&boundariesbereavement Sourcesofsupport nInitially,supportgroupadvertisedthroughnewspapers,funeralhomes 2TheGrieving Pr ocessUnderstandingdiversityingrief,w hatisnor mal,cognitive,emotional, Griefreactions GriefMapping How griefaffectsus Realisticexpectationsf orgriefDiscussingcommonanduniqueaspectsofgrief andemailnetwork(poorresponse).social,physicalreactions gender,individualandfamilyLearnnew strategiesfor managing AccommodatingGriefmodel DifferentGrievingstyles accommodationandfunctioning Strategiesformanaginggrief differences nBetterresponseusinglocalradio,friendsandcolleaguesinformedgrief intuitive,instru mental,dissonantImpactonfamilydynamics familymembersandparticipants.Participantsslowtoregister. 3Understanding Suic ideUnderstandingcomplexcauses,developingapersonaltheory,putting Theories,modelsand explanations,r iskandprotective Developingpersonaltheory, PuttingsuicideintoperspectiveDealingw ithWhy?Guilt,responsibilityandunfinis hed nPotentialparticipantsnonclinicallyscreenedandaskedforsuicideintoperspectivefactorspracticalw aysoftalkingaboutand explainingsuicidetoothersbusinessManagingstrongemotions backgroundinformation(didnotusescreeningquestionnaireasthis wouldputoffindividuals). 4Respondingto Understandinghow suicideaffectsEffectsonchildre n,yo uth,others Ex plaining&talkingaboutsuicide Copingw ithchangeinfamily Othersothersandoursocialnetw orks Ec omapofimpactofsuicideonModellinggoodgrieving Helpfulandhurtf ulresponsesnDecisionmadetoexcludethosebereavedforunder6mths,theywereHow todealw ithunhelpfulresponsesbyothers relationsh ips Identifyingw aystostrengthen socialsupportnetw orkbyothersWaystocommunicateneeds offeredalternative1:1supportandfamilycounsellingofferedtothose 5Self Care&Learningmore aboutw hatsupports TeWhareTapaWhamodelof Assessingandmeetingneeds Dosingfeelings, managing wantingsupportforchildrenandyoungeradolescents. Supporting Othersandcompromisesw ellbeingAdaptive&maladaptivestrat egies w ellbeing Import anceofrituals Recognisingriskinself&others Achievingbalanceandconnectionthoughts,behaviours nIndividualsweremonitoredduringsessionsforsignsofsevereand How tosupportfamilymembers Identifyingprotectivefactors chronicgrief,symptomsofdepression,anxiety,PTSDandother 6LookingAhead Achievingafutureor ientedfocusRevisitingGriefMap Recognisingw hen,w here,how toRenegotiatinganew mentalhealthproblems(oneparticipantwassubsequentlyreferredtoIdentifyfactorsthatcontributetoresiliency TheChallengeModel SourcesofInfo&Support gethelp Repositioning,r edefiningselfrelationsh ipw ithdeceased,preservingmemories GPandcounsellorafterdisclosingsymptomsofPTSD). Identifyingfuturetas ks,skillsand Whathashelpedthem support bounceback,Hopesforfuture 7datacollection Closureforgroup,chancetofeedbac k evaluation Participants DeliverynClosedgroup.Firstnight,someparticipantswhohadregistereddidnotshowup,othersshowedupwhohadnotregistered.2leftafterfirstnight(citing nMeetingthechallengeofDIVERSITYrdgroupdidnotmeettheirneeds),2othersjoined3 week(oneparticipantfeltthiscompromisedtrustofgroup). nDemonstratedtheyhaddiversegriefexperiencesand nGroupruninSkylightsWellingtonSouthOffice,groupseminarroom. supportneeds.Accessibleparkingandpublictransport,resourcescentre(librarywithbooks,videos,DVDs)available. n7groupmembers(2male,5female). nst1 hourdiscussinformationandskillbuilding(someskillsdiscussed,modelledandpracticedothersintroducedandcriticallyreflectedon). nAgesrangedfrom2050yearsofage.nBreakteaandcoffee,informallearning&sharingopportunities. nLengthoftimebereavedrangedfrom7mthsto8years10nnd2 houremotionalsupportfocusedonsharingexperiences,obtaining mths. feedbacktofacilitatereframingaspectsofsuicide,sharingstrategies.nBothprogrammecomponents(information/skillbuildingandemotional nPredominantlyPakeha/NewZealander. support)implementedjointlybythe2facilitators(educatorandcounsellor).nEndofeachsessionparticipantsaskedtoidentifytheirsupportpeople,future nManyhadchildrenandfamiliesoftheirownandwereactivities,taskstheywouldworkonandstrategiestheywouldpracticeforthe managingtheirowngrief,familyrolesandwork.followingweek.nFinalmoduleparticipantswereprovidedwithfolderwithmodulesummaries, nGroupranTuesdays79pmfor6weeks,timeandday generalresources,factsheets,sourcesoffurtherinformation,andalistof suitedgroup,childcarearrangementsandtravelling.contactsanddescriptionsforcrisisandsupportservices.nInitiallyitwasenvisionedthateachmodulewouldbeevaluatedweekly,butparticipantsindicatedtheywouldpreferminimalpaperworkanddecisionwasmadetoevaluatemodulesatendofprogramme.TheRippleEffect Evaluation nMeetingtheneedsoftheCOMMUNITY nBackgroundsandExperiences:Howsuicidehadaffectedthem.FocusedonperceptionsofParticipantsof: MotherandDaughterson/brotherdiedbysuicide,fathernotcopingathome. n Information/Skillbuildingcomponent Twobrothersbrotherdiedbysuicide. Relevance(usefulness), Widowedmotheroftwochildrenhusbandsuicided. timingand Youngwomangrandfathersuicided,hushedupbyfamilyandthen understandingofcontentandskillspresented.mothersuicided. Opportunitiesforlearning(whatwaslearnt). Middleagewomansonsuicided.n Emotionalsupportcomponent nMosthadlivedwithsuicidalandselfharmingbehaviourforsometime. Whatthegroupexperienceandfacilitatorsprovided(basedonYaloms nTheysawthemselvesasdifferenttootherfriendsandextendedfamilywho1985,therapeuticgroupfactors). hadalsobeenbereavedbysuicide(didnotwantsupportpeople/natural n Facilitation helperscomingtothegroup). Leadershipandexpertiseoffacilitators. nAllwereconcernedabouttheeffectsofsuicideonotherfamilymembers, n UsefulnessofthePreventiveIntervention familyfunctioning,futureriskparticularlyonchildren. Mostandleastusefulaspects nGainedeachotherstrustquickly(within2weeks). nInitiallysomeparticipantswantedaneducationalapproach(learning),others wantedamorecounsellingapproach(sharingexperiences),somewantedn5pointLikertScaleitems both.nOpenEndedquestions nStartedcurryclubmetsociallythehourbeforethegroupinlocalIndian restaurantfordinner. 3 4. Information/SkillBuilding Relevance&Timing n Relevanceofcontentandinformation:Alltheparticipantseitheragreedorstronglyagreedwiththefollowingstatements: Component themajorityofmaterialpresentedwaspersonallyuseful themajorityofmaterialwouldbeofusetootherpeople n Mostrelevantmodules: theskillstaughtandmodelledinthemodulesareuseful Module4Respondingtoothers(100%) n Timingofcontentandinformation: Module5Selfcare&SupportingOthers(100%) Module6Lookingahead(83%) early(n=1bereaved5years) Module3Understandingsuicide(67%) attherighttime(50%,n=3,bereaved8years,bereaved9mths,bereaved Module2TheGrievingProcess(50%)7mths) Module1Introduction(50%) late(n=1,bereaved8years10mths) n note2participantsmissedmodules1&2 muchtoolate(n=1,bereaved8yearsandsecondsuicide8+years) n Whenaskedabouttheirperceptionsofthemostappropriatetimingof n Whatwasmostrelevantandwhy?workshopsforotherpeoplebereavedbysuicide: Understandingsuicide[module3]andtheGrievingProcess[module2].Thisprovided mostusefulforthosebereaved46mths(33%,n=2)mewithinformationthatIknewIcouldtrustandinacontrolledandsafeenvironment.Withsomuchinformationavailableitisdifficulttofindconstructive, mostusefulforthosebereaved79mths(50%,n=3)helpfulinfoetc.Thisgroupgavemeanopportunitytoaskquestionsandclarify mostusefulforthosebereaved1013mths(50%,n=3)whichwasinvaluable(Participant6). Thisisdifficult.UponreflectionIwishIhadthisinformationearlier.However, n Whatwasleastrelevantandwhy? IamunsurethatIcouldhavecopedearliertooraw.Ithinkhavingthese Module3.[Understandingsuicideandputtingitintoperspective]probablytoosoonkindsofworkshopsoccurringregularlyallowspeopletocomewhenthey sincetheloss(Participant2).areready.Theyneedtoknowitsalwaysgoingtobeavailablethough Module2,theGrievingProcessIamfinishedwiththispart.(Participant4). (Participant6).UnderstandingofContentLearningOpportunitiesnLearningOpportunities:Nearlyalltheparticipantseitheragreedorstronglyagreedwiththefollowingstatements: Theworkshopsprovidedopportunitiestolearnskillsandstrategiesformanaging grief. n Understandingofcontent:Alltheparticipantseither Theworkshopshelpedmelearnmoreaboutwaysofmaintainingpersonal wellbeing.agreedorstronglyagreedwiththefollowingstatements: Theworkshopshavehelpedmedevelopstrongerpersonalandsocialresources. ThemajorityofthematerialpresentedisofusetonCommentsaboutwhattheylearntandwhichlearningtoolswereuseful:TheGriefMap inthewaythatitaidedintoworkingwhatwasimportantindealingwith me. grieforsuicide(Participant1). Theobjectivesofthemoduleswereclear.Te WhareTapa Whaconceptwasuseful.MakingaconsciousdecisiontoensurethatIamnurturingmywholebeing.Suicideisincrediblytraumaticandneedsspecial Theworkshopshelpedmeunderstanddifferent treatment(Participant,6). aspectsofthegriefprocess. TheEcoMap Throughhelpinginworkingouttherelationshipswhichareimportanttomeintermsofsocialresources.AndTeWhareTapa Whainrelationtopersonal Theworkshopshelpedmeunderstandsuicideand resourcestheworkshophelpedmeworkouttheimportanceof[having]timeto putitintoperspectivewithinmyownlife.onesself(Participant1) IhavereallyfeltlikeavictimoverthepastfewyearsandwiththatIhavefeltquite depressed.IsleptALOTandstilldo.ByworkingandschedulingtimetohealIhave givenmyselfpermissiontogrieveandstartaroadtorecovery(Participant6). EmotionalSupportComponent EmotionalSupportComponentn TheExtenttowhichthegroupprovidedemotionalsupport:Nearlyallthen The9therapeuticfactoritems(Yalom,1985)weremeasuredbyparticipantstickingthe participantseitherstronglyagreedoragreedwiththefollowingstatements: followingthatappliedandstartedwithacommonstem: Theworkshopsandsupportgroupprovidedasenseofcommunityand belonging. Themembersofthegroup Theworkshopsprovidedanonjudgementalenvironmentforsharing Helpedmewanttoforgetmyselfandthinkofothers(Altruism)(50%,n=3). experiencesandexpressinggrief. Helpedmesaywhatisbotheringme(Catharsis)(50%,n=3). Theworkshopsprovidedanopportunitytosharediverseexperiences, AcceptedmeasIam(CohesionItem1)(100%,n=6). needsandperspectives. HelpedmefeelIbelongevenwhenIrevealedembarrassingthingsaboutmyself Theworkshopsprovidedasafeenvironmentfordiscussingfearsand (CohesionItem2)(67%,n=4). concerns. GaveadvicewhenIaskedforit(GuidanceItem1)(17%n=1). Theworkshopsgavemehopeandhelpedmeseebeyondsurvival. GaveadvicewhenIdidntaskforit(GuidanceItem2)(17%n=1). Helpedmeseethatothershavesolvedproblemssimilartomine(Installationof Fourofthesixparticipantsstronglyagreedoragreedthatthey hadlearntahope)(50%n=3). lotfromtheothergroupmembers. Recognisedwhensomethingwastroublingme(Interpersonallearning)(0%). HelpedmefeelthatIamnotalone(Universality)(83%n=5).Whathaveyoulearnt?Other BasicallythatsuicideisnotaneventthatjustIhaveexperienced,andalotof Offeredusefulstrategiesandsuggestions(Interpersonallearning)(67%n=4). peopleincludingthoseinthegrouphavehadthesameexperience Helpedmefeelnormal(Destigmatisation)(83%n=5). (Participant1).WeareatdifferentstagesofthejourneyandthisallowedbothunderstandingtooccurIhavelearntthatthereareveryuniquefeelingsassociatedwithbereavement butatthesametimeallowedmemberstolearnfromeachotherin ameaningfulbysuicide.Thatthereisenormousvalueinbeingabletoconnectwithothersway(Participant6)whohaveexperiencedsuicide(Participant6).4 5. WhatWasImportant Facilitation n QualityofFacilitation:Nearlyalloftheparticipantseitherstronglyagreedoragreedwiththefollowingstatements:Belongingto Thefacilitatorsareinterestedinandsupportiveofourgroup.acommunity Thefacilitatorswereabletocommunicateinformationandideasclearly.Acknowledge Addressing Thefacilitatorsexpertiseaseducatorsandcounsellorswerevaluable. needs stigmaperspectives Thefacilitatorsencouragedparticipationindiscussions. Thefacilitatorsencouragedexpressionofdifferencesinopinionsamongstparticipants.Sharing Thefacilitatorsencouragedparticipantstothinkcriticallyaboutthetopicscovered.AcceptanceExperiencesofDiversityParticipation Thefacilitatorsencouragedparticipantstothinkcreativelyaboutwaystoworkonpersonalissues. ThefacilitatorsencouragedparticipantstoidentifystrategiesformanaginggriefandTheBereaveddealingwithissues. Overall,howsatisfiedwereyouwiththefacilitatorsdeliveryofcontent?(67%veryGainingsatisfied,17%satisfied,17%neutral/notsure).FactualControlinformation Autonomy n Whatsuggestionsdoyouhaveforimprovingthefacilitationoftheworkshops? Moreinteractiveactivitiesbetweenthegroup(Participant1)Seeing LearningapossibleStrategies None.Thismusthavebeenanexhaustingandchallengingcoursetorun.The Ideasfuture fromothersinformalityofitallwasgreat.Yougavepeopletimetoreflectandthinkaboutwhat &thinking Challengedwasimparted.Youallowedpeopletocryandallowedpeopletosetthepace.Ifeltagenuinedesirefromfacilitatorstobethere.Itdidntfeellikeyouconsideredthiswork.Thankyou!(Participant6) UsefulnessoftheProgrammeOutcomes n Foroneparticipantitwasaboutrecognisingthatshehadneeds,andneededn Whichpartwasmostbeneficial? toprioritiseherwellbeing(notjustfocusonmeetingtheneedsofherchildand 33%Information/skillbuildingcomponenthusband). 33%EmotionalSupportcomponentn ThemoduleonselfcareledoneparticipanttoidentifythatshehadsomeofthesignsandsymptomsindicatedthatwerelinkedtoPTSD.Asaresultthe 33%bothpartsfacilitatorswereabletoencouragehertocontactherGPandalsodiscussherexperiencesandsymptomswithhercounsellor.n Whatdidyoufindmostuseful? n Oneofthemenwasabletoputsuicideintoperspectiveandlearnhowsomeaspectsofsuicidalityarenonobservable(relievinghimofguilt).Healso TheTeWhareTapaWhamodellearningwaysinwhichtocreate identifiedapracticalwayofmaintainingapositiverelationshipwithhis abalanceinyourlife(Participant1).deceasedbrotherandincludinghiminhischildrenslifebymakingamemory BeinginaroomwhereeveryonedidunderstandwhatIwas book. feeling(Participant2).n Foranotherparticipanttheworkshophadhelpedherrealisehercounselling Hearinghowothersfeltandcoped(Participant5) wasworkingandtherightchoice,andbytheendshehadstartedtomoveawayfromafocusonherselfandherneedstohavingsomeempathyand BeinginanenvironmentwhereIcouldforthefirsttimepullback beingabletofocusonotherswhichwashealthyforher. thelayers,removethemaskandshowothershowIreallyfelt Weallcameinwithourownneeds.ItwasallaboutmewhenIfirstcame. (Participant6). Wearenowabletoempathisewithothers. n Foroneparticipantthegrouphadprovidedherwiththeability totalktoothersn Whatdidyoufindleastuseful?aboutsuicideandherexperiencewithmoreconfidenceandobjectivity. ImactuallyOKtotalktopeopleaboutitnow.W hichisamazing.Itgives Peoplecomplainingaboutotherpeoplenotdoingenoughabout youconfidencethatitsOKforyou.NowImpartofacommunity.Itallsuicide(Participant5)helpedmeIammoreobjective.Theemotionsdonttakeover. TheirWords:TheFeedbackSessionTheirWords:TheFeedbackSession n Usefullearningtoolsn Opportunitiestolearn,share,reflectandprocess Thegriefmapwasreallyuseful.IrealisedIhadbecomeamorefearful Ithasbeengreatbeingabletolistentootherpeoplesexperiences anduntrustingpersonandthatIneededtoworkonthat.andtotalkaboutourexperiences Ifoundthemodelreallyuseful(TeWhareTapaWha).Ihaveneverreallylookedatbalancewithinmylife.Younevergettoascertainwhatyouare Yeah,alotofwhatwetalkedaboutdidntsinkinuntilwewere doingthatcontributestoyourwellbeing.IthelpedmerealisethatwhatIdrivinghome.OrlaterintheweekIdbethinkingaboutwhatwe waseatinganddrinkingwasnthelpingandnowItakebettercareofmyweretalkingaboutanditwouldmakesense. physicalneeds.n Belongingtoanactivecommunity IwashorrifiedwhenyousaidIwouldnevergetoverit.Themodelwiththecircles(griefaccommodationmodel)helpedmerealisethatitnever Itisgoodtobepartofacommunityandbewithpeoplewhohave goesaway.Lifejustgrowsaroundit.Itwasreallyimportant.Ihavedayshadsimilarexperiences likethatnow.Thatisreallyhopeful.n Theimportanceofscreening,monitoringanddeveloping n Theimportanceofastructuredprogramme trust Havingastructuredmoduleisgood.Thatiswherethehealingstartedforme.Itvalidatedmyfeelingsseeingthemupthereonthescreen.Thats Thefirstsessionwasreallyintense.Iwasntgoingtocomeback. whentherealworkstarted.HavingtheopportunitytogetinformationbutBecausesomeonegotverypersonal.Youneedtobeabletoalsotoshareexperienceswasreallyimportantmonitorthat. ItwasreallygoodhavingthatfirstsessionandseeingwhereI couldgo.I Youcoulddoaquickonetooneattheendofthefirstsessionto neverthoughtthatIwouldevergettothepointwhereIwouldbereadyto seehowpeoplefeel.Youcouldusethistoencouragepeopletomoveforwardwithlife,butitwashopefultoseeitthere. comebackandchecktheirsafety. Hearingthatitwasgoingtobeinlecturestylemadeitsafeforme.Iknew YouneedthesixweekcoursetobuildthetrustIdidnthavetoparticipateifIdidntwantto.Itsaboutlearningaboutsuicideanditsaboutinformationgivingandformenthatmightbesafer.5 6. TheirWords:TheFeedbackSessionTheirWords:TheFeedbackSessionn Accesstoinformationandsupportn Facilitatorsgender Itsaboutcatchingtheinformationattherighttime.Therearepeaksand Itsgoodthatyouareabloke.Yourepresent. troughswhenyouneedthatinformationandcontact.W eneedtoknowits Theresagoodbalancehavingamanandawoman. thereandthatwecanaccessitwhenweneedit Funeraldirectorsarepeoplewedtakeinformationfrom.Youdevelopa Ifyouwereaguyandyoucameandyoufoundtheresaloadofspecialrelationshipwiththemandtheyarethereforyouatthetime. womenhereyouwouldntwanttocomeback.Ifhe(talkingabout Atthetimeyoudontwanttoreadit.Icouldnthavetakenitin.Butlater herpartner)washereandheardyoutalkingabouthowpeople onImighthavelookedatit. drinktogivethemselvespermissiontocryandgrievealightwould Everyoneisdifferentinrelationtothetimingofinformation.Itsabout havegoneonforhim. repetition.Itsaboutavailabilityn Ongoingneedsforcommunication,contactandsupport Thereneedstobesomethingprovidedforthosewhohavechildren.W e Anyfamilyaffectedbysuicideneedsregularcommunication.Atleasthavechildcareissuesandbabysitterstoarrangeandpay. onceaquarterforthefirstthreeyears.Theyneedtoknowwhatresourcesn Differentgroupsfordifferentpeopleandpurposes areoutthereandwheretofindsupportwhentheyneedit. Whynotsendanemailthatjustsayshello.Wehavebeenthinkingof Iwouldsuggestaseparategroupforteens.Theyhavedifferent you.Thatgivespermissionforthemtogetintouchormakecontactiftheyissuesandneedtobesupportedindifferentways needsupport.Youknowlikethoseemailsyougetfromfriendsoutofthe Aftereverysixweeksofworkshopsthecommunitygetsbigger. blueeveryonceandawhile.Thenyoucouldhaveamonthlymeetingorgroupforthosethat Thereisaneedforacasualsupportgroup.Peopleneedtoknowthathavecomethroughtheworkshops.Justleaveitopensopeople theresaregularvenueandatimethattheycandropinwhentheyneedit.frompreviousgroupscancomeornot.Itstotallyuptothem Theyneedtoknowtheressupportavailableforthem.Theyneedaplace wheretheycanbearoundpeoplewhounderstand.KeyFactorsintheSuccessoftheDesign&Implementation:MessagesfromtheBereavedProgramme Dontwantsupporterstocometogroupforbereaved,unlesstheyn Informedbybutnotconstrainedbyresearchbalancebetweenwhatisarecomingtodealwiththeirowngrief. suggestedinresearchandtheoryandwhatispossibleinpractice. Trust(keepthegroupclosed)6weeksisgoodcommitmentton Notlosingsightofprioritiesthedesireforresearch/evaluationversusmeeting make. theneedsofthebereaved. Screenparticipants(wedontwanttobeexposedtovulnerablen Expertise,professionalismandexperienceoffacilitators. people).Lettingpeopleknowthatitisgoingtoberunbypeoplewhohaveexperiencedsuicideis Acceptance(itsOKtohaveadiversegroupaslongasthereis important.Ithinkhavingfacilitatorswhocouldinputpersonal expertisewasbeneficial (Participant6). maturity,respectandacceptance).n Collaborationandworkingpartnerships. Moreinteractionandgrouptasks(aswellassomediscussionandn SkylightandVictoriaUniversityofW ellingtontakingtimetobuildrelationships,informationproviding). understandeachothersstrengths,negotiatetimelines,reviewingmaterialProvideuswithOPPORTUNITIEStoregaincontrolandtolearn togetherandallowingeachothertoworktotheirstrengths. Needforinformallongtermgroupaswellasclosedshortterm group.TheNewZealandSuicidePreventionStrategystatesthat: Keepinregularcontactwithus:letusreconnectifweneedto.Serviceswillbemosteffectivewhentheyarecoordinated,integrated,andwhere peopleclearlyunderstandeachothersrole.Thisrequirescollaborationacross n Otherkeymessages sectorsandcommunities,andbetweengovernmentandnongovernment organisations(AssociateMinisterofHealth,2006,p.14). SuicidebereavementISdifferentbecausesuicideisaformof rejection.Illnessandotherunexpecteddeathsdontinvolve rejection. DesignandImplementation:Messages fromUsMessagesfromUsn Needflexibleapproach. Planning Considerwhat Understandtheproblemandbestn Advertisingwordofmouth,reputationisimportant. researchsuggests, ResearchProblemtheory whatpeopleneed, Programme waystoaddressit n Diversity desirablevsdoabletheoryn RepresentAddressingmensparticipationneeds.n Communityn Choosewhoandwherecarefully. CollaborateTraining Considerprinciples Considerthe Evaluation&update ofpracticen Ako flowoflearningandteachingbetweenall. purposeofProcessknowledge evaluation andOutcomeConnectofbest Ako,Learning,n OpportunitypracticeReducingrisk n CreateSpace Allowthebereavedtogainsomecontrolif youwantthemtohavemorecontrolintheirlives.n InformalrelationshipsarewheresharingandlearningalsoConsiderAccess, Delivery Design occurs. AimsFlexibility,Responsivity Monitor& collectdata Content ConsiderQuality,n Involveothers,selfcare(avoidingfacilitatorburnout)soParticipantANDEvaluation Timing,Groupsandthatgroupwilllast.Programmedriven Sustainability 6 7. Conclusions PostventionisPreventionn Importanceofintegratingresearchandpractice. n Postventionispreventionbutthereisnosinglebestapproachthatwillworkwithallindividualsandgroupsandineverycommunity.n Collaboratingandpartnershipsimportantfor n Theresearchcanandshouldguidepracticebutpracticeshouldalso effectiveness,responsivityandsustainability. beresponsiveandbasedoncriticalassessmentoftheneedsofthebereaved.n Educareprovidesagoodframeworkfor reducingriskandimprovingwellbeing(protect,Tosummarize,itseemslikelytousthattheonesizefitsallapproachtounderstandingandinterveningwithsurvivorswhichhasbeendominant educate,empower).sincetheinceptionofmodernsuicidology needsconsiderablen Bereavementbysuicidemayinvolvealossofrefinement(Ellenbogen&Gratton,2001) controlandautonomyandindividualsneed(Jordan&McMenamy,2004,p.345). compassion,assistanceandopportunitiesto movebeyondsurvivaltorelearnhowtolive.Referencesn AssociateMinisterofHealth.(2006).NewZealandSuicide PreventionStrategy20062016. Wellington:NewZealand.Available fromhttp://www.moh.govt.nz/moh.nsf/indexmh/nzsuicideprevention strategy20062016 n Mauk,G.W.&Sharpnack,J.D.(1999).Alightuntothedarkness:Then Attig,T.(1996).Howwegrieve:Relearningtheworld.NewYork:psychoeducationalimperativeofschoolbasedsuicidepostvention. OxfordUniversitypress.AdolescentPsychiatry,Vol2324:179205.n Beautrais,A.L.(2004).Supportforfamilies,whnauandsignificant n MinistryofEducation(1996).TeWhriki:EarlyChildhoodCurriculum.Wellington:LearningMedia. othersafterasuicideattempt.Aliteraturereviewandsynthesisof evidence.Availablefrom n Murphy,S.A.(1996).Parentbereavementstressandpreventiveinterventionfollowingtheviolentdeathsofadolescentoryoungadultchildren.Deathhttp://www.moh.govt.nz/moh.nsf/0/8BB9192555C20FCCCC2570A800074AStudies,20(5):441452. 2E/$File/bereavedbysuicidelitreview.pdf n Murphy,S.A.,Baugher,R.,Lohan,J.,Scheideman,J.,Heerwagen,J.,n Glynn,E.(1993).Educationalpsychologycoursebook201. 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