Cystic fibrosis powepoint presentation 2011 v2

www.cysticfibrosis.org.auwww.65k465roses.org

Cystic Fibrosis


Cystic fibrosis is the most common genetically-inherited life-shortening chronic illness affecting young Australians today. A baby is born with cystic fibrosis every four days.

How common is CF?


Cystic fibrosis (CF) primarily affects the respiratory system (lungs), the digestive system (pancreas and sometimes liver) and the reproductive system.

How common is CF?


People with CF produce abnormally thick, sticky mucus which blocks small air passages in the lungs. This causes difficulty clearing infections and can result in lung damage over a period of time.

How common is CF?


In Australia, 1 in 25 people are carriers of the CF gene. Carriers of the CF gene do not have any symptoms of the condition. If two people carry the gene and have a child, each pregnancy will have a:

• 1 in 4 chance that the child will have CF • 2 in 4 chance that the child will not have CF

but will carry the gene • 1 in 4 chance that the child will not have CF

and will not be a carrier.

Some facts


One in every 2,500 births produces a child with CF.

Approximately 4,000 people in Australia have CF.


65K465ROSESThe 65K 4 65 Roses Walkathon is an endurance walking event that was first held in 2008.

In that time over $270,000 has been raised to support people living with Cystic Fibrosis and in the search for a cure.

On Saturday March 5th 2011, a group of ordinary individuals will get together at 3am and walk 65km. You can join them!


Do you know what CF is?

Click on the below link to view our latest YouTube Video:

http://www.youtube.com/watch?v=VfOjrYeZWUE


•Portable oxygen machines (Inogen & Eclipse)•Nebulise Pumps, including travel nebulisers•Treadmill with lung function capacity•Practical help at home with airway clearance•Advocacy, either on an individual basis or by lobbying for improved services and benefits with federal, state and local governments

•Respite breaks for parents/carers

Where does the money go to?


Where does the money go to?

• Financial assistance with the extra costs of living with CF such as:

– Costs incurred by families during hospitalisation – Assisting with the purchase and hire of equipment

needed for treatment– Assisting with items not covered by government

programs such as Nutritional supplements needed to overcome malabsorption and to maintain weight and the special vitamins needed for CF Care.


Where does the money go?• Expenditure for programs that receive no government funding:

– Social work service to adults living with CF– Air pumps for nebulisers– Welfare assistance to families to cover costs listed above– Information and education including the production of

pamphlets, booklets & CDS, a quarterly newsletter and educational seminars for members and health professionals

– Public Awareness: we’re committed to increasing community awareness of CF through community service announcements, media, events & awareness merchandise

– Essential nutritional supplements– Essential vitamin supplements


2010 65K465ROSES Proudly Supported by:




Supporting

The Cystic Fibrosis Clinic Cystic Fibrosis NSW

Health & Medicine

Cystic fibrosis powepoint presentation 2011 v2