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Who do you trust for health information?
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Crowd vs. ExpertsWho to trust for health information?
Alexandra Carmichael, Mar 2009
I’m a panelist for the Great Debate
“Wiki vs. Expert”: What's the best approach to knowledge creation?
The Lineup:
Experts vs. Users
Slightly skewed?
Help!
OK, deep breath.
My Reaction:
I asked my 1300 / friends:
Who do you trust for health information?
Lots of replies and discussion from:
regular folks
patients
self-trackers
doctors
social media advocates
Theme #1: Who is an Expert?
@ePatientDave, health trackers
Experts Patients
Experts are not necessarily MDs
But not all patientsare experts
Theme #2: What kind of patients?
Julio Bonis Sanz, MD PhD
Chronic Acute
Patients have valuable expertise to advise orcomplement doctors
Patients don’t haveas much expertise,
rely more on doctors
Theme #3: Are statistics better than experts?
This book says YES!
Linear statistical models are better at
making predictions
Experts are good at defining measures
Theme #4: Can patients run their own clinical trials?
ALS Lithium study - patients self-tracking at PatientsLikeMe
So what’s the answer? Crowd or experts?
1. It depends.
2. Transparent collaboration is a start.
3. Deep breathing is always good. :)
Other themes, ideas, who-to-trust thoughts?
Write to me!
twitter: @accarmichael