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AsuncionNovember, 2015
Childhood Disability:a fundamental issue in national and international public policy
Hans Forssberg, MD, PhDNeuropaediatrics, Karolinska InstitutetChairman IAACD
Sir Michael Marmot2008
http://www.who.int/disabilities/world_report/2011/en/index.html
http://www.unicef.org/sowc2013/
WHO, CBR Guidelines 2010
• 10% of world’s population• 80% in developing countries• Poverty• No rehabilitation services• No assistive devices• No education• No employment
The Key Messages from International Reports
Improving child development outcomes has become a priority in future goals
Children with disabilities have an equal right to benefit from this focus
The international advocacy tools are in place but require government and civil society commitment
Hans Forssberg 3 maj 2023 4
International Agenda on Childhood Disability
Civil society commitment: Who will be committed to advance the agenda?
What shall be achieved?
3 maj 2023Hans Forssberg 5
Health professionals in partnership with families can play a key role
Experience and expertise in childhood disability Relationship of trust with the children and their
families Insight and engagement in community life and
capacity to work across sectors Capacity to influence decision-making
Community-levelNational level International level
Individual missions are good – but not enough3 maj 2023Hans Forssberg 6
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF Model (participation) Doctor Centered to
Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF model (participation) Doctor Centered to Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Hans Forssberg
aims to ensure that all children and young people with intellectual disabilities are fully participating members of society, living with their families, integrated in the community and receiving health care and support proportional to their needs.
The WHO Europe initiative 2010:
Better health better lives: children and young people with intellectual disabilities and their families
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF model (participation) Doctor Centered to Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Cerebral PalsyOrthopaedic disease - surgeryNeurologic disorderMotor & cognitive dysfunctionLimitation in activity and participation
ActivityBody function
&Body structure
Participation
Environment Personal factors
Health
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF model (participation) Doctor Centered to
Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Key activities of CBR-programmeCommunity Based Rehabilitation
1. Training family members and community members on disability
2. Facilitating inclusive education3. Providing specialist services4. Providing assistive devises5. Creating employment opportunities6. Providing support for social activities7. Providing financial assistance
Hans Forssberg WHO, CBR Guidelines 2010
Key activities of CBR-programmeCommunity Based Rehabilitation
1. Training family members and community members on disability
2. Facilitating inclusive education3. Providing specialist services4. Providing assistive devises5. Creating employment opportunities6. Providing support for social activities7. Providing financial assistance
Hans Forssberg WHO, CBR Guidelines 2010
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF model (participation) Doctor Centered to Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Important Historical Improvements in Management of Childhood Disability
From Institution to Inclusion Medical Model to ICF model (participation) Doctor Centered to Family & Community Based Care Takers to Academic Professions Empiric Art to Evidence Based Medicine
Principles for intervention in childhood disability
1. Evidence based medicine – clinical trials2. Reliable and valid methods to measure
treatment results3. A science based theoretical framework
predicting the treatment results
Hans Forssberg
Novak I et al, 2013
Vision
To globally improve the outcomes and health of children and youth with disabilities by supporting their families and community professionals through an international collaboration in order to advance and share knowledge and to translate this knowledge to practice
International Alliance of Childhood Academies
• MoU in Vienna (July) & San Diego (September) 2014• Set up the Alliance
– Constitution and governance structures– Establishing new academies
• Eastern Africa• Latin America• Mexico• India, Bangladesh
International Alliance of Childhood Academies
International Alliance of Childhood Academies
• MoU in Vienna (July) & San Diego (September) 2014• Set up the Alliance
– Constitution and governance structures– Establishing new academies
• Eastern Africa• Latin America• Mexico• India, Bangladesh
• Global Professional Education Programme • Global Clinical Practise Recommendations • Triennial Meetings
International Alliance of Childhood Academies
5th International Conference of Cerebral Palsy (ICPC) 28th Annual Meeting of the European Academy of Childhood Disability (EACD)
1st Biennial Meeting of the International Alliance of Academies of Childhood Disability (IAACD)
International Conference on Cerebral Palsy and other Childhood-onset Disabilities
www.ICPC2016.org
Save the date!
1- 4 June, 2016