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What do you want to know?
What do you think you should know?
What do you already know?
How can you grow that?
Nursing is one of the most difficult of arts.
Compassion may provide the motive,
But knowledge is our only working power.
M Adelaide Nutting (1858 – 1948)
Hospice Frameworks of Care
i
Social/
Whanaungatanga
Physical/Tinana Emotional/Hinengaro
Spiritual/Wairua
The one thing people need to be assured of, if they are walking along this route
for the first time, is that they will not be left to fend for
themselves.
Our job is to walk the path with each other.
Draft National Specialist Palliative Care Service Specifications
Interdisciplinary Multidisciplinary Vs
• The nurse relationship is an important part of the healing relationship
• It is crucial
Together with knowledge and expertise this relationship is the “essence” of palliative
care nursing
Good palliative care enables nurses
to return to the root of our ability to care fully
for people in a holistic manner.
Mary Vachon
“They said there was “nothing to do” for this young man
who was “end stage”. He was restless and short of breath;
he couldn’t talk and looked terrified.
I didn’t know what to do, so I patted him on the shoulder, said
something inane and left.
At 7 am he died.
The memory haunts me. I failed to care for him properly because I was ignorant.”
A young clinician who later became an palliative care expert.
“Some days I feel “I don’t really have anything to give today” – but there’s
always something to give” Hospice nurse
“It is one of the most rewarding areas of
nursing” Hospice nurse
People you are looking after are real –
in that their façade is stripped away from
them. Hospice nurse
People ask “How can you do that type of
nursing?”
I reply “How can you not?”
Hospice nurse
“You only get one shot at helping that person and
that family thru it” Hospice nurse
How do I do the best for these people?
“Dying is a part of living – it is a natural thing”
Hospice Nurse
“Its about them running the ship……being in
control of their symptoms”
Hospice Nurse
It’s about teaching people to live well rather than
only dying well Palliative Medical Specialist
“Being invited into their homes….witnessing their
care at home ” Hospice Nurse
“Having the opportunity to care for the family as well during this time”
Hospice Nurse
What is it like to be there when someone leaves this
world?
What are the dead like?
Quiet still calm
peaceful
But they still are what they
always were
“You matter because you are you, and you matter until the last moment of
your life.” Cecily Saunders
“It’s such a fine line between trying to be emphatic and care about them and also not take it
home to your own life.
It seems like you have to do something to kind of separate
yourself from it.” Home care nurse
Learning to deal with our own loss and grief, coming in touch with our wounded healers and spiritual
selves, will help us to continue to survive and thrive.
Mary Vachon
Lazarus
For my patients……….
And myself….
