The Internet of Human Beings July 30, 2013 | California

Biological Domains

& Big Data

Alice Rathjen, CEO, Founder DNA Guide

Alice Rathjen © 2013 -

How Genetic Data Will Force Health Records To Evolve

2023 2013 Research Institutes

Government IDs / Passports

Electronic Health Records

Biometric Access/ E-Commerce

Ancestry

Online Identity Services

Citizen Science

Patient Advocacy Sites

Non-Govt. Health Organizations

Disaster Response / Epidemics

Gaming (DNA avatars)

2 Billion Genomes in 10 Years Will Transform Information Flows of the Web

Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars

The Current Web

The Future Web

Mobile Internet of

Things

Search

E Commerce

Social

Biological Network - Internet of

Human Beings

The Old Web

Solving Health Care IT for the Future Web

Health Records Evolve Into Biological Domains

Exponential Growth in Data from the Body

Alice Rathjen © 2013 -

What Happens Once Genetic Data

is Added to a Health Record?

Health Record

Genetic Dataset

“Sticky” Universal

Health Record

Alice Rathjen © 2013 -

Health Data Becomes Identifiable

Big Data = Big Liability

Health Record

Genetic Dataset

De-identified

Data

De-Identified

Data

Alice Rathjen © 2013 -

Solution : Health IT Network =

Biological Domain Registrar

Health Record

Genetic Dataset

Portable Patient Health

Record (patient picks

trusted registrar)

Alice Rathjen © 2013 -

Real Time Consent

Future Health Record

Human = Node On The Network

Biometric

Map of the Body

Map of the Genome

Lifestyle, Environment

Patient Centric Bi-Directional Information Flow

Alice Rathjen © 2013 -

Mobile/Visual Maps of Body & Genome

Information Organized

by Location & Time

Patient Raw Data

Stored Separately

Dynamic Interpretation

& Reports

Easy Adoption

Needs to be able to

Scale Indefinitely

Alice Rathjen © 2013 -

Dynamic Health Information Quality Rating

Quality of Science

Medical Utility

Viewing Risk

(Graded) A,B,C,D,F

W = Withdrawn , I = Incomplete (by Scientific Community)

(by Health Care Providers/ Payers)

E = Everyone

PG = Physician Guidance

R = Restricted

(Medical Ethics, Counselor)

Category Rating

(Five Star Rating)

(i.e.Movie Rating)

Alice Rathjen © 2013 -

Exponential

Growth

Patient Data • Imaging

• Remote Sensors

• Cancer Tumor Analysis

• Drug Response

• Disease Risk

• Carrier Testing

• Life Style

• Environment

Alice Rathjen © 2013 -

User Accounts Biological Domains

Old Big Data vs. New Big Data

just data JUST DATA Alice Rathjen © 2013 -

The Internet of Human Beings July 30, 2013 | Sebastopol, California

Biological Domains & Big Data

Alice Rathjen, CEO, Founder DNA Guide

Patient Health Information with Real Time Consent

Alice Rathjen © 2013 -