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Presentation from the International Congress of the Royal College of Psychiatrists 24-27 June 2014, London
Citation preview
Susan Ringwood
Chief Executive- Beat
RCPsychs June 2014
Talk outline
• Beat- Our vision and mission
• The services and support we provide
• The views of people with eating disorders
and their families:
- on diagnosis
- on treatment
- on research
RCPsychs June 2014
Our history
• Formed in 1989
• 3 local charities merged
• First UK wide charity for eating disorders
• Eating Disorders Association
• Became Beat in 2007
RCPsychs June 2014
We believe:
• Eating disorders are serious mental
illnesses
• They are multi-factorial
• They are treatable conditions
• Recovery is possible
RCPsychs June 2014
Our vision is...
that eating disorders will be beaten
RCPsychs June 2014
• Help-lines, email and text
• Website, forums and live chat
• Support groups
• Literature and publications
• Work in schools
• Training and conferences
• Media work and campaigning
What we do
RCPsychs June 2014
RCPsychs June 2014
RCPsychs June 2014
Reasons for Contact
• First worries or diagnosis 50%
• Treatment access 35%
• Crisis 25%
RCPsychs June 2014
RCPsychs June 2014
First worries
“ I had a bit of knowledge- I’m a nurse,
but I looked at your website and it
confirmed my feelings. I made an
appointment with our GP straight away”
RCPsychs June 2014
Diagnosis
• Confirmed all the research that I had done
up to it and realised that my gut instinct
had been right all along
• I felt that at last my concerns were being
taken seriously.
• We knew. We just had to wait for the GP
to catch up.
• Started to get her treatment and educate
us both
RCPsychs June 2014
RCPsychs June 2014
RCPsychs June 2014
RCPsychs June 2014
Access to treatment
“There was no-one locally our GP knew
who worked in the NHS”
“ all we have been given is an eating
plan, and I don’t think that will make her
start eating at all”
RCPsychs June 2014
RCPsychs June 2014
Crisis
“ The A&E department didn’t seem to
know how to deal with her suicide
attempts and self harm”
“It got very scary and I can’t believe I got
so frightened of my own daughter, the
outbursts were terrifying”
RCPsychs June 2014
Improvements to treatment
Education/information for families 30%
Involve the family 27%
Early intervention 17%
GP awareness/skills 15%
Co-ordination/communication 13%
Access to treatment 10%
RCPsychs June 2014
RCPsychs June 2014
RCPsychs June 2014
Research impact
• Some research findings have been shared
with us but not consistently applied
• I still think there are still some clinicians
who don't understand that these are not
illnesses of choice, just like other
illnesses
• cant tell what research has affected the
professionals or the practice they offer
RCPsychs June 2014
Research directions
Genetics 52%
Prevention 17%
Causes 13%
RCPsychs June 2014
Thank you!
RCPsychs June 2014