DD Councils’ Data

Syed Rafiuddin

July 9th, 2014

Councils’ Reports and Data

• Five Year State Plan – Yearly Amendments

• Program Performance Report (PPR) • Council Reports Data Elements

– State of the State Update– Goal and Objective Outcomes (Objective met or not met)

• Outcomes (numerical outcomes and narratives)– Collaborations

• Partners• Outcomes• Barriers

DD Councils’ Outcome Measures

11/26/2013

Performance Measure Outcomes

FY 2012 Post rev. FY 2011 Variance

Performance Measure 1.1 and 1.2 ( Self-advocacy / Advocacy)

FY 2011 Vs. FY 2012

SA01- People trained in area related to goal/objective 162,531 84,697 92%SA02-People trained in leadership, self-advocacy, and self-determination 45,243 29,654 53%SA03-People trained in system advocacy 49,091 14,911 229%SA04:People active in systems advocacy 65,477 17,317 278%SA05:People attained membership on public/private bodies and leadership coalitions 3,093 3,547 -13%SA06a: Other Self-advocacy measure 24,689 SA06b: Other Self-advocacy measure 10,473SA06c: Other Self-advocacy measure 7,850

Performance Measure 2.1 ( Systems Change) SC01: Program/policies created or improved 3,656 404 805%SC02: Number of organizations involved in Coalitions/Networks/Partnerships 17,459 3,850 353%SC03: Organization engaged in systems change efforts 13,385SC04: Number of public policymakers educated 28,853 16,660 73%SC05: Members of general public reached 25,072,688 42,247,683 -41%SC06a: Other systems change measure 49,909SC06b: Other systems change measure 29,379SC06c: Other systems change measure 2,273

DDC FY 2012 PPR

DD Councils’ Outcome Measure

FY 2008 FY 2009 FY 2010 FY 2011 FY 20120

20,000

40,000

60,000

80,000

100,000

120,000

140,000

160,000

180,000

66,18973,540 68,356

84,697

162,531

SA01- People trained in area related to goal/objective

DD Councils’ Outcome Measure

FY 2008 FY 2009 FY 2010 FY 2011 FY 20120

5,000

10,000

15,000

20,000

25,000

30,000

35,000

40,000

45,000

50,000

31,26029,435

36,356

29,654

45,243

SA02-People trained in leadership, self-advocacy, and self-deter-mination

DD Councils’ Outcome Measure

FY 2008 FY 2009 FY 2010 FY 2011 FY 20120

500

1,000

1,500

2,000

2,500

3,000

3,500

4,000

3,105

2,092

2,463

3,547

3,093

SA5- People attained membership on public/private bodies and leadership coalitions

 Examples of Data use:

 Accountability: Government Performance and Results Act (GPRA) outcome measures Budget Justification data

 Progress: Annual Report to The Congress and The President Ad-hoc reports and responses to Congressional and other Federal

agencies

 Analysis: Review of AIDD programs and grantees, effectiveness of programs Best practices Barriers identification

Budget Justification submitted to ACL and HHS:

The State Councils have a significant impact upon promoting self-sufficiency and community living for persons with developmental disabilities. Due to increased technical assistance and guidance, Councils reported that in FY 2012, 14.33 percent of individuals nationwide with developmental disabilities were independent, self-sufficient, and integrated into the community as a result of their efforts, exceeding the FY 2012 target of 13.79 percent.  To receive funds, each State and Territory must have an established DD Council as prescribed under the Developmental Disabilities Assistance and Bill of Rights Act (“DD Act”). Examples of State Council activities include:

Community Living: The Illinois Developmental Disabilities Council published “Illinois at the Tipping Point” in March 2012. This report, along with the 2008 report “Blueprint for System Redesign in Illinois” have been recognized throughout Illinois as a major work that has influenced a number of policy changes, specifically the “Rebalancing Initiative” announced at the Governor’s budget address on February 22, 2012. The Governor stated that two state institutions would be closed and he reiterated a commitment to building community capacity. The Governor’s office requested that the Council coordinate advocacy efforts to ensure the successful transition of individuals from state institutions into the community. Through collaboration with statewide organizations, a work group was formed and a coordinated plan was developed. The first of the two institutions closed on November 29, 2012 and one hundred and eighty three people with developmental disabilities are now living in the community. As part of the plan for transition, the Council funded an initiative of peer-to-peer mentoring for individuals transitioning. A curriculum was developed and self-advocates from the Alliance worked alongside staff to provide support for individuals as they thought about and dreamed of a life beyond the institution.

Transition/Employment: The Kansas Developmental Disabilities Council provides funding to Project SEARCH. Project SEARCH provides real-life work experience to help youth with significant disabilities make successful transitions from school to adult life. The Kansas Project SEARCH programs continue to excel with an overall 75% employment success rate for students with developmental disabilities. All six of the first year SEARCH teams received national outcome awards at the 2013 Project SEARCH annual conference. They have expanded to 7 active project SEARCH sites at: University of Kansas, Kansas State University, Butler Community College, Sedgwick County Government, Newton Medical Center, Salina Regional Medical Center, and Lawrence Memorial Hospital. Since inception, the project had more than 150 students participate in Project SEARCH, all with the goal of securing competitive, integrated employment after graduation. SEARCH interns have been hired in jobs working 15-40 hours per week and earning $7.25 an hour up to $12 an hour. Three additional locations are planned for fall of 2014 to include: Washburn University, McConnell Air Force Base, and the Hampton Inn/Kansas Star Casino Convention Complex. In addition to those three sites, there are four more communities who are working on applications to begin projects in their area. The Council plans to expand the program to include a non-school program targeted towards young adults

Early Intervention: The Maine Developmental Disabilities Council has engaged in and supported a variety of collaborative state level efforts to raise awareness about developmental and behavioral screening. Activities include awareness campaigns and training initiatives targeted at twelve pediatric and family practices that served an estimated 20,000 children with Medicaid coverage. Their combined efforts have facilitated significant, long-term systemic improvements towards early identification and coordinated care for young children with Autism Spectrum Disorder (ASD). Recent studies showed that in Maine children with ASD were more likely to be identified at a younger age and the developmental and autism screening rates more than doubled in the targeted sites

Self-Advocacy: The Maryland Developmental Disabilities Council continues to support self-advocacy through Maryland's statewide self-advocacy group, People on the Go of Maryland (POG). Through two grants funded by the Council, People on the Go of Maryland (POG), a self-advocacy organization led by self-advocates, made strides in 2012 toward increasing the involvement of local self-advocacy groups in statewide advocacy efforts. POG continued to advocate for community supports, educate facilitators, and support local self-advocacy groups in becoming active in systems advocacy. POG educated 1200 students and school staff about disability awareness by presenting at schools in four different counties across the state. In their youth advocacy work, POG presented at the Maryland Transitioning Youth Conference, the Youth Leadership Forum, and Ready at 21 a non-profit organization dedicated to transitioning youth to college, work, and life. POG also presented at several other conferences about self-advocacy and self-determination including The Arcs annual conference, MD Association of Community Services, National Disability Rights Network and TASH. With the support of an outside consultant funded by the Council, POG revised its structure, created job descriptions, and developed new Bylaws to strengthen the organization and foster its autonomy. POG supported the 2012 Legislative Internship. A person with a significant developmental disability was chosen by POG leadership and mentored by their Public Policy Coordinator on how to prepare and submit testimony on bills of importance to people with developmental disabilities

Administration on Intellectual and Developmental Disabilities (AIDD)

Administration for Community Living (ACL)  

One Massachusetts Avenue N.W. Washington, D.C. 20201

http://www.acl.gov/Programs/AIDD/Index.aspx