Impact Review 2015

Message from the Chief ExecutiveThe person on the front cover this year, Michelle Syms, came to our first ever workshop for young people in 1995 – she’d been severely burned as a child when her Hallowe’en costume caught fire. Today she is an active parent, part-time nurse and a great champion of our cause. At Hallowe’en 2014 we protested strongly against retailers advertising spooky costumes that perpetuated worn-out myths equating facial scars and villainy, one of too many incidents during the year that have ridiculed people with disfigurements – we intend to challenge them relentlessly.2014-15 was both a very exciting year for Changing Faces and a very problematic one – exciting because we challenged more facial prejudice, provided help to more people, trained more NHS staff and skin camouflage volunteers and communicated more on social media than ever before. But very problematic too because – financially – we had a very tough year during which our income did not meet expectations.I hope you will enjoy this Review which highlights our impact in 2014-15, none of which would have been possible without the wonderful generosity of our many donors. You will find our full audited accounts on our website along with our plans for the year ahead.Sadly, we have had to make cost savings but, crucially, without affecting our fundamentals – our services, advocacy and campaigns. We were very sorry to say goodbye to some great staff and we wished them well.We are now stepping up our income-generating efforts – and I very much hope you will be inspired to

give us your support as generously as you can to help us make a real difference to many people’s lives. Thank you very much.       

James Partridge OBE, Chief Executive, Changing Faces

Message from the ChairIt’s a great honour for me to have been invited to be Chair of Changing Faces’ Board of Trustees. I have greatly admired the charity’s work over the last five years and am totally convinced of how important the charity’s mission is for the lives of many

people with disfigurements and their families – and society as a whole.I took up my role in April and so have witnessed close up how the charity’s Trustees, management and staff have wrestled with the financial problems we have faced and are learning the lessons of the last year too. I am totally supportive of what has been done and am excited about the future.Most importantly, I have been hugely impressed by the dedication and commitment of our great staff team and the brilliant volunteers who give their time and energy to our cause. Looking to the future, I am determined to help James and the whole team find the funding this charity needs to serve the many people for whom we are a lifeline and inspiration. We need to instigate new ground-breaking campaigns so that the public and all our institutions come to respect face equality.I am also looking forward to meeting many of those whose generosity has made Changing Faces what it is today – a highly acclaimed force for better services and fairness. But I want to go further than that because I believe Changing Faces needs to find ways to make its impact even more powerful in the years ahead.I very much hope you will want to help us to do that and look forward to meeting you.David Clayton, Chair of Trustees, Changing Faces 

Changing Lives‘Changing Lives’ aims to help people of all ages who have disfigurements and their families directly and by supporting their

health professionals and teachers.

HEALTH ADVOCACYl Our second ‘Look at Me’ report advocating improved psycho-social care for people with skin conditions (ie: more staffing and better training) was launched at the Royal College of General Practitioners’ (RCGP) annual conference and widely publicised.l We continue to work with NHS England’s Clinical Reference Groups to shape best practice guidelines for the psycho-social care of people with burns, skin conditions, and head and neck cancer.l We presented strong evidence of the value of the first CFP in the NHS (at the Royal Hospital for Sick Children in Edinburgh) at the British Association of Plastic, Reconstructive and Aesthetic Surgeons’ (BAPRAS) conference.l In collaboration with National Voices, we met with Simon Stevens, Chief Executive of NHS England, to discuss his ‘NHS Five Year Forward View’ and that led to a much-improved funding position for our Skin Camouflage Service in 2015-16. HEALTH TRAININGl We trained two new CFPs to work in the NHS via joint ventures with Great Ormond Street Hospital (based in the Dermatology department) and Salisbury Hospital (based in the Psychology team). Ninety-four patients and families have been seen already. In August 2014, we also trained a CFP at the Jewish General Hospital in Montreal to support patients with scleroderma.l We have delivered new specialist training in psycho-social care to over 100 health professionals (eg: at the Maggie’s Centre in Nottingham and Sheffield Children’s Hospital) after appointing a Training and Professional Development Manager. l Changing Faces is influencing the next generation of plastic surgeons at the invitation of their professional body, by developing new e-learning course material on psycho-social issues for their Specialist Registrar training. We are also part of the national selection process for plastic surgery trainees, run by Health Education England and have contributed to the Royal College of Surgeons’ Reconstructive Science Higher Specialist Training Curriculum Review. 

l Offering emotional support to nearly 600 people and families via face-to-face sessions, group work, email, phone and skype with our Changing Faces Practitioners (CFPs) and to another 15,000 people through our online self-help guides – many more than before.l 90% of people who received one-to-one support from our CFPs said the service had significantly improved their lives; “I feel like a weight has been lifted” said one client.l All our self-help guides are available online via our website and continue to meet the Department of Health’s Information Standard quality kite mark.l As well as our own workshops (such as ‘Communicate with Confidence’ for adults and ‘Step Ahead’ for young people starting or in their first year at secondary school), we were invited to run workshops for several support groups and hospitals such as for parents at an amputee support day organised by the Meningitis Research Foundation in Bristol. 

James Partridge with TV personality Gok Wan after winning the ‘People’s Choice’ category at the Body Confidence Awards hosted in the House of Commons (2m impressions on social media)

212YOUNG PEOPLE

SIGNED UPTO iFACE ONFACEBOOK

15,320DOWNLOADS OF OUR

SELF-HELP GUIDES

298CHILDREN

AND YOUNG PEOPLE

ARE SEEN BY OUR CHANGING FACESPRACTITIONERS ACROSS THE UK

406

ADULTS &

103HEALTH

PROFESSIONALSTRAINED

125,000PEOPLE SEE OUR EASTENDERS FIRE CAMPAIGN

23.4MIMPRESSIONS

ON SOCIALMEDIA

137,836UNIQUE VISITORS

TO OUR WEBSITE

69 FEATURES IN NEWSPAPERS,

MAGAZINES ANDON TELEVISION

Changing Minds

5M30NEW SKIN

CAMOUFLAGEPRACTITIONERS

TRAINED

VIEWERS FORCRIMEWATCH EPISODE

FEATURING OUR SKIN CAMOUFLAGE

SERVICE

90%OF CLIENTS SAY SERVICE

IS ‘GOOD’ (OR BETTER)

15,320WNLOADS OF OUR

SELF-HELP GUIDES

5050M

OR

E TH

AN

CLIENTS SEEN BY THE SKIN CAMOUFLAGE SERVICE

125,000PEOPLE SEE OUR EASTENDERS FIRE CAMPAIGN

MORE THAN4000 FOLLOWERS

ON TWITTER 8

MORE THAN

6300

LIKESON SOCIAL MEDIA

FEATURES IN NEWSPAPERS,

MAGAZINES ANDON TELEVISION 4CHANGING FACES

CHAMPIONS FEATURE INDOUBLE PAGE ARTICLE

IN THE SUN

LEADOFSTED

INSPECTORSBRIEFED

Changing Lives

Local servicesBringing our services and influence closer to people, we now have Centres in Yorkshire & The Humber and Scotland and run the Skin

Camouflage Service throughout the country.

SKIN CAMOUFLAGE ADVICEl Our Skin Camouflage Service is now delivered by more than 200 trained volunteers in 140 monthly clinics around the UK receiving over 5,000 referrals from GPs, dermatologists, plastic surgeons and other NHS clinicians.l We trained 30 new Skin Camouflage Practitioners and conducted a full review of the training course to achieve Royal College of Nursing accreditation standards. This formed the basis for a new Vocational Training Charitable Trust (VTCT) accredited Skin Camouflage Practitioner training course, which we have been piloting since April 2015.l Six regional workshops were held in London, Manchester, Bristol, Edinburgh and Birmingham for more than a hundred Skin Camouflage Practitioners, which all received very positive feedback. l We have run a six-month pilot to assess the potential for a fee-paying service for self-referring clients (who are about 13% of our service users).

 YORKSHIRE AND THE HUMBER CENTREl We were very proud to launch the first CFP-led psycho-social service in NHS primary care at the Street Lane GP practice in north Leeds in December. The service was contracted by three local Clinical Commissioning Groups and enables Changing Faces to offer an integrated service of psycho-social and skin camouflage support for the first time.l The CFPs in Sheffield have already offered specialised psycho-social support to over 200 adults, young people and children, including patients at the Sheffield Children’s Hospital.

SCOTLAND CENTREl A grant from the Big Lottery Fund in Scotland enabled us to create a Centre in Edinburgh and, from early 2015, to provide community-based CFP services for children and young people with disfigurements across Scotland, and to work with Scottish schools to improve their education experience. The grant also enables us to create a CFP post focused on children at the Royal Hospital for Children in Glasgow.l Changing Faces Scotland team is now based at the SPACE Centre in Harewood Road, Edinburgh. We are very grateful for the pro-bono office space provided by the Lloyds TSB Foundation for Scotland over the last three years. l The ‘Faces of Scottish Youth’ group of young people raised over £1,300 at the ‘Face the Music and Dance’ Ceilidh and Raffle.

Rory Cooper, one of our Skin Camouflage Coordinators, tests products with volunteer Skin Camouflage Practitioners at a regional workshop

Changing Faces celebrates the opening of its pioneering new clinic at Street Lane GP Practice in Leeds

Changing minds‘Changing Minds’ aims to challenge public

attitudes towards people with disfigurements and promote face

equality for all.

PUBLIC ATTITUDESl We have publicly challenged a number of companies on media, corporate and public examples of facial prejudice or ridicule. For example, Tesco removed all items with Freddie Krueger’s characteristics from its Hallowe’en ranges after social media pressure.l We stood up to conference call company Powwownow, to remove some adverts from its ‘Avoid the Horror’ campaign, which featured zombies with masks very similar to those worn by people after severe facial burns. l We complained about the stereotypical and offensive wording of a headline in a Daily Mail article about an offender who has a facial disfigurement.l We also look to applaud positive portrayals such as BBC’s Eastenders soap featuring a storyline about a lead character being seriously injured in a house fire. We were pleased that the programme-makers asked us to provide advice and support.

EDUCATIONl We presented to Ofsted’s eight regional Special Educational Needs Lead Inspectors in December, to brief them on the specific challenges faced by

WHAT SUCCESS LOOKS LIKEl Our ‘What Success Looks Like’ campaign was launched at the Mall Galleries event for 250 people in May 2014 (see whatsuccesslookslike.org.uk) and continues to gather momentum. l Two of our champions who have not let their unusual faces get in the way of fulfilling their potential, Bill Cooper from Lloyds Banking Group and Graham Myers from Croda, were featured in an online initiative called ‘10 Minutes With’. It showcased industry experts recruiting potential talent into their respective fields.l Employers and jobseekers were consulted and we published new Guidance in May 2015 which is already being embedded in many companies’ recruitment policies and practices.l Our Face Equality at Work Adviser has run a number of Implicit Bias workshops with Prospectus (the recruitment agency), the National Portrait Gallery and Hampshire Constabulary.

We challenged Powwownow on its offensive advertising campaign

Marco Singh - one of the role models for our ‘What Success Looks Like’ campaign

children and young people with disfigurements. This will, we believe, lead to a much more informed stance by inspection teams.l We advised Ofsted on how they could ensure schools provide integrated non-discriminatory learning environments.l For Anti-Bullying Week, we produced new guidance for teachers, which included recent policy developments, ideas for lessons and tools to help manage bullying in the classroom.

Our SupportersMEDIA AND SOCIAL MEDIA l It has been an exceptional year for media and social media. With a new specialist on our team, we saw a flourishing of our social media presence and engagement resulting in 2.3 million impressions on Facebook in March this year, compared with 473,000 the previous year.l Over 137,000 people visited our website to learn about disfigurement and the charity. We also have 4,651 Twitter followers, 6,413 Facebook likes and our monthly e-newsletters are now being sent to more than 5,600 people.l The Communications Team helped Changing Faces to get lots of media coverage too, such as an excellent article in the Daily Telegraph in December by Angela Neustatter, covering our ‘What Success Looks Like’ campaign and features in the magazine ‘Runners World’ and on Crimewatch, ITV News and BBC Radio 1, amongst others.

 FUNDRAISINGl We are hugely grateful to everyone who has supported us in any number of innovative ways!l Our Gala Dinner, again supported by Taylor Wessing, took place in early March at 8 Northumberland Avenue in London, with Rory Bremner hosting a Variety Show of great entertainers. The auction and raffle exceeded all expectations, raising over £150,000. We thank Taylor Wessing, Vichy Dermablend and Specsavers for their very generous sponsorship – and Karen Miles for singing so superbly. What a voice!l Our five-strong London Marathon team excelled raising over £16,000.l The Face Your Fears Week in October received media and social media attention and was a great success raising over £35,000 with significant sums coming from intrepid skydivers and first-time stand-up comedians! Taylor Wessing generously match-funded donations with 50p for every pound up to £16,000.l We are so grateful for the great generosity of

many individual donors and our first Christmas Appeal raised over £7,000.l Thanks also to the Chancellor of the Exchequer, we held a reception at 11 Downing Street to mark 10 years since the opening of the Squire Centre. A hundred people attended and heard Geoff Squire explain why he and his wife’s Foundation had been keen to provide ‘transformative philanthropy’, as described by our Chief Executive. The evening was hosted by the Rt Hon Danny Alexander MP, Chief Secretary to the Treasury.

THIS IS HOW YOUR DONATION CAN HELP l £10 could provide telephone advice on how

to cope with bullyingl £50 could cover the cost of a skin

camouflage consultationl £100 could teach someone how to deal

with staring and intrusive questionsl £250 could transform a school into a

happy, inclusive place for children with disfigurements

l £1,000 could change a life by enabling somebody to face their disfigurement with confidence.

Vicky Matthews, Steve Carruthers, host Rory Bremner and Anna Saccone at our Gala Dinner

Hero Johnson won the Changing Faces Prize for ‘Paulina’

We give a huge vote of thanks to our many donors – individuals (including legacy givers), foundations, corporates and all those volunteers who have given time and energy to our cause. Thank you all very much.We can’t list everyone here, but we acknowledge the very generous donations of £10,000 or more in the year to 31st March 2015 from:BBC Children in NeedBig Lottery Fund (England) Big Lottery Fund (Scotland)Biss Davies Charitable TrustBody Shop FoundationCity Bridge TrustThe Peter Cundill FoundationEsmée Fairbairn FoundationLivingstone Charity Trust in memoriam Mrs Florence LivingstoneNovartis Pharmaceuticals UK LtdRobertson TrustJames Tudor FoundationLeathersellers’ Company Charitable FundPersula Foundation

RS Macdonald Charitable TrustRayne FoundationPhilip and Marjorie Robinson’s Charitable TrustGeoff & Fiona Squire FoundationSheffield Children’s NHS Trust Foundation Hospital Children’s Charity Steel Charitable TrustThompson Family Charitable TrustVocational Training Charitable TrustGarfield Weston FoundationPro bono support from:We wish also to acknowledge the superb pro bono support we have received from all our Skin Camouflage Service volunteers, from all the donors who gave Gala auction lots and raffle prizes, and our London volunteers including Frankie Downing and Maureen Kirby, Jenny Engström and Robin Morello.

INCOMING RESOURCES £1,647,965 (£1,714,830)Charitable Trusts 50% (60%)Corporate donations 4% (2%)Private donations 20% (19%)Community groups 2% (2%)Fundraising events 13% (7%)Statutory Grants 1% (1%)Consultancy and contracts 10% (9%)

RESOURCES EXPENDED £1,902,308 (£1,697,218)Changing Lives 23% (30%)Local Services and Influence 50% (46%)Changing Minds 10% (9%) Fundraising 16% (14%)Governance 1% (1%)

FINANCE 1 APRIL 2014 – 31 MARCH 2015 (2013-14)

If you would like to support Changing Faces today you can make a regular or one-off donation at changingfaces.org.uk; if you would like more information, please email info@changingfaces.org.uk

Thank you to all our donors

photo: page 5 © Yakub Merchant

Trustees David Clayton, Chair (from16.04.2015) Anthony Hobson, Chair (until 28.02.2015)David Rough, Hon. TreasurerMark Landon, Hon. SecretaryDr Richard CastleDr Tony ClinePieter FolmerDr Mary GloverSusan Harrison Victoria Hunt (from 11.06.2015)Lisa King (until 31.12.2014)Dr Felicity MehendaleMike OkninskiNicola SawfordHis Honour Judge Paul Thomas QCChristopher WalkerStephen Woodford (until 31.07.2015)

Patrons Sir Christopher BensonRory BremnerMichelle DockeryLord Fellowes of West StaffordJan RavensWilliam SimonsFiona SquireSimon Weston OBEBenjamin Zephaniah

Changing FacesThe Squire Centre33-37 University StreetLondon WC1E 6JNTelephone 0845 4500 275Fax 0845 4500 276

info@changingfaces.org.ukwww.changingfaces.org.uk

Registered Charity No. 1011222Charity registered in Scotland SC039725Company Limited by Guarantee Registered in England and Wales No 2710440Registered Office: Changing Faces, The Squire Centre33 – 37 University StreetLondon WC1E 6JN

@faceequalitywww.facebook.com/ChangingFacesUK

© Changing Faces 2015

This Review is also available, on request, in plain text and on CDTracey Goldsbrough, accompanied by her friend

Jackie Frazer, raised £7,000 for Changing Faces by walking China’s Great Wall

Changing Faces staff celebrate National Volunteers Week