Its great to be here, actually its great to be anywhere as

Us

• Scott & Judy Mac• Motor mechanic and teacher

• Married 28 years• 2 wonderful kids

• Boy 18 Arts student, Girl 22 Intensive Care Nurse

• Lived in southern Sydney 28 years (me 54)

Before After

I’m sti

ll vertical!

Scotts introduction

Scott's intro of Judy• In sickness and in health• The patient• The real hero

The Process, figures & the spin

• Valentines Day• The chemo• MUDDY• Life's changed• I’m still vertical!

BMT

PUVA Treatment

GVHD

Spine tune-up

Shingles, on the improve then CTS

What “they” did

Blood Donations

Made Birthday cakes

Administered IV drugs

What ourdaughter

did

Be Brave and

Shave!

What Mr T did

Our then 17 year old son, Ian, was a “bit overwhelmed” by the situation but never-the-less did his bit at the School. Yes the whole of Woolooware High School did it and raised $5000 for the Leukaemia Foundation.

What the Leukaemia Cars & Drivers did

What many organisations did

• Leukaemia Foundation• Skin & Cancer Foundation Aus• Whole medical system• All medical people• St Vincents Hospital (Kieth Fay)• St George Hospital (Mike Harvey)• Westmead Hospital (Mark Schifter)• ANZ bank• RTA• NRMA• Australian Super Fund• Catholic Education Office• Board of Studies• NSW Education Department• Australian Taxation Office• Medicare• St Patricks College, Sutherland• Vizual Hair Studio

• Sutherland Shire Council• HCF• TAFE• Maritime Services Board• Neighbours• RMYC• Social Workers• Nutritionists• Scouting Association• My mates• Our acquaintances• Air Show People• Solicitor*• Accountant*• My Mum

• QANTAS• Centerlink

I’m sti

ll vertical!

What I did

To say thankyou, I went and back to hospital.

I’m sti

ll vertical!

We’re nearly thereThe Black Stump

Back o’ Bourke

SW West Aus

Cape leeuwin, WAJervi

s Bay Light House

The minor complications• Aches and pains• Fatigue• GVHD• Regular unblocking of throat• Huge malnourishment• Weight loss• Septic showers, NDE• PUVA• Shingles• Vision• My spine

• Carpel Tunnel Syndrome• Suppressed immune system• Infections big and small• Constant medical visits• The pill dependence• Finger and toe nails• Gout• Some people's ill-informed

attitudes and advice.• Effect on the kids and Carer• What can I get for

Judy?

The other side – The Carers tasks

• Being there for everyone• Keeping things normal• Ask for help• New skills• Sense of humour• Emergency departments and the

magic yellow card!• Blogs and diary's 4 later and others

Blog Spot

• blog spot by Judy is• http://scottmacsdiary.blogspot.com/