Spectrum of Developmental Disabilities

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DESCRIPTIONIntellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience.

WHO SHOULD ATTENDThis activity is intended for physicians, pediatricians, neurodevelopmentalists, developmental-behavioral pediatricians, child neurologists, child psychiatrists, educators, nurses, occupational therapists, psychologists, speech and language pathologists, physical therapists, physician assistants and social workers.

OBJECTIVESAfter attending this activity, the participant will demonstrate the ability to: • List three current challenges confronting people with intellectual

disability.• Choose appropriate genetic testing to evaluate the child who presents

with intellectual disability.• Discuss the rationale for targeted pharmacotherapy of intellectual

disability.• Define and discuss the need for adaptive behavior in the diagnosis of

intellectual disability.• Analyze the benefits and challenges associated with inclusive education

for intellectual disability.• Name three epileptic syndromes associated with intellectual disability

and list their clinical features and identify the preferred agents for their treatment.• Evaluate current intervention strategies in light of lessons learned from

older people with intellectual disability.

ACCREDITATION STATEMENTThis activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the Johns Hopkins University School of Medicine and the Kennedy Krieger Institute. The Johns Hopkins University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians.

CREDIT DESIGNATION STATEMENTThe Johns Hopkins University School of Medicine designates this live activity for a maximum of 18.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

OTHER CREDITAmerican Nurses Credentialing Center (ANCC) accepts AMA PRA Category 1 Credit

TM from organizations accredited by the ACCME.

American Academy of Nurse Practitioners (AANP) accepts AMA PRA Category 1 Credit

TM from organizations accredited by the ACCME.

American Academy of Physician Assistants (AAPA) accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit™ from organizations accredited by ACCME. Physician assistants may receive a maximum of 18.0 AAPA Category 1 CME credits for completing this program.The Johns Hopkins University School of Medicine is authorized by the State Board of Examiners of Psychologists as a provider of continuing education. The Johns Hopkins University School of Medicine maintains responsibility for this program. A certificate for 18.0 CEUs will be awarded upon completion of this activity.

The Maryland Board of Social Work Examiners certifies that this program meets the criteria for 18.0 credit hours of Category 1 or 1.8 CEUs of continuing education for social workers and associates licensed in Maryland. The Johns Hopkins University School of Medicine is an approved sponsor of the Maryland Board of Social Work Examiners for continuing education credits for licensed social workers in Maryland.The Johns Hopkins University has approved this activity for 18.0 contact hours for non-physicians.

POLICY ON SPEAKER AND PROVIDER DISCLOSUREIt is the policy of the Johns Hopkins University School of Medicine that the speaker and provider disclose real or apparent conflicts of interest relating to the topics of this educational activity, and also disclose discussions of unlabeled/unapproved uses of drugs or devices during their presentation(s). The Johns Hopkins University School of Medicine OCME has established policies in place that will identify and resolve all conflicts of interest prior to this educational activity. Detailed disclosure will be made in the activity handout materials.

REGISTRATION AND LOCATIONMonday, March 17, 2014 • 8:00 - 8:45 a.m.Thomas B. Turner Building, Johns Hopkins University School of Medicine720 Rutland Avenue, Baltimore, Maryland 21205The Turner Building is located on Rutland Avenue at Monument Street. Directions and campus parking information are available on our website under the contact and travel section at www.HopkinsCME.edu. Handicapped parking is available in the nearby Rutland Garage. Complimentary round-trip transportation for attendees staying at conference headquarters hotel will be provided. Johns Hopkins is smoke-free.

FEESREGISTRATION CUT-OFF DATE: March 11, 2014Methods of Payment: Payment by check or credit card must accompany the registration form prior to the activity. On-site payments by credit card only. Foreign payments must be by credit card or with a U.S. Dollar World Money Order. The registration fee includes instructional materials, continental breakfasts, refreshment breaks and lunches.

Registration Fee ....................................................$535You will receive a confirmation by e-mail if you have provided your e-mail address. Otherwise confirmation will be sent by mail. If you have not received it by March 11, 2014 call (410) 502-9636 to confirm that you are registered. A certificate of attendance will be sent by May 2, 2014 to the e-mail address you provide on the registration form. The Johns Hopkins University reserves the right to cancel or postpone any activity due to unforeseen circumstances. In this event, the University will refund the registration fee but is not responsible for travel expenses. Additionally, we reserve the right to change the venue to a comparable venue. Under such circumstances registrants will be notified as soon as possible.

LATE FEE AND REFUND POLICY A $50 late fee applies to registrations received after 5:00 p.m. EST on March 11, 2014. A handling fee of $50 will be deducted for cancellation. An additional fee may apply for cancellation of other events, including workshops and social activities. Refund requests must be received by fax or mail by March 11, 2014. No refunds will be made thereafter. Transfer of registration to another Johns Hopkins conference in lieu of cancellation is not possible.

SOCIAL EVENTA complimentary reception for registrants and faculty will be held Monday, March 17, 2014, 5:10 – 6:00 p.m. Guests are invited to attend at an additional charge of $20. Please indicate your attendance on the activity registration form.

HOTEL INFORMATIONHomewood Suites by Hilton (800) 873-6668625 South President Street (443) 392-9010Baltimore, Maryland 21202 FAX: (443) 392-9020

HOTEL RESERVATION CUT-OFF DATE: FEBRUARY 15, 2014

A limited block of sleeping rooms has been reserved for your convenience and will be available on a first-come, first-served basis.Make your reservation online at www.baltimorehomewoodsuites.com or call the hotel directly and specify that you are attending the Johns Hopkins Developmental Disabilities group to receive the special group rate of $172 for studio king or $179 for a one bedroom double, plus tax. Complimentary roundtrip transportation will be provided. Check-in time is 3:00 p.m. Check-out time is 12:00 noon.

EVALUATION A form will be available to attendees to evaluate each session and each speaker’s presentation, as well as to identify future educational needs.

OUTCOMES SURVEY A survey will be sent to all physician attendees within three months post activity to assist us in determining what impact this activity had on the attendee’s practice.

EMERGENCY CALLSDuring the days of this activity only, March 17 - 19, 2014, direct emergency calls to the Hopkins registration desk, (410) 955-3673. Messages will be posted for participants.

AMERICANS WITH DISABILITIES ACTThe Johns Hopkins University School of Medicine fully complies with the legal requirements of the ADA and the rules and regulations thereof. Please notify us if you have any special needs.

TO REGISTER OR FOR FURTHER INFORMATIONRegister Online (credit card and eCheck) www.HopkinsCME.edu Register by Phone (credit card only) (410) 502-9636Register by Fax (866) 510-7088Confirmation/Certificates (410) 502-9636General Information (410) 955-2959E-mail the Office of CME [email protected]

For general information, the direct link for this CME activity web page is: http://www.hopkinscme.edu/CourseDetail.aspx/80032518

Follow us on Twitter: http://twitter.com/HopkinsCMEFacebook: http://www.facebook.com/HopkinsCME

COMMERCIAL SUPPORT The Johns Hopkins University School of Medicine did not solicit or receive commercial funding from any commercial entity, including pharmaceutical and medical device manufacturers, for this activity.

The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice

March 17 - 19, 2014Johns Hopkins University School of Medicine

Thomas B. Turner BuildingBaltimore, Maryland

Jointly Sponsored by Johns Hopkins University School of MedicineDivision of Child Development, Department of Pediatrics

and Kennedy Fellows Association Kennedy Krieger Institute

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DESCRIPTIONIntellectual disability is a chronic, life-long disorder that has major public health implications. Since the 1970s people with intellectual disability have entered the mainstream of society and served in community programs. Intellectual disability and developmental delay is the second most common reason for provision of special education services in the US. The breadth of the issues relating to intellectual disability are well suited for the interdisciplinary focus of the Spectrum of Developmental Disabilities and its targeted audience.

WHO SHOULD ATTENDThis activity is intended for physicians, pediatricians, neurodevelopmentalists, developmental-behavioral pediatricians, child neurologists, child psychiatrists, educators, nurses, occupational therapists, psychologists, speech and language pathologists, physical therapists, physician assistants and social workers.

OBJECTIVESAfter attending this activity, the participant will demonstrate the ability to: • List three current challenges confronting people with intellectual

disability.• Choose appropriate genetic testing to evaluate the child who presents

with intellectual disability.• Discuss the rationale for targeted pharmacotherapy of intellectual

disability.• Define and discuss the need for adaptive behavior in the diagnosis of

intellectual disability.• Analyze the benefits and challenges associated with inclusive education

for intellectual disability.• Name three epileptic syndromes associated with intellectual disability

and list their clinical features and identify the preferred agents for their treatment.• Evaluate current intervention strategies in light of lessons learned from

older people with intellectual disability.

ACCREDITATION STATEMENTThis activity has been planned and implemented in accordance with the Essential Areas and policies of the Accreditation Council for Continuing Medical Education through the joint sponsorship of the Johns Hopkins University School of Medicine and the Kennedy Krieger Institute. The Johns Hopkins University School of Medicine is accredited by the ACCME to provide continuing medical education for physicians.

CREDIT DESIGNATION STATEMENTThe Johns Hopkins University School of Medicine designates this live activity for a maximum of 18.0 AMA PRA Category 1 Credits™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

OTHER CREDITAmerican Nurses Credentialing Center (ANCC) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME. American Academy of Nurse Practitioners (AANP) accepts AMA PRA Category 1 CreditTM from organizations accredited by the ACCME.American Academy of Physician Assistants (AAPA) accepts certificates of participation for educational activities certified for AMA PRA Category 1 Credit™ from organizations accredited by ACCME. Physician assistants may receive a maximum of 18.0 AAPA Category 1 CME credits for completing this program.The Johns Hopkins University School of Medicine is authorized by the State Board of Examiners of Psychologists as a provider of continuing education. The Johns Hopkins University School of Medicine maintains responsibility for this program. A certificate for 18.0 CEUs will be awarded upon completion of this activity.

The Maryland Board of Social Work Examiners certifies that this program meets the criteria for 18.0 credit hours of Category 1 or 1.8 CEUs of continuing education for social workers and associates licensed in Maryland. The Johns Hopkins University School of Medicine is an approved sponsor of the Maryland Board of Social Work Examiners for continuing education credits for licensed social workers in Maryland.The Johns Hopkins University has approved this activity for 18.0 contact hours for non-physicians.

POLICY ON SPEAKER AND PROVIDER DISCLOSUREIt is the policy of the Johns Hopkins University School of Medicine that the speaker and provider disclose real or apparent conflicts of interest relating to the topics of this educational activity, and also disclose discussions of unlabeled/unapproved uses of drugs or devices during their presentation(s). The Johns Hopkins University School of Medicine OCME has established policies in place that will identify and resolve all conflicts of interest prior to this educational activity. Detailed disclosure will be made in the activity handout materials.

REGISTRATION AND LOCATIONMonday, March 17, 2014 • 8:00 - 8:45 a.m.Thomas B. Turner Building, Johns Hopkins University School of Medicine720 Rutland Avenue, Baltimore, Maryland 21205The Turner Building is located on Rutland Avenue at Monument Street. Directions and campus parking information are available on our website under the contact and travel section at www.HopkinsCME.edu. Handicapped parking is available in the nearby Rutland Garage. Complimentary round-trip transportation for attendees staying at conference headquarters hotel will be provided. Johns Hopkins is smoke-free.

FEESREGISTRATION CUT-OFF DATE: March 11, 2014Methods of Payment: Payment by check or credit card must accompany the registration form prior to the activity. On-site payments by credit card only. Foreign payments must be by credit card or with a U.S. Dollar World Money Order. The registration fee includes instructional materials, continental breakfasts, refreshment breaks and lunches.

Registration Fee ....................................................$535You will receive a confirmation by e-mail if you have provided your e-mail address. Otherwise confirmation will be sent by mail. If you have not received it by March 11, 2014 call (410) 502-9636 to confirm that you are registered. A certificate of attendance will be sent by May 2, 2014 to the e-mail address you provide on the registration form. The Johns Hopkins University reserves the right to cancel or postpone any activity due to unforeseen circumstances. In this event, the University will refund the registration fee but is not responsible for travel expenses. Additionally, we reserve the right to change the venue to a comparable venue. Under such circumstances registrants will be notified as soon as possible.

LATE FEE AND REFUND POLICY A $50 late fee applies to registrations received after 5:00 p.m. EST on March 11, 2014. A handling fee of $50 will be deducted for cancellation. An additional fee may apply for cancellation of other events, including workshops and social activities. Refund requests must be received by fax or mail by March 11, 2014. No refunds will be made thereafter. Transfer of registration to another Johns Hopkins conference in lieu of cancellation is not possible.

SOCIAL EVENTA complimentary reception for registrants and faculty will be held Monday, March 17, 2014, 5:10 – 6:00 p.m. Guests are invited to attend at an additional charge of $20. Please indicate your attendance on the activity registration form.

HOTEL INFORMATIONHomewood Suites by Hilton (800) 873-6668625 South President Street (443) 392-9010Baltimore, Maryland 21202 FAX: (443) 392-9020

HOTEL RESERVATION CUT-OFF DATE: FEBRUARY 15, 2014

A limited block of sleeping rooms has been reserved for your convenience and will be available on a first-come, first-served basis.Make your reservation online at www.baltimorehomewoodsuites.com or call the hotel directly and specify that you are attending the Johns Hopkins Developmental Disabilities group to receive the special group rate of $172 for studio king or $179 for a one bedroom double, plus tax. Complimentary roundtrip transportation will be provided. Check-in time is 3:00 p.m. Check-out time is 12:00 noon.

EVALUATION A form will be available to attendees to evaluate each session and each speaker’s presentation, as well as to identify future educational needs.

OUTCOMES SURVEY A survey will be sent to all physician attendees within three months post activity to assist us in determining what impact this activity had on the attendee’s practice.

EMERGENCY CALLSDuring the days of this activity only, March 17 - 19, 2014, direct emergency calls to the Hopkins registration desk, (410) 955-3673. Messages will be posted for participants.

AMERICANS WITH DISABILITIES ACTThe Johns Hopkins University School of Medicine fully complies with the legal requirements of the ADA and the rules and regulations thereof. Please notify us if you have any special needs.

TO REGISTER OR FOR FURTHER INFORMATIONRegister Online (credit card and eCheck) www.HopkinsCME.edu Register by Phone (credit card only) (410) 502-9636Register by Fax (866) 510-7088Confirmation/Certificates (410) 502-9636General Information (410) 955-2959E-mail the Office of CME [email protected]

For general information, the direct link for this CME activity web page is: http://www.hopkinscme.edu/CourseDetail.aspx/80032518

Follow us on Twitter: http://twitter.com/HopkinsCMEFacebook: http://www.facebook.com/HopkinsCME

COMMERCIAL SUPPORT The Johns Hopkins University School of Medicine did not solicit or receive commercial funding from any commercial entity, including pharmaceutical and medical device manufacturers, for this activity.

The Spectrum of Developmental Disabilities XXXVI Intellectual Disability: At the Precipice

March 17 - 19, 2014Johns Hopkins University School of Medicine

Thomas B. Turner BuildingBaltimore, Maryland

Jointly Sponsored by Johns Hopkins University School of MedicineDivision of Child Development, Department of Pediatrics

and Kennedy Fellows Association Kennedy Krieger Institute

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Online (credit card and eCheck): www.HopkinsCME.eduBy fax: (866) 510-7088 By phone (credit card only): (410) 502-9636

Or mail this form to the Johns Hopkins University, Office of Continuing Medical Education, P.O. Box 64128, Baltimore, Maryland 21264-4128. Include check payable to HOPKINS/80032518 , or include credit card information below.

PAYMENT MUST ACCOMPANY FORM TO CONFIRM YOUR REGISTRATION.h I am a Johns Hopkins speaker for this activity.

Please type or print clearly:last name first name m.i.

highest degree primary specialty Hopkins faculty/staff only JHED ID

For Physicians Only:

NPI – 10 digits State License # State of License

mailing address

city state ZIP country

daytime telephone fax number

e-mail

You will receive a confirmation notice and your attendance certificate by e-mail if you provide your e-mail address.h Check here if you wish to receive e-mail notices about upcoming CME activities.

What do you hope to learn by attending this activity? ______________________________________

Please notify us if you have any special needs. _______________________________________________

Registration Fee: .................................................................................................. $535For registrations received after 5:00 p.m. EST on March 11, 2014, include a $50 late fee. On-site registrations are payable only by credit card.

Social Event – Welcome Receptionh I will attendh number of guests at $20 each

Total amount enclosed $ __________Payment Type:

JHU Faculty/Staff Only: If you are using your Tuition Remission Benefit or an ION budget, please complete this registration form and return with appropriate payment processing form to OCME, Turner 20.Forms can be found on-line at http://www.hopkinscme.edu/Resources/resources.aspx.

h Check (See instructions on top of form.)

h Credit Card: h VISA h MASTERCARD h DISCOVER h AMEX

Card # _____________ - _____________ - _____________ - _____________ Exp. Date ________

Name on Card _____________________________________________________________________

Signature & Date ___________________________________________________________________

Monday, March 17, 2014

Morning 8:00 - 8:45 Registration and Continental Breakfast

8:45 - 9:00 Welcome with Conference Goals George Dover, MD Gary Goldstein, MD

SCOPE OF THE PROBLEM Moderator: Brian Rogers, MD 9:00 - 9:40 The Prevalence of ID: Is It Decreasing? Maureen Durkin, PhD, DrPh

9:40 - 10:20 Are We Abandoning Intellectual Disability? Ruth Luckasson, JD

10:20 - 10:40 Refreshment Break

10:40 - 11:25 Balkanization of NDD: Implication for Future Progress Leonard Abbeduto, PhD

11:25 - 12:10 Intellectual Disability: A Call to A Dignity Revolution Timothy Shriver, PhD

12:10 - 12:30 Discussion

12:30 - 1:30 Lunch

Afternoon

NEUROBIOLOGICAL ASPECTS Moderator: Sarah Risen, MD 1:30 - 2:15 Karyotypes, SNPs and Whole Exome

Sequencing: What’s a Clinician to Do? S. Ali Fatemi, MD

2:15 - 3:00 X-Linked ID: Beyond Fragile X Roger Stevenson, MD


3:20 - 4:05 From ‘Neurological Taint’ to Genomic Medicine: Developmental Brain Dysfunction in the 21st Century Scott Myers, MD

4:05 - 4:50 The Neurobiology of Intellectual Disabilities Michael Johnston, MD


5:10 - 6:00 Welcome Reception

Tuesday, March 18, 2014

Morning

8:00 - 8:30 Continental Breakfast

CLINICAL CONSIDERATIONS Moderator: Mary Leppert, MBBCh

8:30 - 9:20 What is Significantly Sub-Average General Intellectual Functioning? Daniel Reschly, PhD

9:20 - 10:10 What Adaptive Competencies Should We Be Measuring? Stephen Greenspan, PhD


10:30 - 11:15 Global Developmental Delay vs. IDD: Is Early Identification of IDD Possible? Paul Lipkin, MD

11:15 - 12:00 Evaluating Untestable Children Karen Wills, PhD, LP, ABPP


12:30 - 1:30 Lunch

Afternoon

ASSOCIATION DYSFUNCTION Moderator: Scott Myers, MD

1:30 - 2:15 Intellectual Disability in the Age of Autism James Harris, MD

2:15 - 3:05 ADHD and ID Nancy Roizen, MD


3:25 - 4:10 The Social Aspects of Intellectual Disabilities Gary Siperstein, PhD

4:10 - 4:55 ID and Epilepsy Patti Vining, MD


Wednesday, March 19, 2014

Morning


INTERVENTIONS AND OUTCOMES Moderator: Paul Lipkin, MD

8:30 - 9:15 Health Promotion for People with ID Gloria Krahn, PhD, MPH

9:15 - 10:00 Special Education in the Era of Inclusion Michael Wehmeyer, PhD

10:00 - 10:40 Is Transition Ever Achieved? Karrie Shogren, PhD


11:00 - 11:45 Targeted Therapy for NDD Tanjala Gipson, MD

11:45 - 12:30 Testing and the Feeble Minded: A Forgotten Pioneer Pasquale Accardo, MD

12:30 - 1:00 Discussion and Closing Remarks

1:00 Adjourn – Please complete and return the Evaluation and Credit Report Forms.

The Johns Hopkins University School of Medicine takes responsibility for the content, quality and scientific integrity of this CME activity.

This schedule is subject to change.

ACTIVITY DIRECTOR

Bruce Shapiro, MDArnold J. Capute MD, MPH Chair in Neurodevelopmental DisabilitiesProfessor of PediatricsJohns Hopkins University School of MedicineVice President of TrainingKennedy Krieger Institute

JOHNS HOPKINS AND KENNEDY

George Dover, MDDirector, The Johns Hopkins Children’s CenterProfessor of Pediatrics and Oncology Johns Hopkins University School of Medicine

S. Ali Fatemi, MDChief, NeurogeneticsKennedy Krieger InstituteAssistant Professor of Neurology and PediatricsJohns Hopkins University School of Medicine

Tanjala Gipson, MDAssociate Director, Clinical Trials UnitKennedy Krieger InstituteAssistant Professor of NeurologyJohns Hopkins University School of Medicine

Gary Goldstein, MDPresident and Chief Executive OfficerKennedy Krieger InstituteProfessor of Neurology and PediatricsJohns Hopkins University School of MedicineProfessor of Environmental Health SciencesJohns Hopkins University Bloomberg School of Public Health

James Harris, MDProfessor of Psychiatry and Behavioral Sciences, Pediatrics, Mental Health and History of MedicineJohns Hopkins University School of Medicine

Michael Johnston, MDChief Medical Officer, Kennedy Krieger Institute Blum Moser Chair for Pediatric NeurologyProfessor of Neurology, Pediatrics and Physical Medicine and RehabilitationJohns Hopkins University School of Medicine

Mary Leppert, MBBChCo-Director, Neonatal Follow-up ClinicKennedy Krieger Institute Assistant Professor of PediatricsJohns Hopkins University School of Medicine

Paul Lipkin, MDDirector, Center for Development and LearningKennedy Krieger InstituteAssociate Professor of PediatricsJohns Hopkins University School of Medicine

Sarah Risen, MDPost-Doctoral Research FellowDepartment of NeurologyJohns Hopkins University School of Medicine

Patti Vining, MD Professor of Neurology and PediatricsJohns Hopkins University School of Medicine

GUEST SPEAKERS

Leonard Abbeduto, PhDDirector, UC Davis MIND Institute Tsakopoulos-Vismara Endowed ChairProfessor of Psychiatry and Behavioral SciencesUC Davis School of MedicineSacramento, California

Pasquale Accardo, MDProfessor of PediatricsJames H. Franklin Chair in Developmental Research in PediatricsVirginia Commonwealth UniversityWake Forest, Virginia

Maureen Durkin, PhD, DrPh Professor of Population Health Sciences and Pediatrics Waisman Center Investigator Vice Chair, Department of Population Health Sciences Director of the Graduate Program, Department of Population Health Sciences University of Wisconsin-Madison School of Medicine and Public HealthMadison, Wisconsin

Stephen Greenspan, PhDClinical Professor of PsychiatryUniversity of Colorado Health Sciences CenterLittleton, Colorado

Gloria Krahn, PhD, MPH Director, Division of Human Development and DisabilityCenters for Disease ControlAtlanta, Georgia

Ruth Luckasson, JDDistinguished Professor of Special EducationChair, Department of Educational SpecialtiesUniversity of New MexicoAlbuquerque, New Mexico

Scott Myers, MD Neurodevelopmental PediatricianGeisinger Autism & Developmental Medicine InstituteClinical Associate Professor of PediatricsTemple University School of Medicine

Daniel Reschly, PhDProfessor of Education and PsychologyPeabody College of Vanderbilt UniversityNashville, Tennessee

Brian Rogers, MDProfessor of PediatricsDirector, Institute on Development & DisabilityOregon Health and Science UniversityPortland, Oregon

Nancy Roizen, MDProfessor of PediatricsCase Western Reserve University School of MedicineDivision Chief, Pediatric Developmental and Behavioral PsychologyUniversity Hospitals Case Medical CenterCleveland, Ohio

Karrie Shogren, PhDAssociate Professor of Special Education Associate Director, Kansas University Center on Developmental Disabilities University of KansasLawrence, Kansas

Timothy Shriver, PhDChairman, Special OlympicsWashington, DC

Gary Siperstein, PhDProfessor of PsychologyFounder and Director, Center for Social Development and EducationUniversity of MassachusettsBoston, Massachusetts

Roger Stevenson, MD Senior Clinical GeneticistGreenwood Genetic CenterGreenwood, South Carolina

Michael Wehmeyer, PhDProfessor of Special EducationDirector, Kansas University Center on Developmental Disabilities University of KansasLawrence, Kansas

Karen Wills, PhD, LP, ABPPPediatric Neuropsychologist Children’s Hospital and Clinics of MinnesotaMinneapolis, Minnesota

PROGRAM

REGISTRATION FORM Course Number 80032518

The Spectrum of Developmental Disabilities XXXVI • Intellectual Disability: At the Precipice • March 17-19, 2014

Online (credit card and eCheck): www.HopkinsCME.eduBy fax: (866) 510-7088 By phone (credit card only): (410) 502-9636

Or mail this form to the Johns Hopkins University, Office of Continuing Medical Education, P.O. Box 64128, Baltimore, Maryland 21264-4128. Include check payable to HOPKINS/80032518 , or include credit card information below.

PAYMENT MUST ACCOMPANY FORM TO CONFIRM YOUR REGISTRATION.h I am a Johns Hopkins speaker for this activity.

Please type or print clearly:last name first name m.i.

highest degree primary specialty Hopkins faculty/staff only JHED ID

For Physicians Only:

NPI – 10 digits State License # State of License

mailing address

city state ZIP country

daytime telephone fax number

e-mail

You will receive a confirmation notice and your attendance certificate by e-mail if you provide your e-mail address.h Check here if you wish to receive e-mail notices about upcoming CME activities.

What do you hope to learn by attending this activity? ______________________________________

Please notify us if you have any special needs. _______________________________________________

Registration Fee: .................................................................................................. $535For registrations received after 5:00 p.m. EST on March 11, 2014, include a $50 late fee. On-site registrations are payable only by credit card.

Social Event – Welcome Receptionh I will attendh number of guests at $20 each

Total amount enclosed $ __________Payment Type:

JHU Faculty/Staff Only: If you are using your Tuition Remission Benefit or an ION budget, please complete this registration form and return with appropriate payment processing form to OCME, Turner 20.Forms can be found on-line at http://www.hopkinscme.edu/Resources/resources.aspx.

h Check (See instructions on top of form.)

h Credit Card: h VISA h MASTERCARD h DISCOVER h AMEX

Card # _____________ - _____________ - _____________ - _____________ Exp. Date ________

Name on Card _____________________________________________________________________

Signature & Date ___________________________________________________________________

Monday, March 17, 2014

Morning 8:00 - 8:45 Registration and Continental Breakfast

8:45 - 9:00 Welcome with Conference Goals George Dover, MD Gary Goldstein, MD

SCOPE OF THE PROBLEM Moderator: Brian Rogers, MD 9:00 - 9:40 The Prevalence of ID: Is It Decreasing? Maureen Durkin, PhD, DrPh

9:40 - 10:20 Are We Abandoning Intellectual Disability? Ruth Luckasson, JD


10:40 - 11:25 Balkanization of NDD: Implication for Future Progress Leonard Abbeduto, PhD

11:25 - 12:10 Intellectual Disability: A Call to A Dignity Revolution Timothy Shriver, PhD


12:30 - 1:30 Lunch

Afternoon

NEUROBIOLOGICAL ASPECTS Moderator: Sarah Risen, MD 1:30 - 2:15 Karyotypes, SNPs and Whole Exome

Sequencing: What’s a Clinician to Do? S. Ali Fatemi, MD

2:15 - 3:00 X-Linked ID: Beyond Fragile X Roger Stevenson, MD


3:20 - 4:05 From ‘Neurological Taint’ to Genomic Medicine: Developmental Brain Dysfunction in the 21st Century Scott Myers, MD

4:05 - 4:50 The Neurobiology of Intellectual Disabilities Michael Johnston, MD


5:10 - 6:00 Welcome Reception

Tuesday, March 18, 2014

Morning


CLINICAL CONSIDERATIONS Moderator: Mary Leppert, MBBCh

8:30 - 9:20 What is Significantly Sub-Average General Intellectual Functioning? Daniel Reschly, PhD

9:20 - 10:10 What Adaptive Competencies Should We Be Measuring? Stephen Greenspan, PhD


10:30 - 11:15 Global Developmental Delay vs. IDD: Is Early Identification of IDD Possible? Paul Lipkin, MD

11:15 - 12:00 Evaluating Untestable Children Karen Wills, PhD, LP, ABPP


12:30 - 1:30 Lunch

Afternoon

ASSOCIATION DYSFUNCTION Moderator: Scott Myers, MD

1:30 - 2:15 Intellectual Disability in the Age of Autism James Harris, MD

2:15 - 3:05 ADHD and ID Nancy Roizen, MD


3:25 - 4:10 The Social Aspects of Intellectual Disabilities Gary Siperstein, PhD

4:10 - 4:55 ID and Epilepsy Patti Vining, MD


Wednesday, March 19, 2014

Morning


INTERVENTIONS AND OUTCOMES Moderator: Paul Lipkin, MD

8:30 - 9:15 Health Promotion for People with ID Gloria Krahn, PhD, MPH

9:15 - 10:00 Special Education in the Era of Inclusion Michael Wehmeyer, PhD

10:00 - 10:40 Is Transition Ever Achieved? Karrie Shogren, PhD


11:00 - 11:45 Targeted Therapy for NDD Tanjala Gipson, MD

11:45 - 12:30 Testing and the Feeble Minded: A Forgotten Pioneer Pasquale Accardo, MD

12:30 - 1:00 Discussion and Closing Remarks

1:00 Adjourn – Please complete and return the Evaluation and Credit Report Forms.

The Johns Hopkins University School of Medicine takes responsibility for the content, quality and scientific integrity of this CME activity.

This schedule is subject to change.

ACTIVITY DIRECTOR

Bruce Shapiro, MDArnold J. Capute MD, MPH Chair in Neurodevelopmental DisabilitiesProfessor of PediatricsJohns Hopkins University School of MedicineVice President of TrainingKennedy Krieger Institute

JOHNS HOPKINS AND KENNEDY

George Dover, MDDirector, The Johns Hopkins Children’s CenterProfessor of Pediatrics and Oncology Johns Hopkins University School of Medicine

S. Ali Fatemi, MDChief, NeurogeneticsKennedy Krieger InstituteAssistant Professor of Neurology and PediatricsJohns Hopkins University School of Medicine

Tanjala Gipson, MDAssociate Director, Clinical Trials UnitKennedy Krieger InstituteAssistant Professor of NeurologyJohns Hopkins University School of Medicine

Gary Goldstein, MDPresident and Chief Executive OfficerKennedy Krieger InstituteProfessor of Neurology and PediatricsJohns Hopkins University School of MedicineProfessor of Environmental Health SciencesJohns Hopkins University Bloomberg School of Public Health

James Harris, MDProfessor of Psychiatry and Behavioral Sciences, Pediatrics, Mental Health and History of MedicineJohns Hopkins University School of Medicine

Michael Johnston, MDChief Medical Officer, Kennedy Krieger Institute Blum Moser Chair for Pediatric NeurologyProfessor of Neurology, Pediatrics and Physical Medicine and RehabilitationJohns Hopkins University School of Medicine

Mary Leppert, MBBChCo-Director, Neonatal Follow-up ClinicKennedy Krieger Institute Assistant Professor of PediatricsJohns Hopkins University School of Medicine

Paul Lipkin, MDDirector, Center for Development and LearningKennedy Krieger InstituteAssociate Professor of PediatricsJohns Hopkins University School of Medicine

Sarah Risen, MDPost-Doctoral Research FellowDepartment of NeurologyJohns Hopkins University School of Medicine

Patti Vining, MD Professor of Neurology and PediatricsJohns Hopkins University School of Medicine

GUEST SPEAKERS

Leonard Abbeduto, PhDDirector, UC Davis MIND Institute Tsakopoulos-Vismara Endowed ChairProfessor of Psychiatry and Behavioral SciencesUC Davis School of MedicineSacramento, California

Pasquale Accardo, MDProfessor of PediatricsJames H. Franklin Chair in Developmental Research in PediatricsVirginia Commonwealth UniversityWake Forest, Virginia

Maureen Durkin, PhD, DrPh Professor of Population Health Sciences and Pediatrics Waisman Center Investigator Vice Chair, Department of Population Health Sciences Director of the Graduate Program, Department of Population Health Sciences University of Wisconsin-Madison School of Medicine and Public HealthMadison, Wisconsin

Stephen Greenspan, PhDClinical Professor of PsychiatryUniversity of Colorado Health Sciences CenterLittleton, Colorado

Gloria Krahn, PhD, MPH Director, Division of Human Development and DisabilityCenters for Disease ControlAtlanta, Georgia

Ruth Luckasson, JDDistinguished Professor of Special EducationChair, Department of Educational SpecialtiesUniversity of New MexicoAlbuquerque, New Mexico

Scott Myers, MD Neurodevelopmental PediatricianGeisinger Autism & Developmental Medicine InstituteClinical Associate Professor of PediatricsTemple University School of Medicine

Daniel Reschly, PhDProfessor of Education and PsychologyPeabody College of Vanderbilt UniversityNashville, Tennessee

Brian Rogers, MDProfessor of PediatricsDirector, Institute on Development & DisabilityOregon Health and Science UniversityPortland, Oregon

Nancy Roizen, MDProfessor of PediatricsCase Western Reserve University School of MedicineDivision Chief, Pediatric Developmental and Behavioral PsychologyUniversity Hospitals Case Medical CenterCleveland, Ohio

Karrie Shogren, PhDAssociate Professor of Special Education Associate Director, Kansas University Center on Developmental Disabilities University of KansasLawrence, Kansas

Timothy Shriver, PhDChairman, Special OlympicsWashington, DC

Gary Siperstein, PhDProfessor of PsychologyFounder and Director, Center for Social Development and EducationUniversity of MassachusettsBoston, Massachusetts

Roger Stevenson, MD Senior Clinical GeneticistGreenwood Genetic CenterGreenwood, South Carolina

Michael Wehmeyer, PhDProfessor of Special EducationDirector, Kansas University Center on Developmental Disabilities University of KansasLawrence, Kansas

Karen Wills, PhD, LP, ABPPPediatric Neuropsychologist Children’s Hospital and Clinics of MinnesotaMinneapolis, Minnesota

PROGRAM

REGISTRATION FORM Course Number 80032518

The Spectrum of Developmental Disabilities XXXVI • Intellectual Disability: At the Precipice • March 17-19, 2014