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A presentation from Michael Marr, Advocacy and Information Project Worker for Waverley Care, explaining how the service has exploited digital technologies to best help support and educate service users. This talk was a contribution to the ELISA Open Forum 2009.
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Reducing barriers to health information in the age of thee-environment
Michael Marr
Advocacy and Information Project Worker
08/04/23 www.waverleycare.org 1
Changing times?
The changes in which our service operates has been dramatic since the introduction of effective treatment for HIV in the mid 1990s.– Treatments options?
– Populations affected?
– Internet and new technology!!!!
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Aims of organisation
Our key objectives are:– To promote the welfare of people with HIV and similar
conditions and those affected by them.
– To provide care and assistance.
– To advance education and understanding of these conditions and their prevention.
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HIV stigma and discrimination
HIV-related stigma arises mostly from fear and ignorance about the disease and/or hostility and existing prejudices about the groups most affected by it.
HIV-related discrimination is the unfair treatment of people on the basis of their actual or suspected HIV status.
HIV related discrimination is unique and is linked and reinforces other forms of discrimination such as racism and homophobia.
08/04/23 www.waverleycare.org 4
Adaptation?
New ways of delivering information but people living with HIV are disproportionally affected by stigma and discrimination which can impact on people’s ability to access information.
08/04/23 www.waverleycare.org 5
Real life!!!!!
Social exclusion
Literacy
Language
Physical and mental capabilities
Disclosure/Confidentiality
Accessibility of services
Changing demands of service users
Legal framework
Information overload
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FuturePlus
FuturePlus was established with the aim to enable people with HIV to plan a future for themselves and find the means to achieve and maintain it.– FP Skills - Information and advice on employment
issues and other skill based opportunities.
– FP Health - Supporting people to make choices and gain skills to live as well as possible.
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Skill building
One to one
Mentoring
Art therapy
Counselling skills
Life coaching
Health activities
Men’s, Women’s and Young People’s activities
Practical activities
Assertiveness/self esteem training
IT skills
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Building partnerships
Adult education
Employment services
Emotional and practical support
Advice agencies
Health and information providers
BME agencies
Disability agencies
UK/Scottish HIV and BBV agencies
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New technology
Accessing information outside the office
Secure and confidential networks– Social networking/mentoring
– Specialised dating sites
HIV focused websites– UKCAB/HIV i-base/NAM
– Scottish Netreach Network
– Connected Scotland
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Health Videos
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New initiatives for young people
CHIVA has received three years funding from the Elton John AIDS Foundation to develop a ‘one-stop shop’ website relating to children, young people and HIV.
The aim is to provide HIV positive young people a secure site containing information, on-line support and signposting to other relevant sites for themselves and their peers.
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The future
Growth of social networking sites and its impact for us as an information providers?
08/04/23 www.waverleycare.org 16
Real life!!!!!
Social exclusion
Literacy
Language
Physical and mental capabilities
Disclosure & Confidentiality
Accessibility of services
Changing demands of service users
Legal framework
Information overload
08/04/23 www.waverleycare.org 17
Michael MarrWaverley CareAdvocacy & Information Project
08/04/23 www.waverleycare.org 18
