www.renalpatientview.org
Neil Turner, Edinburgh
Cherry Bartlett, Leeds
Renal PatientView
Renal PatientView
Making computers work for renal patients
RIXG
Sample Proton screens
The worldNHSnet
Renal server(e.g. Proton)
Webserver
Satellite unit
Other hospitals
Treatment choices
Renal PatientView
History
Feb 2004 Feasibility studies, proposal
May 2004 First funding
Jun 2004 Detailed spec, design and planning
Nov 2004 Live in Leeds
Jan 2005 Live in 4th pilot centre
Jun 2005 Broader extension
Individualised online information for renal patients
January 2005 <100 patients
January 2006 850 patients
July 2006 2000 patients
Renal PatientView
Remainder of 2006
• Include non-Proton units - first ones nearly there?
• Remaining Proton units - it’s been offered
• Evaluation
– Phase 4?
– Report experience to other specialties
Renal PatientView
Evaluation
Cherry Bartlett
Renal Informatics Manager
Leeds Teaching Hospitals Trust
Objectives and Method
Objectives– Content, existing and future– Security Issues, real and perceived– Benefits and Risks– Ease of Use– Barriers to Use
Methods– Survey of users and non-users– Ethics approval for questionnaires to be used in six UK centres
Preliminary Findings
Content– 95% of patients believed the website was very or quite
valuable (65/30)– Results were the most valued part of the site– Letters were the aspect those who didn’t already have,
wanted
Security– Only 7% very concerned prior to use, dropping to 1% after– 82% never changed their password
Preliminary Findings (contd)
Benefits and Risks– “Makes me feel more in control of my medical
care”, 77% wholly or partly agree
– “Gives me a better understanding of my renal disease”, 82% wholly or partly agree
– “I read things that worry me”, 24% wholly or partly agree (40% wholly disagree)
Preliminary Findings (contd)
Barriers to use– 64% of non-users had no knowledge of RPV prior to
receiving questionnaire– Gender profile same between users and non-users– 45% of non-users over 66yrs cf 10.5% of users– Lack of computer/internet access regularly quoted
Ease of use– Most users found the website very easy or easy to use and
navigate
Comments made by Users
“I felt like a pest keep ringing the hospital for my results after I had attended clinic – I now feel that my results belong to me”
“The website is excellent. It is one of the best innovations I have encountered in the NHS (apart from medical advances) in my 50yrs involvement”
“Patients don’t always take in what the medics say, and to be able to take time to read it properly in the comfort of your own home is wonderful! Keep up the good work”
Winner NHS Leadership in Clinical Informatics Accolade 2006